June 2014
Issue 71
Email IPFCC at institute@ipfcc.org   www.twitter.com/IPFCC   www.facebook.com/IPFCC   https://www.linkedin.com/company/institute-for-patient--and-family-centered-care   www.instagram.com/IPFCC

IPFCC Launches Better Together Campaign; Challenges Hospitals to Eliminate Restrictive Visiting Policies

Better Together logo


The Institute for Patient- and Family-Centered Care (IPFCC) is launching the Better Together campaign, calling on all hospitals to welcome families 24 hours a day. IPFCC asks hospitals to transform their approach to care, so that patients' families and loved ones are included in care and decision-making according to patient preferences. As the campaign kicks off, IPFCC recognizes 12 hospitals that exemplify success when changing the concept of families as "visitors."

"These 12 exemplar hospitals understand how important it is to partner with patients' families instead of treating them as outsiders who are interfering in their loved one's care," said Beverley Johnson, IPFCC President and CEO. "Hospitals that have changed their policies are proving that giving patients the access they want to their loved ones actually helps them get better."

"All too often, families and loved ones are prevented from being with patients, leaving them alone and isolated, often when they need support the most," said Johnson. "This is based on outdated beliefs that frequent contact with loved ones interferes with care, exhausts the patient, or spreads infection; that just isn't true," she added.

In addition to changing their visiting policies, these 12 hospitals are committed to working directly with family members as care partners. Johnson says that nurses report greater job satisfaction because they are partnering with patients and families in care, instead of enforcing policies that many don't agree with.

A toolkit, available on the IPFCC Better Together website, includes sample policies, guides, videos, and case studies of how hospitals successfully changed their policies to welcome families.


 
The 6th International Conference on Patient- and Family-Centered Care
Features Better Together Special Events


Vancouver Banner

In conjunction with the launch of IPFCC’s Better Together campaign (see related article above), the International Conference, to be held August 6-8, 2014, will showcase Better Together activities.

A Special Luncheon: Better Together – Changing the Concept of Families as Visitors on Thursday, Aug 7, will feature speaker Suzanne Y. Mattei, the primary author of the report, Sick, Scared and Separated from Loved Ones: A Report on NYS Hospital Visiting Policies and How Patient-Centered Approaches Can Promote Wellness and Safer Healthcare. This is a joint release by New Yorkers for Patient & Family Empowerment, Inc., and the New York Public Interest Research Group (NYPIRG).

Suzanne MatteiSuzanne Y. Mattei, Esq., is an attorney with over 30 years of experience in public interest law and policy. Ms. Mattei, a graduate of Yale Law School, conducted research and advocacy that helped obtain passage of the New York City Childhood Lead Poisoning Prevention Act, a national model for prevention of permanent brain damage in children.

The luncheon will also highlight the experiences of exemplar hospitals that have changed their policies and practices. New web resources are available as part of IPFCC’s campaign, with an eye towards changing restrictive policies that label families as visitors, to policy and practice that welcomes family presence and participation. Luncheon reservations are required—space is limited.

In addition, there will be a Networking Breakfast on Friday, Aug 8. Join others for breakfast to discuss how you will move forward with changing the visiting policy in your organization. (No reservations required).

The Exhibit Hall will include posters featuring the Better Together: Partnering with Families campaign. Visit these posters and learn more about IPFCC’s campaign.
Posters will illustrate how exemplary hospitals are changing the concept of families as visitors. Review successful strategies employed by exemplar hospitals that have already made this important change.

Hospitals presenting posters include:

  • Anne Arundel Medical Center, Annapolis, MD
  • Essentia Health, Duluth, MN
  • Methodist LeBonheur, Memphis, TN
  • South Health Campus, Calgary, Alberta
  • Spectrum Health, Grand Rapids, MI
  • University of Michigan Health System, Ann Arbor, MI
  • University of Washington Medical Center, Seattle, WA
  • Vanderbilt University Medical Center, Nashville, TN

Register Now for The 6th International Conference on Patient- and Family-Centered Care.

Read Brochure.


With leadership support from:

Providence Health Care Logo

And support from our Program Partner:

Canadian Foundation BiLing Logo




Come to Vancouver Early and Stay Late ~ Enjoy Butchart Gardens

The Butchart Gardens, located near Victoria o
Butchart Gardensn beautiful Vancouver Island, is a must see! Don’t miss this National Historic Site of Canada. Based on a 2014 poll by USA Today and 10Best.com readers for best public garden, Butchart Gardensthe only Canadian garden on the listwas chosen as the third best garden in North America.



Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Care


MAcy foundationIn its just released Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Care, the Josiah Macy Jr. Foundation* offers recommendations from its conference on Partnering with Patients, Families, and Communities to Link Interprofessional Practice and Education. See related article in IPFCC's April Pinwheel Pages e-newsletter.

A group of 40 invited leaders who represented health care organizations, health professions schools, and consumers,  including IPFCC’s President and CEO, Bev Johnson, participated at this meeting. The participants recommended that patients and their families “must be welcomed as equal partners” at every level and in every health-related endeavor from designing curricula to setting research priorities to hiring faculty.

