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Sustaining partnerships in research within an organization is dependent on measuring the process and experience of all the partners and documenting the impact of PFAs. The following ideas can be used to assess the partnership and identify areas for improvement in future collaborations.
Assess the process by documenting the following:
- Number of PFAs that participated in the research project.
- Number of meetings held with researchers and PFAs.
- Number and description of ideas generated by PFAs.
- Number and description of PFA-generated ideas that resulted in changes to the research topic, questions, plan, implementation, or dissemination activities.
- Degree to which the research process was positively affected by the partnership.
- Degree to which the timing of a research project was affected.
- Degree to which the cost of a research project was affected.
Patient and Family Advisors can be asked the following questions about their experience:
- I felt prepared to partner with the researchers.
- I felt supported by the researchers to speak up.
- The researchers listened to and took my perspective and ideas seriously.
- I felt that my contributions were valued by the researchers.
- The researchers were willing to make changes based on my input.
- I believe the research project was improved because of my participation.
- I felt that I participated in this project to the best of my ability.
- I would partner with researchers in the future.
Researchers can be asked the following questions about their experience:
- I felt prepared to partner with PFAs/PFAC.
- I was able to elicit the perspective and input of the PFAs/PFAC.
- I made changes based on the information I received from PFAs/PFAC.
- The project was improved because of the partnership.
- I would partner with PFAs and PFACs in the future.