Issue 160 | January 2023

IPFCC Events

International Stakeholder Summit on Long-Term Care and COVID-19

IPFCC is hosting an invitational, virtual International Stakeholder Summit on March 15th to review the findings from its 18-month Eugene Washington Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI). Summit attendees will discuss opportunities for resident and family partnerships in future research that address the adverse impact of COVID-19 on long-term care communities.


For this event, there are limited spaces available. If you are interested or wish to recommend researchers, funders, long-term care leaders, residents, or families to invite, please share information about interests and experience with long-term care transformation and send to Bev Johnson at

Upcoming PFCC.Connect Informal Conversations

We are excited to restart our PFCC.Connect informal conversations!

Our 2023 series kicks off on February 28th from 12-1 pm EST with the conversation, PFAC Diversity, Equity, and Inclusion: Recruitment Strategies.

We are always interested in hearing from you. If you have ideas for topics for future conversations, email us at Register to be a part of our free PFCC.Connect community here.


IPFCC Services Available for Your Organization

IPFCC offers virtual and on-site customized training, consulting, technical assistance, webinars, and seminars for your organizational needs. Contact IPFCC at to inquire about options to help advance the practice of patient- and family-centered care and improve patient and family experience, safety, quality, and equity at your organization.


Additional information can be found here.

Resources and Opportunities

Addressing the Need to Prevent Diagnostic Errors

In a recent systematic review released by the Agency for Healthcare Research and Quality, findings show that of the 130 million emergency department visits per year in the United States, over 7 million people are inaccurately diagnosed. This translates to “1 in 18 ED patients receiving an incorrect diagnosis, 1 in 50 suffering an adverse event, and 1 in 350 suffering permanent disability or death.” Read the study here.


The Tapper family shared their personal experience about their daughter’s near-fatal misdiagnosis last year on CNN to spread awareness about this issue. Listening to and acting upon the expertise of patients and families are vital to improve health care quality and safety.

The Society to Improve Diagnosis in Medicine offers resources for how patients, families, and PFACs can address diagnostic error issues. Access them here

Role of Technology in Reducing the Risk of Dementia 

Two new studies from Johns Hopkins Medicine show social isolation (defined as lack of social contact and interactions with people on a regular basis) as a risk factor for dementia in adults over 65. Researchers suggest that technology, such as texting and e-mail, may help reduce the risk. Read more here.

Share Your Latest PFAC Annual Report with IPFCC

Annual reports for patient and family advisory programs are important for documenting the impact of patient and family advisors and councils and for promoting sustainability of an advisory program. View IPFCC's list of Patient and Family Advisory Program Annual Reports.

The Medical University of South Carolina shared their 2022 Patient- and Family-Centered Care Annual Report. Read MUSC's report here. If you are interested in including your annual report, or if a report is listed but you have an updated annual report, please send it to

Pinwheel Sponsors

Pinwheel Sponsors…Renew or Join Today!

We invite you to renew or become a 2023 Pinwheel Sponsor by completing our online Pinwheel Sponsor Application.


As a non-profit organization, we appreciate the support of our Pinwheel Sponsors in our efforts to advance the practice of patient- and family-centered care and to ensure that patients and families are essential partners in all settings across the continuum of care. Our mission is critically important with today’s challenges, and we hope that you will support our work by becoming a 2023 Pinwheel Sponsor. 


If you have questions or thoughts regarding IPFCC’s program areas, please reach out to Bev Johnson at For more information visit our Pinwheel Sponsor Program or contact Sherry Hajec at

Special Thanks to Our 2023 Pinwheel Sponsors Renewals!

Akron Children's Hospital

Augusta University Health

Children's Mercy Kansas City

H. Lee Moffitt Cancer Center & Research Institute

Hasbro Children's Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

MHA Keystone Center

Penn State Health Milton S. Hershey Medical Center 

Providence Health Care

Stanford Health Care

University of Miami Health System