Issue 155 | June 2022

IPFCC Events

Upcoming PFCC.Connect Informal Conversation

Awards for Excellence in PFCC Leadership and Practice

July 21, 2022, Noon ET

Extraordinary commitment to PFCC and its core concepts needs to be acknowledged and celebrated. Therefore, a number of hospitals/health systems and other organizations, including IPFCC itself, have created awards to recognize excellence in PFCC leadership and practice. Join us on July 21st from 12 – 1 pm ET to hear about existing awards programs, learn how they were developed, and share information about your organization’s PFCC awards program. 


These informal conversations are participatory in nature, building on the interest, experience, and expertise of those who join the discussion. We do not do a formal presentation but rather let the conversation be guided by what participants want to learn through sharing our collective experiences. Bev Johnson, President and CEO, Deborah Dokken, Coordinator for Patient and Family Partnerships, and Ushma Patel, Director for Special Projects & Educational Programs will facilitate the discussion.

Register today!


Showing Commitment to the PFCC Core Concepts

As part of IPFCC’s 30th Anniversary Celebration, we are excited to partner and support our community in various ways. To highlight the significance of PFCC Core Concepts, we are sharing two new graphics for your organization to use. Download the graphics here. IPFCC would love to hear from you about how you plan to use the graphics on your website or in materials. Please email us at

IPFCC Co-Authors Article with Luminis Health on Family Presence During COVID-19

The latest issue of NEJM Catalyst features an article titled, “Family Presence during Covid-19: Learning from One Hospital’s Journey.” The article outlines Luminis Health Anne Arundel Medical Center’s (LHAAMC) journey to reaffirm family presence during the pandemic. In that journey, LHAAMC integrated patient, family, and community partners in planning and decision-making, utilizing a tool from IPFCC’s resource, “Family Presence during a Pandemic: Guidance for Decision-Making.” IPFCC’s Deborah Dokken and Bev Johnson co-authored the article with Sherry Perkins, President, LHAAMC and Kamila Frederick, Senior Director, Clinical Support Services, LHAAMC.

Resources and Opportunities

Looking for Survey Respondents with Long-COVID Symptoms

Johns Hopkins Medicine is currently researching long COVID and is seeking participants to complete a Long-COVID Healthcare Needs Assessment survey. The survey will help identify the healthcare needs of people affected by long COVID (having symptoms for more than 3 months). Survey results will be used to raise awareness about those needs, and inform discussions on how they can be addressed. Your input will also help identify important topics for future research studies on long COVID. Complete the survey here

New 3Cs Framework from the National Academy of Medicine 

Don’t miss the new 3Cs Framework for Pain and Unhealthy Substance Use from the National Academy of Medicine’s Action Collaborative on Countering the U.S. Opioid Epidemic. This framework was developed to close professional practice gaps in treating pain and unhealthy substance use and serve as a foundation for overall improved care. IPFCC President and CEO, Bev Johnson serves on the Collaborative. Read and download the framework here

Upcoming Virtual Course From the National Resource Center for Patient/Family-Centered Medical Home

The National Resource Center for Patient/Family-Centered Medical Home is hosting a FREE live virtual education course on July 12th from 9-11 am CT that examines factors impacting equitable health care for Black children and youth with special health care needs (CYSHCN). This 2-hour course covers the following topics:

  • Historical Trauma of Racism and Ableism in Pediatric Medicine
  • Increasing Equitable Care for Black CYSHCN Through Medical Home
  • Intentionally Engage Black Fathers in their Children’s Care
  • Systems of Care for Black CYSHCN

A 15-minute Q&A session will take place at the completion of the course. This activity has been approved for AMA PRA Category 1 Credit™. Visit this link to register and learn more.

2022 IPFCC Partnership Award 

Recognizing Patient- and Family-Centered Care at its Best

In 2017, IPFCC initiated its Partnership Award, a program recognizing innovative partnerships among patients, families, and health care professionals. The award recognizes teams of health care professionals and patients/families who, through their collaboration, truly are changing health care.

As part of its 30th anniversary celebration, IPFCC is now announcing the nomination process for the 2022 Partnership Award. Special consideration will be given in the selection of the 2022 award recipients to projects in which teams of health care professionals and patients/families have developed innovative programs that address timely and relevant issues, especially the pandemic and diversity/equity/inclusion.    


The 2022 award recipient team and the second place team will be honored at IPFCC's 30th Anniversary Virtual Celebration in the fall. 

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