Issue 157 | September 2022

IPFCC Events

Upcoming PFCC.Connect Informal Conversation

Planning and Facilitating Effective Meetings: Creating Inclusive, Trustworthy Spaces

Planning and facilitating meetings that create inclusive, trustworthy spaces – whether virtual or in-person – is an important part of developing a respectful and supportive organizational culture. Join us on September 29th from 12 – 1 pm ET to discuss how to foster effective meetings where everyone has a voice, feels empowered, and has a sense of belonging.

These informal conversations are participatory in nature, building on the interest, experience, and expertise of those who join the discussion. We do not do a formal presentation but rather let the conversation be guided by what participants want to learn through sharing our collective experiences. Pam Dardess, Vice President for Strategic Operations, and Ushma Patel, Director for Special Projects & Educational Programs will facilitate the discussion.

Register for the discussion here.

Save the Date: IPFCC’s 30th Anniversary Celebration

Transforming Health Care Through Partnerships: A Vision for the Future of PFCC

IPFCC’s 30th Anniversary Celebration will be held on Tuesday, November 15th 12:00 - 1:30 pm ET. More details to come!


IPFCC Vice President to Present at PCORI Annual Meeting

Marie Abraham will be co-presenting with Cherie Craft, Executive Director from Smart from the Start, at the 2022 PCORI Annual Meeting during the “Results and Lessons from PCORI's COVID-19 Portfolio” session on October 26th. Presenters will highlight findings from their PCORI-funded studies and projects, focused on underserved urban communities, healthcare workers, and outpatient care. The free event, held on October 26-27, will highlight results from PCORI-funded studies and explore how to advance patient-centered outcomes research and comparative clinical effectiveness research. Sessions will cover important issues, including health equity and disparities, emerging healthcare innovations, and COVID-19-related research. Register for free here.

Alberta Health Services Celebrates PFCC Week! 

Bev Johnson, IPFCC President and CEO, will present a webinar, Moving PFCC Forward: Opportunities for Partnership to Promote Healing and Transformation, on October 3rd as part of the launch of Alberta Health Services PFCC Week for the province. Bev will be presenting with Erin Day, family advisor with the Alberta Health Services PFAC and an occupational therapist with Community Services. Visit here for more information.


Resources and Opportunities

Family Connections with Pediatrics: Blog by Cara Coleman

Cara Coleman, former IPFCC staff member, started a blog for the American Academy of Pediatrics called Family Connections with Pediatrics. Check out her recent blog posts on addressing food insecurities and hospital safety

The Power of Listening to Patient Voices for Health Care

Systems Change

The Community Research for Health Equity program at AcademyHealth, in collaboration with Public Agenda, released three new videos and related resources capturing the health care experiences, priorities, and concerns of patients across the country and the ways the system can work better for them. The videos draw on quotes from focus group participants in four U.S. cities to highlight opportunities for improving the patient-centeredness of care. Watch the videos here.

Patients Lift Their Voices to Advance Maternal Health

The latest issue of Health Affairs includes an article titled "Patients Lift Their Voices to Advance Maternal Health" that describes a maternity care program in St. Louis designed by and for Black women. EleVATE offers group-based prenatal care with a goal of reducing racial disparities in preterm birth and pregnancy complications. The authors point to having patients and community partners in leadership roles as a critical part of the program's success. Read more here.

Call for Papers for ICIC23 is Now Open!

The 23rd International Conference on Integrated Care (ICIC23) in partnership with the Flanders Agency for Health and Care and Visit Flanders will take place at Flanders Meeting & Convention Center Antwerp, Belgium from May 22-24, 2023. It will be a hybrid conference, so virtual participation is available.

The conference theme is ‘Care in action: How to work together, a participatory approach.' ICIC23 is co-designed with patients and caregivers and achieves Patients Included designation. Special consideration is given to papers that demonstrate active people involvement and engagement in either or all of design, implementation, and evaluation.


Learn more and consider submitting an abstract. 

In Loving Memory

We are very sad to report the loss of several pioneers and champions in the PFCC field. They all made invaluable contributions to our understanding, practice, and advancement of patient- and family-centered care and we will miss them greatly.

  • Dr. Heidelise Als, Founder of NIDCAP Federation International, researcher, and clinician
  • Julie Beckett, Co-founder of Family Voices, advocate for children with disabilities living at home
  • Chrissie Blackburn, Principal advisor for PFE, University Hospitals Health Systems, Cleveland, OH
  • Dr. Lorraine Dickey, Founder of The Narrative Initiative and Gathering of Kindness USA, clinician
  • Nettie Engels, Patient advisor/leader, educator