June 2020
Issue 133

Black Lives Matter: Building Authentic and Just Partnerships with the Black Community
Recent events have laid bare the impact of systemic racism in our country that began over 400 years ago. The COVID-19 pandemic; the senseless murders of George Floyd, Ahmaud Arbery, Breonna Taylor, and others; and the resulting protests shed light on deep inequities in our laws, structures, and institutions. In the health care arena, we are called upon to examine our system of care, particularly how systemic racism is embedded in structures, policies, and practices leading to undeniable health care disparities and inequities.

Continue reading IPFCC's statement here

IPFCC Events
Conference Plenary Session to Focus on Equity and Inclusion
EarlTori BaylessVictoria Bayless, CEO of Luminis Health, in Annapolis, MD, together with patient advisor and leader, Earl Shellner, will present a plenary session at the 9th International Conference on August 19th. They will discuss efforts to advance the practice of patient- and family-centered care and create a more diverse and inclusive system with a clear commitment to health equity.

The Conference includes 48 breakout sessions and over 60 posters. Stay tuned for additional details about the Conference program on our website and in upcoming issues of the newsletter. In addition to a rich program, remember that we’re also bringing the fun, uniqueness, and music of Nashville to you in a virtual format!

Join Us and Register Now!

PFCC.Connect LogoOn June 30th at noon ET, the topic for the PFCC.Connect Informal conversation is Building and Expanding Authentic Partnerships for Transforming Healthcare: Addressing Health Disparities Because Black Lives Matter. This conversation will focus on how organizations are building meaningful partnerships with their Black communities, addressing their concerns, and issues and becoming trusted allies in the fight for equality. Join the conversation to share your lessons learned and ideas for positive action to address health care disparities now and in the future. Register here

If you missed the conversations below, recordings and materials are available at the PFCC.Connect Library. Become a member today!

On June 9th, PFCC hosted an informal conversation on COVID 19 - Connecting to the Community as Healthcare Services Begin to Resume. The discussion focused on ways hospitals and other settings were resuming services, and what concerns needed to be addressed in order for the community to trust this was a safe option. 

On May 26th, PFCC.Connect hosted an informal conversation on PFCC and Pediatric Partnerships during COVID-19. The group brainstormed and identified issues, concerns, and challenges that have emerged during this unprecedented time.

PFCC and Pediatric Partnerships During COVID-19
Packard logoOn June 25, IPFCC staff members and parent advisors from Children’s National Hospital in Washington, DC, presented a webinar titled, PFCC and Pediatric Partnerships During Covid-19: Focusing on the Most Vulnerable Children. It was part of a series of free webinars and online conversations offered for children's hospitals and other pediatric settings. Funded by a grant from the Lucile Packard Foundation for Children's Health, these special events will continue monthly through October 2020. Upcoming events include a PFCC.Connect Pediatric Informal Conversation on July 28th and another webinar on August 13th.  

For free access to a recording of the webinar email NReed@ipfcc.org.

PFCC in the Field
Hospitals Amend Family Presence Policies
Beaumont_CMYKIn light of the COVID-19 pandemic, many hospitals initiated new restrictions on family presence to protect the safety of patients, families, and staff. As a result, patients were
Hotel-Dieu Grace Logoforced to be alone in hospitals and nursing homes, without the support of family or care partners. Fortunately, institutions are beginning to “re-visit” earlier decisions and some are easing restrictions on family presence. Two health systems – Beaumont Health in Michigan and Hotel-Dieu Grace Healthcare in Canada – are examples. Each health system recently shared its revised guidelines through IPFCC’s PFCC.Connect.

To access the information click here.

Health Care Hero
TiffanyIPFCC congratulates Tiffany Morelli, RN, a faculty member for IPFCC’s 2019 seminar in Detroit, on being named one of Crain 2020 Healthcare Heroes. Tiffany received this honor in recognition of her work as a Clinical Nurse and Substance Use Community Program Coordinator at Beaumont Hospital Troy.
Resources and Opportunities
Survey on COVID-19 Pandemic's Impact on PFCC
graphs for surveyIn the wake of coronavirus, administrative and clinical leaders are having to make difficult decisions and policy changes aimed at preventing the virus’ transmission without a clear understanding of how these changes impact patient-and family-centered care, quality and safety.

The purpose of this survey is to gather information about changes to policies and practice during the first wave of the COVID-19 pandemic and how hospitals engaged patient and family advisors in planning and implementing changes. Data (de-identified) from the survey are currently reported on PTBi so that the results can be used to improve patient care as we all continue our work to lessen the impact of COVID-19 on patients, families, and staff and clinicians across all disciplines.

Survey is closing 7/31/2020. Please take a few minutes to have your voice heard. Pass the link on to others: www.ipfcc.org/bestpractices/covid-19/survey-tracking.html

IPFCC's COVID-19 Resources Featured in Pediatric Nursing Journal
In the “Family Matters” section of the May/June issue of Pediatric Nursing journal, IPFCC resources were featured in an article titled, “Resources and Support to Maintain the ‘Essence’ of Patient- and Family-Centered Care during COVID-19.”

Read the article

Restrictions on Family Presence and End-of-Life (EOL) 
In the 6/18/20 issue of the Hastings Center’s Bioethics Forum, palliative care physicians at Northwestern Memorial Hospital in Chicago question whether the restrictions might impact EOL decision-making in ways that are “ethically problematic.” Their essay highlights the fact that these restrictions have potential risks and, therefore, require ongoing re-evaluation and flexibility.

Read the essay

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