Issue 152 | March 2022
IPFCC Events
Upcoming PFCC.Connect Informal Conversation

Lessons Learned for Advancing PFCC During COVID-19
March 29, 2022, Noon ET
COVID-19 has had a tremendous impact on the world since 2020. As horrific as COVID-19 has been, organizations can build on innovations created during the pandemic and advance patient- and family-centered care and substantive partnerships with patients, residents in long-term care, and families. Please join us for this timely conversation to discuss new approaches and lessons learned during the pandemic, and identify several potentially better practices that we should develop and sustain in the future. Bev Johnson, President and CEO, and Ushma Patel, Director for Special Projects & Educational Programs will facilitate the discussion.

With funding from the New York State Health Foundation, the Institute for Patient- and Family-Centered Care developed, tested and has now launched a comprehensive, online resource, Engaging the Expertise of Patients and Families in the Education of a New Generation of Providers. This free resource offers perspectives from experts, practical strategies, and tools to create patient and family faculty programs in academic medical centers. Access and explore the resource.
Resources and Opportunities
I Was Never "Just" a Visitor

Don’t miss this powerful essay on family presence posted on the Hastings Center Bioethics Forum. It was written by Allison J. Applebaum, PhD, (@DocApplebaum), Director of the Caregivers Clinic at Memorial Sloan Kettering Cancer Center and author of a forthcoming book on caregiving. Read the essay.

Still have questions about family presence during COVID-19? Be sure to download and read this IPFCC Resource.
New Family Care Partner Resource from the Beryl Institute

A new resource from the Beryl Institute is now available for download, We Are Not Visitors: Working Together With Family Caregivers and Care Partners. This complimentary guidebook is designed for both family care partners and healthcare providers to use as a reference and implementation manual. You can download the guidebook here.
Upcoming Focus Group Opportunity for the Catalyst for Payment Reform

IPFCC is supporting Catalyst for Payment Reform (CPR) by conducting virtual focus groups to learn how consumers view health care empowerment, including topics like health care access, accountability of the health care system, partnership with consumers, health equity, and the need for a health care system that values and supports care partners. This work is part of a larger project that CPR is conducting with funding from the New York State Health Foundation to develop a consumer empowerment scorecard to track and assess practices that promote patient engagement and transparency in New York State. 

If you currently live in NY, be on the lookout for information from IPFCC and CPR about how to participate in these focus groups. Focus groups will be held virtually and are two hours long. Participants will receive a $175 incentive. If you're interested in receiving information about participating in the focus groups, email Sherry Hajec at
Lessons Learned from the COVID-19 Pandemic

This article, published by JAMA Internal Medicine, discusses nine lessons learned through COVID-19 that could improve hospital care and health care delivery in the future. Read the article here