Issue 153 | April 2022

IPFCC Events

Upcoming PFCC.Connect Informal Conversation Improving Organizational Websites to Support Partnerships with Patients and Families May 26, 2022, Noon ET

Websites are the public “faces” of hospitals and health systems but often they do not communicate messages that are patient- and family-centered nor are they “user-friendly.”   Please join us for this Informal Conversation to share ideas about (1) re-designing websites that communicate the messages you want, (2) involving patients and families in that process, and (3) collaborating effectively with your organization’s Marketing/Communications Department.    Save the date. A registration link will be posted soon!

IPFCC At Work

The latest issue of the Patient Experience Journal (PXJ) features an article with learnings from IPFCC’s national study of children’s hospital patient and family advisory councils (PFACs) about how PFACs adapted during the COVID-19 pandemic and how patient and family advisors (PFAs) were involved in the response. It highlights new approaches for partnering with PFAs as a strategy to increase PFAC diversity, equity, and inclusion. IPFCC’s Pam Dardess, Deborah Dokken, and Bev Johnson authored the article with colleagues from Cincinnati Children’s Hospital Medical Center and students from the University of Cincinnati College of Medicine. Read the article.

In April, University of Cincinnati College of Medicine medical students, Jesse Hsu and Mindy Hoang, presented at the Pediatric Academic Societies’ annual meeting on work completed by IPFCC and Cincinnati Children's Hospital Medical Center to look at diversity, equity, and inclusion efforts in children's hospital PFACs. IPFCC was honored to work with Jesse and Mindy.

Resources and Opportunities

Free Online Training Opportunity for Patient Advisors Apply now to the PATIENTS Professors Academy (PPA)! The PPA is a free, 5-week online program to train patient advisors and content experts to co-develop research and policy. The deadline to apply is May 8th. For more information, visit https://tinyurl.com/48eby9a7.

Patient and Veteran Engagement in Health Research The Journal of General Internal Medicine published open access articles describing the engagement of patients and veterans in research. This supplement is funded jointly by the Patient-Centered Outcomes Research Institute and the Veteran Administration's (VA) Health Services Research and Development (HSR&D). Articles are available here.

Opinion Article — Health Care Is a Team Sport Check out this commentary/opinion article published by Dr. Brian Goldman, an emergency room physician. It advocates for designation of family as partners and discusses the need to remove restrictions on family presence. Read the article here.

Challenges in Caring for Relatives with Dementia in LTC Joseph Gaugler, PhD recently co-authored an article describing the challenges associated with caring for relatives with dementia in long-term care settings. Dr. Gaugler is a member of the National Advisory Committee for IPFCC’s project, Building Capacity for Long-Term Care Stakeholders in COVID-Related PCOR/CER. Read the article here.

2022 Pinwheel Sponsors A special thank you to these Pinwheel Sponsors featured on our website for their ongoing commitment to advancing patient- and family-centered care!  PFCC.Connect Pinwheel Sponsor: Providence Health Care Pinwheel Sponsors

Akron Children's Hospital American College of Radiology Augusta University Health Centre for Addiction and Mental Health Children's Mercy Kansas City Children's Minnesota Children's Specialized Hospital H. Lee Moffitt Cancer Center & Research Institute Hasbro Children's Hospital IWK Health Centre Joe DiMaggio Children's Hospital Luminis Health/Anne Arundel Medical Center MHA Keystone Center Nationwide Children's Hospital Penn State Health Milton S. Hershey Medical Center  St. Louis Children's Hospital Stanford Health Care Thunder Bay Regional Health Sciences Centre University of Iowa Stead Family Children's Hospital University of Miami Health System University of New Mexico Children's Hospital

There is still time to renew or join by completing the online Pinwheel Sponsor Application. If you would like to learn more about IPFCC’s Pinwheel Sponsor Program or if you have any questions, please contact Sherry Hajec at shajec@ipfcc.org.