Issue 149 | December 2021
IPFCC Events
Free Webinar: PFACs in U.S. Children's Hospitals: Findings from a National Study
December 14, 2021 at 12 pm ET
Join us TOMORROW on December 14th from 12-1pm ET as IPFCC shares results from our recently-conducted national study of PFACs in children's hospitals. Presenters will share key learnings about the prevalence and characteristics of PFACs in children’s hospitals, discuss how PFACs adapted during the COVID-19 pandemic, and share a resource document that provides guidance to the field about strengthening partnerships with patients and families in children’s hospitals.   

Check out our updated online bookstore today!

Resources and Opportunities
Building Trust: An ABIM Foundation Initiative

Looking for free resources on building trust within your organization? Check out Building Trust, an ABIM Foundation initiative that “aims to elevate the importance of trust as an essential organizing principle to guide operations and improvements in health care.” Access free resources here including survey results on public and physician perceptions of trust in the U.S. health system, as well as case studies from Parkland Hospital & Health System and Wayne State University School of Medicine.
Family Voices United to End Racism Against CYSHCN and Their Families (Fam U) Toolkit
The Family Voices United to End Racism Against CYSHCN and their Families (Fam U) Project Team launched a toolkit website designed to support dismantling racism in healthcare, becoming more culturally competent, and building meaningful engagement with Black CYSHCN and their families. This toolkit is designed to offer a variety of documents, multi-media articles, videos and other relevant resources. Access the toolkit website!
New Framework Developed by Researches to Help Understand and Prevent Misdiagnosis
A new framework “Patient-Reported Diagnostic Breakdowns” was developed by a team led by Sigall Bell, MD, the Director of Patient Safety and Discovery for OpenNotes at the Beth Israel Deaconess Medical Center in Boston. The team worked with data from two large national surveys conducted in 2017 and also included a project advisory group comprised of both patient safety professionals and patients and families. The authors suggest ways organizations can use the framework organized under four themes: Understand, Listen, Ask, and Learn. The framework was also used to develop an online tool called “OurDx” which strives to engage patients and families in the diagnostic process. Read the article here, and learn more about the tool here.
Guided Care: What Patients and Employees Actually Want from an Access Strategy

The Office of Patient Experience at Cleveland Clinic led a multidisciplinary, human-centered design project using observations and in-depth interviews to explore access issues in their health care system. Access the article here.
Pinwheel Sponsors
2022 Pinwheel Sponsorships - Renew or Join Now!

Special thank you to our devoted 2021 Pinwheel Sponsors! With your renewal and support, IPFCC can continue our work in developing and sustaining meaningful partnerships with patients and families within hospitals, ambulatory programs, and other care settings. Current Pinwheel Sponsors will be receiving their 2022 renewal notification email later this month.

Pinwheel Sponsor organizations will gain national and international visibility of your commitment to patient- and family-centered care. To take advantage of the many benefits available to Pinwheel Sponsors, please renew or become a Pinwheel Sponsor by completing our online application. If you have any questions, please contact Sherry Hajec at