Issue 167 | September 2023


We are excited to be sending our September issue of Pinwheel Pages! This month's issue includes a number of great resources and updates. If you haven't already done so, sign up for our free Webinar, details below.

Kind regards,

The IPFCC Team

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IPFCC Events

IPFCC, in collaboration with the Cincinnati Children’s Hospital Medical Center, conducted an 18-month project to identify best practices within children's hospitals for strengthening the representativeness of PFACs and partnering with patient and family advisors on diversity, equity, and inclusion (DEI) initiatives. The project was funded by the Lucile Packard Foundation for Children’s Health.

Join us in this webinar as we provide an overview of the project and our new resource, Strengthening the Diversity and Role of Patient and Family Advisory Councils (PFACs): Opportunities for Action. In addition, hear from a panel of individuals working on the ground to improve DEI and partner with patients and families as they share challenges, opportunities, and successes.

Register Here

IPFCC at Work

Patient’s and Family’s Roles in Improving Patient Safety

The Agency for Healthcare Research and Quality (AHRQ) spoke with Bev Johnson, FAAN, IPFCC President and CEO, about her experience in patient and family collaboration and improving patient safety, including how to continue to partner with families during pandemics. AHRQ recently shared their conversation about “The Role of Patient’s Family in Reducing Harm” and also published an article, “Patient and Family Roles in Safety.” The article and conversation can be accessed here.

Spotlight Family-Centered Care in Hungary

“Family-centered pediatrics" is the central theme of the Hungarian Society of Pediatricians congress this year. Bev Johnson, serving as a consultant for Ronald McDonald House Charities® (RMHC®) Global, will present “Advancing the Practice of Family-Centered Care in Pediatrics” on September 15th. The Hungarian Chapter of Ronald McDonald House Charities has planned with the Society a follow-up symposia on emergency care, surgery, neonatology, hospice/palliative care, pain management, gastroenterology, and general practice.

Resources and Opportunities

Inviting Leaders to Participate in a Global Family-Centered Care Survey

There is still time to participate in the global survey of leaders’ perceptions of family-centered care in children’s hospitals and hospitals providing pediatric specialty care. IPFCC is collaborating with the Ronald McDonald House Charities® Center at UCSF on this study. You can learn more about the survey here. To ensure your children’s hospital or general hospital providing pediatric specialty care can participate in this important survey, please email Marie Abraham.

Apply Now for the 2024 AHA Quest for Quality Prize

Through its Quest for Quality Prize, AHA honors US hospitals and health systems that provide access to exceptional quality, safe and patient- and family-centered care, partner with other community organizations and agencies to improve the health status of their communities and address disparities, and develop new and innovative models of care. Applications can be submitted by September 29th. This prize will be presented at the 2024 AHA Leadership Summit to be held in San Diego in July. 

Prize and application information can be accessed here.

New OpenNotes Resource

OpenNotes has launched a new resource to educate patients and families about how to use open notes shared with them by their doctor or health care team. It includes information for improving patient safety and how PFACs can get involved in advocating for open notes. 

Access the resource here.

Special Thank You to our 2023 Pinwheel Sponsors!

Akron Children's Hospital

Alliant Health Solutions

American College of Radiology

Augusta University Health

Centre for Addiction and Mental Health

Chatham-Kent Health Alliance

Children's Mercy Kansas City

Children's Minnesota

Children’s Specialized Hospital

Emory Healthcare Inc *

H. Lee Moffitt Cancer Center & Research Institute 

Hasbro Children's Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

MHA Keystone Center

Nationwide Children’s Hospital

Penn State Health Milton S. Hershey Medical Center 

Providence Health Care *

St. Louis Children’s Hospital

Stanford Health Care

Thunder Bay Regional Health Sciences Centre

University Health *

University of Iowa Stead Family Children's Hospital

University of Miami Health System

University of New Mexico Children's Hospital

Vanderbilt University Medical Center

* PFCC.Connect Pinwheel Sponsors

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