February 2020
Issue 129

IPFCC Events
Start Planning for Nashville!
IPFCC is finalizing an exciting program for the 9th International Conference on Patient- and Family-Centered Care in Nashville, TN on August 18-20, 2020. Check out the registration site for more information, including the conference schedule, which includes plenty of time to explore Nashville. Conference attendees receive a discounted rate of $239/night at the hotel which applies 3 days before and after the conference. Don’t delay…make your travel arrangements, reserve your room, and get ready to become inspired!

Better Together Featured in Journal Article
The January/February 2020 issue of the Journal of Clinical Outcomes Management features an article on IPFCC’s Better Together initiative. A sequel to an article published in 2015 about Better Together, the current article outlines what has happened with the project, including the Learning Community for NYS Hospitals and the experience of Northwell Health system.

Read the 
Better Together Banner 

Partnering with Patients and Families in Pain Management
In late January, IPFCC President & CEO, Bev Johnson presented on Patient- and Family-Centered Care: Strategies for and Benefits of Partnering with Patients and Families to members of the Optimal Prescribing in Pain Management Collaborative. The Collaborative is supported by Cardinal Health Foundation, the Alliance for Integrated Medication Management, the National Association of State Pharmacy Associations, and the American Association of Colleges of Pharmacy. Consider reaching out to pharmacy organizations in your own area as you build interdisciplinary teams to improve prescribing practices and create safer transitions in care.

Artificial Intelligence and Newborn Intensive Care
 early February, Marie Abraham, IPFCC’s Vice President for Programming and Publications, participated in a working summit, “Artificial Intelligence in the Neonatal ICU: Families, Clinicians and Technologists Designing a Better Future.” This PCORI-funded meeting, led by James Gray, MD from the Children’s Hospital at Dartmouth-Hitchcock, brought together all key stakeholders to learn from each other, identify priority research questions, and build potential collaborations for future research.


PFCC in the Field
This section brings stories from the field right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.

Children's Village: Supporting Children and Their Families
An integrated program in Yakima, WA, Children’s Village provides specialty medical services for over 6,000 children with special health care needs each year. In partnership with Parent to Parent, Children’s Village also offers peer support to meet the unique emotional, social, and recreational needs of families. 

Read more about the program
Review other resources about peer support

Quality Standards Released by Health Quality Ontario
Health Quality Ontario, a part of Ontario Health, recently released new quality standards for 
anxiety disorders and obsessive-compulsive disorder. Developed with patients, caregivers, the public, and healthcare professionals, the standards include other resources, including a patient guide.
Download the standards and resources

Resources and Opportunities
Strengthening Healthcare through Patient and Family Engagement in Quality Improvement and Research
Dr. Steven Joffe, MD, MPH, from the University of Pennsylvania Perelman School of Medicine, is leading a PCORI-funded study 
“Governance of Learning Activities in Learning Healthcare Systems” to  understand best practices in healthcare systems. The new “User’s Guide for Patient and Family Advisors and Their Learning Healthcare Systems” was based on interviews with 99 health system leaders, including patient and family leaders, and 8 focus groups of community members. 

Read the guide

Family Engagement in Systems Assessment (FESAT) Tools
Family Voices, a national, family-led organization serving families of children and youth with special health care needs and disabilities, advocates that families should collaborate at the systems level in creating policies and programs that shape services. With funding from the Lucile Packard Foundation for Children’s Health, Family Voices created the assessment tool and accompanying compendium of strategies and resources to promote collaboration.

Download the Tools

family voices logo 


SIDM to Award 20 Grants in 2020
With funding from the Gordon and Betty Moore Foundation, the Society to Improve Diagnosis in Medicine (SIDM) has established the DxQI Seed Grant Program to promote efforts to identify, develop, and test interventions aimed at improving diagnostic quality and reducing harm from diagnostic error. Twenty grantees will be awarded grants of up to $50,000 to carry out 12-month diagnostic quality and safety improvement projects.

Apply by March 30: https://www.improvediagnosis.org/dxqi/

pfcc connect    Upcoming February Informal Conversation
Are you a member of our free online learning community, PFCC.Connect? We invite you to our next informal conversation, Building Patient and Family Advisors' Capacity for Influence, being held on February 27th at 1 PM ET. If you are not a member, become one and join this conversation, access recordings of previous conversations, connect with others, and view/share helpful resources.

Join PFCC.Connect Today! 
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