Issue 156 | July/August 2022

IPFCC Events

Upcoming PFCC.Connect Informal Conversation

Planning and Facilitating Effective Meetings: Creating Inclusive, Trustworthy Spaces

September 29, 2022, Noon ET 


Building Capacity for Diversity, Equity, and Inclusion in Children's Hospital Patient and Family Advisory Councils (PFACs)

IPFCC has received a grant from the Lucile Packard Foundation for Children’s Health (LPFCH) for an 18-month project focused on strengthening the representativeness of PFAs and the involvement of PFACs in diversity, equity, and inclusion (DEI) initiatives within children’s hospitals. Working in partnership with Cincinnati Children's Hospital Medical Center, the project will identify key learnings and promising practices for the field.


The new project builds on learnings from IPFCC’s national study of children’s hospital patient and family advisory councils (PFACs), also funded by LPFCH, that looked at the prevalence, structure, and functioning of PFACs as well as the impact of the COVID-19 pandemic on PFACs and PFAC involvement in DEI. 

Celebrating Our 30th Anniversary With An IPFCC Bookstore Sale!

Visit our IPFCC Bookstore and take advantage of our special 30th Anniversary 30% off Sale. IPFCC offers a wide selection of resources including: Words of Advice: A Guide for Patient, Resident, and Family Advisors and Essential Allies: Patient, Resident, And Family Advisors: A Guide For Staff Liaison.

At checkout please use discount code IPFCC30 to receive a 30% discount on your purchases (excludes Privileged Presence) throughout 2022. For our current Pinwheel Sponsors, look out for an email from Sherry Hajec with a special 50% discount code.

Resources and Opportunities

Words Matter — Six Principles of Inclusive Communication

Don’t miss this important article in the Harvard Business Review, written by Dr. Njem Chukwumerije, a national leader at the Permanente Federation. Dr. Chukwumerije describes six principles of inclusive communication that clinicians should consider when communicating with patients. Read the article here

Health Affairs Forefront: Article on Person-Centered Care

In this commentary in Health Affairs Forefront, the authors describe person-centered care, and three strategies to advance PFCC: measure, lead with equity, and focus on primary care. Read more here

Engaging Pediatric Subspecialists in Pursuit of Health Equity—

Breaking Out of the Silo

In this JAMA article, the authors propose recommendations for mitigating health equity across pediatric subspecialty care to help close the gap among vulnerable pediatric populations, especially those with chronic conditions. Read the article here

Caregiver Involvement in Care Transitions Reduces Readmissions

A meta-analysis by Levoy and colleagues, published in Medical Care, shows the benefits of engaging care partners, finding that caregiver engagement in care transitions can lead to better outcomes. Read the article here.

*Deadline Extended* 2022 IPFCC Partnership Award 

In 2017, IPFCC initiated its Partnership Award, a program recognizing innovative partnerships among patients, families, and health care professionals. The award recognizes teams of health care professionals and patients/families who, through their collaboration, truly are changing health care.

IPFCC has extended the deadline for applying for the 2022 Partnership Award until August 15th. Special consideration will be given in the selection of the 2022 award recipients to projects in which teams of health care professionals and patients/families have developed innovative programs that address timely and relevant issues, especially the pandemic and diversity/equity/inclusion.    

The 2022 award recipient team and the second place team will be honored at IPFCC's 30th Anniversary Virtual Celebration in the fall. 

Join Our Team!

IPFCC is hiring! As the Registration and Database Manager, you will be responsible for providing database, administrative, and communication support for IPFCC. This is a fully remote, part-time, hourly paid position with flexible weekday scheduling. To learn more and apply, visit: