Issue 166 | July/August 2023


Welcome to our July/August issue of Pinwheel Pages! This month's issue includes a number of exciting announcements, events and updates. Enjoy!

Warm regards,

The IPFCC Team

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Opportunities and IPFCC Events

Inviting Leaders to Participate in a Global Family-Centered

Care Survey

IPFCC is collaborating with the Ronald McDonald House Charities® Center at UCSF to conduct a global survey of leaders’ perceptions of family-centered care in children’s hospitals and hospitals providing pediatric specialty care. Leaders can be executive or administrative leaders, and department or unit directors/managers. Findings will be shared and used to build understanding and facilitate the adoption and implementation of family-centered care in pediatric settings worldwide. You can learn more about the survey here. To ensure your children’s hospital or general hospital providing pediatric specialty care can participate in this important survey, please email Marie Abraham.

Upcoming PFCC.Connect Informal Conversation 

August 22, 2023 from 12:00 - 1:00 pm ET

Join IPFCC for our next PFCC.Connect Informal Conversation: Onboarding Strategies for New Patient and Family Advisors/Partners!

The onboarding process is an important part of engaging with patient and family advisors/partners in initiatives and/or as members of a patient and family advisory council. There are many steps including but not limited to: the application process, background checks, orientation, mentoring, etc. Join the conversation with colleagues from the field to discuss best practices, opportunities for improvement, and new approaches to onboarding. 

Note: We’ve had interest in more informal networking opportunities. We will open the Zoom meeting at 11:30 am ET for 20 minutes of informal chat and discussion in small breakout rooms. Come join us and meet someone new!

Register Here

Thank You to Our PFCC.Connect Pinwheel Sponsors

Learning Collaborative on Family Engagement

Family Voices is accepting applications to participate in a Learning Collaborative as part of the Family Engagement and Leadership in Systems of Care (FELSC) grant. Partners from the National Institute for Children’s Health Quality (NICHQ), an expert on quality improvement initiatives, are co-leading this initiative with Family Voices over the five-year grant. The first cohort selected for the Learning Collaborative will participate from September 2023 through May 2024. Apply by August 16, 2023. For more information and to apply, visit: Family Voices and NICHQ: Family Engagement Learning Collaborative.

IPFCC at Work

INSPIRE: A National Strategy for Advancing Partnerships

IPFCC is part of a team working to develop a national strategy for community engagement in healthcare to advance meaningful partnerships between healthcare organizations and people with lived experience. Led by the Camden Coalition, the team includes the Commonwealth Care Alliance and its Center to Advance Consumer Partnerships, PFCCpartners, Community Catalyst, and a core team of individuals with lived experience. Follow the work of the project here.

IPFCC is excited to announce PFCC.Connect has a new look! Become a member today (for free!), share ideas and experiences, learn from the expertise of others, and make new connections in the field of patient- and family-centered care! 


A Mother's Perspective of Compassionate Care in the PICU

Read this powerful personal narrative from a pediatric psychologist about her daughter's time in the PICU, the importance of family, and the love in seeing patients and their families as people. The author also emphasizes the positive impact of a compassionate nursing model of care. Find their story here.

American Academy of Pediatrics Shares Promising Practices Initiative

The National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) has developed 5 Promising Practices to support implementation of the medical home at clinical, community, and state levels. These Promising Practices provide practical strategies for implementation, in addition to information on program outcomes and impact, funding, and other information. The Promising Practices highlight themes within the medical home, particularly equity, family-centered care, integration of behavioral and mental health, and adolescent health care. Contact information is included in each Promising Practice for users interested in learning more.

Guidelines for Readmissions Interviews with Patients and Families

A new resource from Cynosure Health and PFCCpartners helps hospitals have conversations with patients and family caregivers to identify factors that are contributing to hospital readmissions. Access the resource here.

Special Thank You to our 2023 Pinwheel Sponsors!

Akron Children's Hospital

Alliant Health Solutions

American College of Radiology

Augusta University Health

Centre for Addiction and Mental Health

Chatham-Kent Health Alliance

Children's Mercy Kansas City

Children's Minnesota

Children’s Specialized Hospital

Emory Healthcare Inc

H. Lee Moffitt Cancer Center & Research Institute 

Hasbro Children's Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

MHA Keystone Center

Nationwide Children’s Hospital

Penn State Health Milton S. Hershey Medical Center 

Providence Health Care

St. Louis Children’s Hospital

Stanford Health Care

Thunder Bay Regional Health Sciences Centre

University Health

University of Miami Health System

University of New Mexico Children's Hospital

Vanderbilt University Medical Center

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