Issue 163 | April 2023

IPFCC Events

Upcoming PFCC.Connect Informal Conversation

April 25th from 12:00 – 1:00 pm ET

Join IPFCC for our next Informal Conversation, Family Presence in Hospitals: Where Do We Go from Here? Focusing on the hospital setting, this event will engage participants in a robust discussion about what we’ve learned about the impact of restrictions on family presence during the pandemic – and strategies and ideas for recommitting to family presence.  

Register Here

Thank You to Our PFCC.Connect Pinwheel Sponsors


The Impact of COVID-19: What We Learned from Lived Experience

IPFCC held a webinar on April 18th featuring two Patient-Centered Outcomes Research Institute® (PCORI®)-funded engagement projects focused on the impact of restrictive family presence policies and practices in hospitals and long-term care communities. Bev Johnson, Deborah Dokken, Marie Abraham, Ushma Patel, and Maureen Connor presented what was learned from patients, residents in long-term care, families, clinicians, and staff. Resources produced in these projects and the webinar recording are available on IPFCC's website.

New Resources: Family Presence in Hospitals During the Pandemic  

IPFCC partnered with three health systems on a project funded by PCORI® that engaged patients, families, and clinicians to learn about their hospital experiences during the pandemic, when family presence was restricted. The project, Learning from Experience: Exploring the Impact of Approaches to Family Presence in Hospitals During COVID-19, developed two new resources —one summarizes themes learned from stakeholders, and the second outlines the lessons learned about engagement and offers guidance to researchers and others.

Learn more and access the resources here.

Resources and Opportunities

Family Engagement at the System Level

In a recent article, "Family Involvement at the Systems Level: A Framework for Action," published in the Maternal and Child Health Journal, the authors describe the collaborative process they undertook to understand engagement of families in system level change. They provide a framework for partnerships in improving policies, practice, and research. Access the article.

Clinician-Family Partnership in Continuing Medical Education

Improve Outcomes

A recent article, “Family Partnership in Continuing Medical Education: A Collaborative Experience,” published in AAP’s Pediatrics, shares key learnings from respectful family and clinician partnerships and promotes relationship-building, idea-sharing, and communication. Experienced family leaders partnered with clinicians, researchers, and educators to explore the clinical care of children with medical complexity and encourage clinician-family partnerships in continuing medical education. Access the article.

Improving Communication with Minority Caregivers

Published in JAMA Pediatrics, the article, "Patient- and Family-Centered Hospital Care—The Need for Structural Humility," presents strategies  to mitigate structural inequities when communicating with families. The authors discuss the importance of enhancing patient- and family-centered care with trauma-informed and racial equity approaches. Access the article.

Pinwheel Sponsors…Renew or Join Today!

Support our efforts to transform the practice of patient- and family-centered care and ensure that patients and families are essential partners in all settings across the continuum of care by renewing or becoming a 2023 Pinwheel Sponsor. Access the online application here.


If you have questions or thoughts regarding IPFCC’s program areas, please reach out to Bev Johnson at For more information visit our Pinwheel Sponsor Program or contact Sherry Hajec at

Special Thanks to Our New and Renewed 2023 Pinwheel Sponsors!

Akron Children's Hospital

Alliant Health Solutions

Augusta University Health

Centre for Addiction and Mental Health

Children's Mercy Kansas City

Children’s Specialized Hospital

H. Lee Moffitt Cancer Center & Research Institute 

Hasbro Children's Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

MHA Keystone Center

Nationwide Children’s Hospital

Penn State Health Milton S. Hershey Medical Center 

Providence Health Care

St. Louis Children’s Hospital

Stanford Health Care

Thunder Bay Regional Health Sciences Centre

University Health

University of Miami Health System

Vanderbilt University Medical Center