Issue 162 | March 2023

IPFCC Events

Upcoming Webinar: Family Presence in Hospitals and Long-Term Care

April 18th from 1:00 – 2:15 pm ET

With funding from the Patient-Centered Outcomes Research Institute, IPFCC conducted two projects to learn directly from patients, residents, families, and clinicians about their real-life experiences during the pandemic when family presence was restricted in hospitals and long-term care communities.


Several themes and topics common to the two projects, as well as new guidance resources for the field will be shared. 

Register Here

Upcoming PFCC.Connect Informal Conversation

April 25th from 12:00 – 1:00 pm ET

Join IPFCC for our next Informal Conversation, Family Presence in Hospitals: Where Do We Go from Here? This will focus on the hospital project and engage participants in a robust discussion about the impact of COVID-19 on family presence policies and practices.

Register Here


Long-Term Care Partnership Generates Two Key Resources

IPFCC received an 18-month Eugene Washington Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI), Building Capacity for Long-Term Care Stakeholders in COVID-Related Patient-Centered Outcomes Research/Comparative Research (PCOR/CER). We partnered with residents and families in all aspects of the project and worked closely with a National Advisory Committee and four long-term care communities that served diverse populations across different geographic regions. 

Two key resources were developed: Research Topics & Themes for Long-Term Care Developed in Partnership with Residents and Families and A Guide for Promising Practices in Engaging Long-Term Care Communities in Planning for Future Research. Learn more here.

Long-Term Care Research International Stakeholder Summit

A key component of the project discussed above was holding a virtual International Stakeholder Summit on Long-Term Care Research on March 15th. More than 70 attendees, including 19 researchers, from the U.S. and Canada attended this meeting along with residents, families, staff, and leaders of long-term care, foundations, and government agencies. 

Resources and Opportunities

Online Research Impacts Physician-Patient Relationships

AAMC's recent article, Physicians Learn to Partner with Dr. Google, discusses opportunities and challenges for doctors to address the impact of patients’ online research on care plans. Bev Johnson, IPFCC President/CEO, and others share their views on how patient and physician partnerships can improve medical care. Read the article here.

Pinwheel Sponsors…Renew or Join Today!

Support our efforts to transform the practice of patient- and family-centered care and ensure that patients and families are essential partners in all settings across the continuum of care by renewing or becoming a 2023 Pinwheel Sponsor. Access the online application here.


If you have questions or thoughts regarding IPFCC’s program areas, please reach out to Bev Johnson at For more information, visit our Pinwheel Sponsor Program or contact Sherry Hajec at

Special Thanks to Our 2023 Pinwheel Sponsor Renewals!

Akron Children's Hospital

Alliant Health Solutions

Augusta University Health

Centre for Addiction and Mental Health

Children's Mercy Kansas City

Children’s Specialized Hospital

H. Lee Moffitt Cancer Center & Research Institute

Hasbro Children's Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

MHA Keystone Center

Nationwide Children's Hospital

Penn State Health Milton S. Hershey Medical Center 

Providence Health Care

St. Louis Children’s Hospital

Stanford Health Care

Thunder Bay Regional Health Science Centre

University of Miami Health System

Celebrating Nora Wells

Nora Wells is a renowned pioneer and leader in family advocacy. For decades, she has been tireless in her efforts to ensure that the priorities of families are at the forefront. She is retiring from her role as Executive Director of Family Voices this month. IPFCC is very grateful to her for sharing her passion and knowledge with all of us. Learn more.

Remembering Tiffany Christensen

All of us at IPFCC are deeply saddened by the passing of Tiffany Christensen, passionate PFCC advocate and Vice President at the Beryl Institute. We have deep respect and admiration for Tiffany’s advocacy, humor, authenticity and ability to share her voice. So many of us have learned from her expertise and we thank Tiffany for all the inspirational work she has done on behalf of patients and families to improve health care.