October 2018
Issue 116

IPFCC at Work
Partnerships in Ambulatory Care Settings: New Web Resources
IPFCC is proud to announce an updated section of its website, Partnerships in Ambulatory Care Settings. Examples of successful programs and other tools are provided to help clinicians in ambulatory and primary care settings be more effective as partners with patients and families.
Review the full website section
JH Bayview

Contra Costa Regional Medical Center
Screen Shot 2018-10-12 at 4.31.34 PM

Photo Credit: Contra Costa Health
IPFCC’s President and CEO, Bev Johnson, together with Board members Liz Crocker (pictured) and Bill Schwab and faculty member Cherie Craft, provided consultation and training to Contra Costa Health Services to advance the practice of patient- and family-centered care in the County’s system of care, including behavioral health services, detention health, housing and homeless services, emergency services, and other health services. On September 27th, IPFCC team members were featured speakers at “CoCo 2020,” a daylong event attended by more than 200 staff and clinicians, various community stakeholders, and patients and families. In addition to the IPFCC team, the program included a panel of peers with lived experience from the Office for Consumer Empowerment, interactive activities, and presentation of Partnering for Health Awards.

Northwell System Joins Better Together Learning Community
Better Together logoFourteen hospitals from Northwell Health will join IPFCC’s Better Together Learning Community in NYS – a project to help hospitals change or enhance policies and practices to support family presence and participation. 
Learn more about Better Together
Upcoming Webinars
PFCC in the Field 
IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support Alignment Network (SAN).
This section brings stories from the field, from this initiative and others, right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.
Yale New Haven Health: Department of Radiology and Biomedical Imaging
YNHH’s Department of Radiology and Biomedical Imaging provides over 700,000 diagnostic exams each year at 16 outpatient locations in Connecticut. In 2016, faced with underperforming Press Ganey scores, the Department actively involved its Patient Experience Forum in defining goals and strategies to improve patient satisfaction. Following implementation of the changes, scores showed significant improvement in all areas.
Read more
YNHH logo

Resources and Opportunities
Scholarships for Upcoming PCPCC Conference
PCPCC’s 2018 Annual Conference, “Key Policies to Elevate Primary Care,” will be held on November 8, 2018 at the Capital Hilton in Washington, DC. Scholarships are being offered to patient and family advocates. Consider coming as a team: a clinician, clinic manager, and patient and family advocate.
Find more information about the Conference and the application process for scholarships

New Toolkit for Orienting Patient Advisors to Research
HIPxChange Logo_1Partnerships with patients and families in research have become increasingly prioritized in recent years. However, researchers often lack the tools to effectively engage patient/family advisors in the research process.

To address this need, stakeholder engagement experts from the Wisconsin Network for Research Support (WINRS) at the University of Wisconsin – Madison, through its Health Innovation Program, created a new toolkit to help prepare advisors to provide useful advice and work effectively with research teams. The toolkit, Patient Advisor Toolkit 1: Orientation for Patient Advisory Committees (PAT-1), contains a set of modifiable resources providing step-by-step guidance.
Access the Toolkit

Patient and Family Perspectives Requested
Project ACHIEVE, a five-year nationwide best practices study on improving care transitions, is now complete! The Health Research & Educational Trust would like to know more about patients’ and family caregivers’ preferences for receiving results from this project.

HRET is asking for patients and family caregivers to take a few minutes to complete this brief questionnaire.

OpenNotes, Patient Narratives, and Their Transformative Effects on Patient-Centered Care
In an article in the October 4, 2018 issue of NEJM Catalyst titled, “OpenNotes, Patient Narratives, and Their Transformative Effects on Patient-Centered Care,” Tobias Esch, MD discusses patient engagement and advocates for collaboration where patients are actively invited to articulate their own needs – and the health care system meets those needs.
Read the article

pfcc connect Exciting Community Updates!
Virtual Event Recaps
IPFCC held two PFCC.Connect virtual tours over the past month to help members and potential members get acquainted with the site and learn about its features. In addition, we also hosted a virtual discussion on peer support at the end of last month, exclusive to our PFCC.Connect members. This discussion was very informal and gave people a place to share their experience and advice. For those who may have missed it and are interested, you can watch the recording of the tour here and the discussion here. Be sure to join PFCC.Connect today so you don't miss out on other virtual discussions coming in the future!
New Community: Canadian Patient Engagement Network
EN_FR_Horizontal_Color Logo
Moderated by the Canadian Patient Safety Institute, this new community in PFCC.Connect is open to Canadians passionate about patient engagement or patient-centered care with a focus on patient safety. We are building individual and system capacity, reducing duplication of efforts, and increasing collaboration. Safe health care for all Canadians requires everyone's involvement. Join this group by becoming a member of PFCC.Connect. Then go to "All Communities" under the "Communities" tab and hit "Join" next to "Canadian Patient Engagement Network."

Fall Recruitment Campaign Winners
Thank you to everyone who spread the word about PFCC.Connect over the past month! We are excited to announce our raffle winners for our fall recruitment campaign:
  • Cindy Mammoser, winner of a copy of Words of Advice 
  • Charlotte S., winner of a copy of Privileged Presence
Join PFCC.Connect Today!
Institute for Patient- and Family-Centered Care
6917 Arlington Road, Suite 309 • Bethesda, MD 20814