The resulting report provides a roadmap for “moving beyond the popular concept of patient engagement—the realm of personal care decisions, consumer focus groups, satisfaction surveys, and community meetings—to more meaningful partnership with patients, families, and communities in the planning and implementation of health care. This includes patients working collaboratively with health care educators and providers to set agendas, determine policies and priorities, and help guide and implement necessary reforms in both clinical practice and health professions training and education. In such partnerships, the patient perspective should be recognized as important as professional expertise." To learn more, read the entire press release or download the Report.

*The Josiah Macy Jr. Foundation strives to foster innovation in health professional education and to align the education of health professionals with contemporary health needs and a changing health care system.


First Issue of Journal of Patient Experience Features Article in Support of Family Presence in the Emergency Room

JPExCoverFeatured prominently in the first issue of the Journal of Patient Experience—a peer reviewed journal dedicated to improving and advancing the patient experience—is yet another story that recounts one family’s experience as a result of the policy and practice of not allowing family presence with loved ones during procedures and resuscitation.

Pediatrician Dr. Lacey Colligan recounts her traumatic experience of being kept apart from her 21-year-old daughter, who was dying. Colligan argues that hospitals should make it a standard of care to give families the choice to be with their loved ones, no matter how upsetting the scene might be.

Read this story, and others in this new journal of the  nonprofit Association for Patient Experience.

Join IPFCC’s Better Together campaign challenging hospitals to eliminate restrictive visiting policies.











In This Issue
 
  • IPFCC Launches Better Together Campaign; Challenges Hospitals to Eliminate Restrictive Visiting Policies

  • The 6th International Conference on Patient- and Family-Centered Care Features Better Together Special Events
  • Come to Vancouver Early and Stay Late ~ Enjoy Butchart Gardens
  • Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Care

  • First Issue of Journal of Patient Experience Features Article in Support of Family Presence in the Emergency Room
  • Children’s Specialized Hospital’s Patient- and Family-Centered Care Journey

  • Traveling into Canada for the Conference? Read this Important Travel Information!
  • Connect with IPFCC on Social Media

  • Register Now ~ IPFCC's Fall Intensive Training Seminar in Cambridge, Massachusetts


    Children’s Specialized Hospital’s Patient- and Family-Centered Care Journey

    CSH Blended MTN and NB

    Children’s Specialized Hospital (CSH)
    —with 12 locations in New Jersey—is the largest pediatric rehabilitation health system in the United States. It recently received an Excellence in Quality Improvement Award for its innovative Patient- and Family-Centered Care Program from the New Jersey Hospital Association. Here’s how the hospital achieved this success:

    In 2004, CSH embarked on its patient- and family-centered care journey, sending a team to IPFCC’s intensive training seminar. The team’s goal was to develop an action plan to include families as meaningful partners in all aspects of the organization. This was essential to fulfill the hospital’s mission “to be the preeminent provider of specialized health care services for infants, children, and young adults.”

    The information and training received at the seminar, combined with surveys of current families and research on best practices in hospitals that were leaders in family-centered care, resulted in the creation of five Family-Centered Care priorities in 2005:

    • Hire families;
    • Involve families in hospital orientation;
    • Involve families in reviewing all policies and procedures;
    • Include families on key hospital committees; and
    • Develop a Family Advisory Council.

    In one year, the hospital met these goals and established the first dedicated Patient- and Family- Centered Care (PFCC) team, established the Family Advisory Council, and the Family Faculty staff positions. This PFCC team provides the focus and unique family perspective required to build awareness, educate, engage, and fully integrate Patient- and Family-Centered Care principles into the health care policies and practices across the hospital.

    Read more….

    Traveling into Canada for the Conference? Read this Important Travel Information! 
     

    The Canadian Border Services Agency (CBSA) has officially recognized IPFCC’s 6th International Conference on Patient- and Family-Centered Care. As a result of this formal recognition, non-Canadians do not need a Canadian work permit to participate in the conference.

    All non-Canadian attendees, exhibitors, sponsors, and presenters, remember to print the agency’s Letter of Recognition and present it to the Border Services Officer when you enter Canada.

    You will need a valid passport to enter Canada. For information about passports, visas, and other travel documents visit the conference visa information page.


    Connect with IPFCC on Social Media


    Become the first to know about IPFCC's latest news and events!

    What better way to stay connected with IPFCC than through social media? Please consider following us on these social media platforms to stay up-to-date and connected. Stay abreast of patient- and family-centered care news, timely events, and inspirational content:

     
    Register Now ~ IPFCC's Fall Intensive Training Seminar in Cambridge, Massachusetts


    BWHlogo

    Consider attending the next Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar, November 3-6, 2014, in Cambridge, MA. The Seminar is sponsored in partnership with Brigham and Women’s Hospital, and will be held at the Hyatt Regency Cambridge.

    Registration now open. Early Bird Registration will be available through September 4, 2014.


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    About Us
    Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.
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      REGISTER NOW!

    THE 6TH INTERNATIONAL CONFERENCE ON
    PATIENT- AND FAMILY-CENTERED CARE


    PARTNERSHIPS FOR QUALITY & SAFETY

    August 6-8, 2014
    Vancouver, British Columbia, Canada

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    Register Now
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