November/December 2018
Issue 117

IPFCC at Work
Partnering with Patients and Families to Address the Opioid Epidemic
IPFCC is pleased to announce the release of a new White Paper, Partnering with Patients and Families to Strengthen Approaches to the Opioid Epidemicauthored by IPFCC and PFCCpartners. Beaumont Health provided leadership support for the meeting and the White Paper.

Prior to the 8th International Conference on Patient- and Family-Centered Care in June 2018, IPFCC and PFCCpartners hosted a Patient and Family Advisor (PFA) Summit on the Opioid Epidemic. The White Paper builds upon the presentations and discussions from the Summit and makes recommendations to further strengthen collaboration with patients and families.

Bev Johnson Inducted into the 2018 Class of FAAN

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IPFCC’s President and CEO, Bev Johnson, was recently inducted as a Fellow of the American Academy of Nursing. The Academy’s approximately 2,400 fellows are nursing leaders in education, management, practice and research. The inductees were honored at the Annual Policy Conference of the American Academy of Nursing held in Washington, DC in November.
Upcoming Webinars
PFCC in the Field 
IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support Alignment Network (SAN).
This section brings stories from the field, from this initiative and others, right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.
UCI Health SeniorHealth Center
Annually, the SeniorHealth Center provides comprehensive care to 3,500+ patients and has over 10,000 visits. Its PFAC, created in 2017, has helped the Center explore a number of important issues including pharmacy refills and utilization of the patient portal/Call Center.
Read more
Resources and Opportunities
American College of Physicians (ACP): New Principles for Patient and Family Partnership in Care
In a new position paper published on November 27, 2018 in Annals of Internal Medicine, ACP released a set of principles to solidify the role of patients and families in care plans. ACP cites increasing evidence that patient and family partnership in care can improve health outcomes, practice efficiency, and patient and professional satisfaction.
Read the position paper

The Art of Listening to Patients
Perfect Serve, doctor listening to patient
David Sandman, President and CEO of the New York State Health Foundation, in a blog dated 11/15/18, outlines three reasons why it is important that health care providers truly listen to patients and their families: (1) Health happens outside of the exam room; (2) Patients are more than an illness; and (3) Patients have valuable insights into the health care experience. Sandman specifically mentions the importance of PFACs and cites examples from NYSHealth's-funded PFAC Study.
Read the blog

Engaging Patients in Health Research
The Canadian Medical Association Journal (CMAJ) published a special issue titled, Engaging Patients in Health Research: The Ontario Experience. Eighteen articles describe research projects in which researchers are partnering with patients, families, and communities. Topics include mental health, Indigenous health, pediatrics, geriatrics, and complex chronic conditions.
Access the supplement

What If Family-Centered Care Were Extended to Medical and Surgical Procedures?
In an article in the October 13, 2018 issue of NEJM Catalyst, M. Justin Coffey, MD, advocates for family member presence in medical and surgical procedures and shares three innovative examples: family-centered cesarean birth, family-centered electroconvulsive therapy (ECT), and family presence during cardiopulmonary resuscitation (CPR).
Read the article
nejm catalyst

What Does It Take to Increase Patient Engagement in Primary Care Settings?
In the spring of 2017, Massachusetts Health Quality Partners (MHQP) and CRICO (the insurance program owned by the Harvard medical community) surveyed 412 Massachusetts primary care practices to better understand what they are doing to engage patients and families. Overall, the findings suggest that patient engagement programs are seen as desirable but are not well utilized.
Read the article

pfcc connect Free Virtual Discussions
Over the next few months, IPFCC will be hosting free virtual discussions exclusively for our PFCC.Connect members. Each discussion focuses on a specific topic and are designed to be informal spaces for everyone to share their ideas and insights with each other. Our next virtual discussion is this Thursday, December 13th at 12 PM ET on Partnerships to Address the Opioid Epidemic. If you are not one already, become a member today to get more details, watch recordings of past discussions, and stay updated on discussions coming soon!
Join PFCC.Connect Today!
Happy Holidays to you and your loved ones,
from all of us here at IPFCC!
Institute for Patient- and Family-Centered Care
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