Issue 154 | May 2022

IPFCC Events

Upcoming PFCC.Connect Informal Conversation

Improving Organizational Websites to Support Partnerships with Patients and Families

May 26, 2022, Noon ET

Websites are the public “faces” of hospitals and health systems but often they do not communicate messages that are patient- and family-centered nor are they “user-friendly.”


Please join us for this Informal Conversation to share ideas about (1) re-designing websites that communicate the messages we want, (2) involving patients and families in that process, and (3) collaborating more effectively with your organization’s Marketing/Communications Department. 

Register here

IPFCC Celebrates 30th Anniversary!

This year marks 30 years since IPFCC was founded to focus on the critical mission to advance the practice of patient- and family-centered care in all settings where individuals and families receive care and support. We are excited to celebrate with you all year long, starting with the 2022 IPFCC Partnership Award. Details on how to submit a nomination can be found below in the Resources and Opportunities section. Stay tuned for additional plans and activities to be announced in the coming months, including a special 30th Anniversary Virtual Celebration Event in the fall! 


Developing a Toolkit to Improve Resident and Family Engagement 

IPFCC's Pam Dardess is co-author of a new article in Research in Nursing and Health describing work to develop a toolkit to improve resident and family engagement in the safety of assisted living. The article describes the research protocol for developing the toolkit. The work is being done by the University of North Carolina at Chapel Hill, with funding from the Agency for Healthcare Research and Quality (AHRQ). Read the article here

IPFCC Board Member Selected for Distinguished Award

Terri Shelton, IPFCC Board member, has been selected as the 2022 ESC Hiram E. Fitzgerald Distinguished Engaged Scholar Award recipient. This award recognizes a scholar and leader whose career achievements in the scholarship of engagement have helped transform the academy in ways that more effectively address societal challenges that lead to an improved quality of life for all. Congratulations to Terri! 

Resources and Opportunities

2022 IPFCC Partnership Award 

Recognizing Patient- and Family-Centered Care at its Best

In 2017, IPFCC initiated its Partnership Award, a program recognizing innovative partnerships among patients, families, and health care professionals. For 30 years, IPFCC has provided leadership to advance the practice of patient- and family-centered care and ensure that partnerships are at the heart of the health care system. The award recognizes teams of health care professionals and patients/families who, through their collaboration, truly are changing health care.

As part of its 30th anniversary celebration, IPFCC is now announcing the nomination process for the 2022 Partnership Award. Issues such as COVID-19 and health disparities have profoundly impacted health care and highlighted the need for partnerships. Special consideration will be given in the selection of the 2022 award recipients to projects in which teams of health care professionals and patients/families have developed innovative programs that address timely and relevant issues, especially the pandemic and diversity/equity/inclusion.    


The 2022 award recipient team and the second place team will be honored at IPFCC's 30th Anniversary Virtual Celebration in the fall. 

Patient Advisory Councils Will Be Key in Reopening the NICU

Don’t miss this article in PatientEngagementHIT which features Annie O’Conner, an inaugural patient advisor for Morgan Stanley Children’s Hospital. Ms. O'Conner emphasizes the importance of collaborating with advisory councils when reopening the NICU.“Every hospital has a different culture, has a different patient population…the hospital should plan for a new world upon this reopening and they should make the plan with their patients and families because they will know best coming from that NICU.” Read the article here

Must Read for Providers and Parents of Children with Medically

Complex Conditions

Shared Struggles: Stories From Parents and Pediatricians Caring for Children With Serious Illnesses presents stories contributed by parents and pediatric subspecialists and are organized within four themes — compassion, trust, communication and hope. The book was co-edited by Ann Schrooten, a parent of a child born with a chronic complex condition, and Barry Markowitz, a pediatrician specializing in critical care medicine. Order the book here.

2022 IPFCC Pinwheel Sponsors

We’re excited to welcome Emory Healthcare Inc as a PFCC.Connect Pinwheel Sponsor and Alliant Health Solutions as a Pinwheel Sponsor. Thank you for your support of IPFCC’s work. You can learn more about all our Pinwheel Sponsors on our website.

There is still time to renew or join by completing the online Pinwheel Sponsor Application. If you would like to learn more about IPFCC’s Pinwheel Sponsor Program or if you have any questions, please contact Sherry Hajec at