IPFCC provides national and international leadership for advancing the practice of patient- and family-centered care. By promoting collaborative, empowering partnerships among patients, families, and health care professionals, IPFCC facilitates patient- and family-centered change in all health care settings.

Listed below is a selection of current and recent initiatives.

IPFCC launched Better Together: Partnering with Families, in June 2014. IPFCC has multiple Better Together Partners, including American Society for Healthcare Risk Management, American Association of Critical-Care Nurses, National Partnership for Women & Families, The Canadian Foundation for Healthcare Improvement, New Yorkers for Patient and Family Empowerment, Health in Aging Foundation, and The DAISY Foundation.

Learn more about this campaign in the Better Together website section, which includes information on exemplar hospitals, and a toolkit and other resources to assist organizations to make this change. Learn more...

In April 2015, IPFCC received funding from the Patient-Centered Outcomes Research Institute (PCORI) for a two-year project, Creating Capacity for Sustainable Partnerships with Patients and Families in Research. The funding supported a special research track at The 7th International Conference on Patient- and Family-Centered Care: Partnerships in Care, Interprofessional Education, and Research held in New York City in July 2016. The track highlighted exemplary partnerships with patients and families in research initiatives and shared best practices and resources for preparing patients, families, and researchers to collaborate.

Marie Abraham, IPFCC's Vice President for Programming and Publications and Kelly Parent, IPFCC’s Program Specialist for Patient and Family Partnerships provided pre-conference outreach to patient and family advisory councils and researchers from seven organizations in order to build capacity for the councils and researchers to serve as partners in research. Based on the learning from the outreach and the featured research track, IPFCC will develop and disseminate practical training materials.

IPFCC is providing training and technical assistance to the Long Island Health Network (LIHN) in New York to plan and implement the Patient and Family Centered Learning Collaborative. Marie Abraham, Vice President for Programming and Publications serves as lead for this project and works closely with LIHN leadership to plan and guide the Learning Collaborative. A key goal of the Learning Collaborative is to establish a sustainable and effective Patient and Family Advisory Council (PFAC) at each of the ten participating LIHN hospitals. Over the course of a year, teams are participating in face-to-face learning sessions, coaching calls, and webinars to learn about patient- and family-centered care and best practices for building an effective and sustainable Patient and Family Advisory Council.

American College of Physicians
National Partnership for Women & Families
Group Health Research Institute

IPFCC collaborated with the American College of Physicians, National Partnership for Women & Families, and Group Health Research Institute, on Engaging Patients and Families as Partners in Redesigning Healthcare Practice: The Ambulatory Practice Assessment Project to develop a valid and reliable tool measuring physician perceptions of PFCC in their practice. This project was funded by the Gordon and Betty Moore Foundation.

Oregon Association of Hospitals and Health Systems partnered with IPFCC to provide a 16-month Patient and Family Engagement Collaborative (PFEC) for its member hospitals throughout the state, through May 2016. As part of the PFEC, member hospitals participated in four face-to-face learning sessions, three webinars, and individual coaching calls to support the creation or expansion of their PFE efforts. Goals include development of patient and family advisory councils, adoption of a Family Presence Policy or other PFE strategies such as bedside change of shift, integration of patient and family advisors into quality and safety initiatives and/or the board. Twenty-two teams representing thirty hospitals participated and include a broad range of settings from small critical access hospitals, integrated health care systems to large metropolitan hospitals.

IPFCC is working with the Oregon Health Authority Transformation Center as a technical assistance provider for the Coordinated Care Organizations (CCO) working with their communities to improve community health especially for Oregon Health Plan (Medicaid) members. Each CCO is required to have a community advisory council (CAC) that provides recommendations on health improvement projects and expenditures to address social determinants of health as well as recommendations of covered health care services in each community. Fifty-one percent of the membership of each CAC must be a person who is covered by the Oregon Health Plan, or a member of the family of a covered individual. IPFCC is providing training and consultation to communities striving to strengthen their CACs and the partnerships between each CCO, CAC, and larger community.

IPFCC prepared an issue brief: Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations (2014), sponsored by the Robert Wood Johnson Foundation's State Quality and Value Strategies program. The brief outlines best practices and suggested recommendations and strategies to support enhanced individual and family engagement efforts by Medicaid agencies, their staff, and organizations serving these populations.

IPFCC conducted a targeted literature review and a series of in-depth interviews, interviewing more than 50 individuals across the nation, including policy specialists, health care providers, engagement experts, and individuals and family members receiving Medicaid support. A small steering committee representing these perspectives helped guide the development of the report. The report and related resources including a summary of the methodology, bibliography, comprehensive summary of 50 interviews, and other resources are can be found at Engagement Strategies for the Medicaid Population.

IPFCC's Senior Policy and Program Specialist, Mary Minniti, served on the technical expert panel for the Qualis Health white paper, Oral Health: An Essential Component of Primary Care (June 2015). This paper presents the case for delivering preventive oral health care as a component of routine medical care and enhancing partnerships between primary care and dentistry. Implementation advice and tips for primary care practices include partnering "with patients and families to plan your program" and engaging patients and families in self-care. In addition, the section on quality improvement includes the importance of metrics, including those that measure the patient experience. The National Interprofessional Initiative on Oral Health sponsored this project with support from the DentaQuest Foundation, the REACH Healthcare Foundation, and the Washington Dental Service Foundation.

Articles Co-Authored By IPFCC Staff

IPFCC served on the writing team for Partnering with Patients, Families, and Communities, an article for The Society of Teachers of Family Medicine's (STFM) journal, Family Medicine Special Issue on Family Medicine for America's Health. This September 2015 publication discusses recommendations to transform the US health care system and ensure the health of all Americans.

April 2014, IPFCC's President and CEO, Bev Johnson, along with Steve Weinberger, CEO of the American College of Physicians and Debra Ness, President of the National Partnership for Women & Families, published Patient- and Family- Centered Medical Education: The Next Revolution in Medical Education? in the Annals of Internal Medicine, calling for the revamping of medical education by working collaboratively with patients and family advisors and leaders in design and implementation.

In December 2014, the Annals of Internal Medicine published several commentaries touching on the issues raised in the Institute of Medicine's (IOM) September report, Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life, including Dying in America: A Constructive Step Forward and an Opportunity to Deepen Partnerships With Patients and Families, written by Debra L. Ness, President of the National Partnership for Women & Families, and Beverley H. Johnson, IPFCC’s President and CEO.

From 2012-2016, IPFCC participated as an external stakeholder and on the Senior Advisory Board of the Mount Sinai Collaboration for Advancing Pediatric Quality Measures (CAPQuaM), one of seven national Centers of Excellence funded by AHRQ in collaboration with CMS, as part of the federal Pediatric Quality Measures Program (PQMP) created by the Children's Health Insurance Program Reauthorization Act (CHIPRA) of 2009. CAPQuaM is a collaboration of national and regional stakeholders working to improve and strengthen children's health care quality measures. Bev Johnson, IPFCC President & CEO, and Marie Abraham, IPFCC's Vice President for Programming and Publications, both participated.

Bev Johnson, IPFCC President & CEO, serves as a member of the Board of Directors for the Patient-Centered Primary Care Collaborative (PCPCC)

Learn more about IPFCC’s Past Initiatives.