Issue 169 | November/December 2023


This issue contains a great number of helpful resources and updates.

Have you considered supporting IPFCC? We are now accepting donations as part of #GivingTuesday. More information and link below.

We are excited to announce the launch of our Online Resource Center. Access our free downloads or purchase some of our publications. Check out the online store today.

All of us at IPFCC are grateful to you for your support and wish you a happy and healthy holiday season.

Kind regards,

The IPFCC Team

Facebook  Instagram  LinkedIn  Twitter

IPFCC at Work

PXJ Case Study of Meaningful Engagement of Patients and Families

Deborah Dokken, IPFCC’s Senior Specialist for Patient and Family Partnerships, and Mary Minniti, former IPFCC staff member, are co-authors of a recent article in the Patient Experience Journal titled, “Meaningful Engagement of Patients and Families in a Complex Trial of Advance Care Planning in Primary Care.”

Patient-Centered Outcomes Research Institute® funded Oregon Health & Science University's 5-year multi-site study of advance care planning in primary care. IPFCC provided consultation about engagement of patient and family advisors (PFAs) to the project team. The article describes approaches used during the study to foster and sustain meaningful engagement of PFAs. Key lessons shared in the article include creating a range of opportunities that match PFA skills, preferences, and expectations; the importance of regular feedback; and the need to train staff about engagement. Access the article here.

IPFCC Resource Store

Visit our new IPFCC's Resource Store for publications, self-assessments, videos, and free downloads. Resources provide information and strategies for advancing patient- and family-centered care through partnerships among health care leaders, clinicians, staff, patients, and families. IPFCC Pinwheel Sponsors receive a discount (with a discount code) on all resources.

Support IPFCC Through Giving Tuesday

IPFCC’s 2023 Giving Tuesday campaign continues through year end accepting donations for IPFCC’s worthwhile initiatives to develop new educational guidance resources, expand and enhance our website content and outreach materials, and support our online learning activities. Donate here.

Resources and Opportunities

Using Person-Centered Language

Resources for Integrated Care published, “Leveraging Person-Centered Language to Deliver Person-Centered Care: Spotlight on Commonwealth Care Alliance.” This resource contains real life examples, strategies, and resources for engaging patients with complex needs in care and decision-making through respectful, person-centered language. Access the spotlight here.

Dartmouth Health Recognizes Incredible Nurses with PFCC Awards

Dartmouth Health's annual Sandra Dickau Patient-and-Family Centered Care Nursing Award and Didi Sheets & Bridget Mudge Patient- and Family-Centered Care Nursing Award winners received Privileged Presence, written by IPFCC's Liz Crocker and Bev Johnson. The Darlene Saler Patient- and Family-Centered Care Leadership Award winner received a monetary recognition towards education. Recipients of these awards demonstrate an unwavering commitment to partnering with patients and families.

New Online Resource for Pediatric Care

Children and families require a health care system that serves their unique needs, prioritizes dignity, is trauma informed, and supports opportunities for lifelong health and well-being. This new resource center from the Center for Health Care Strategies supports key strategies to transform pediatric care by adopting anti-racist practices; co-creating equitable partnerships between patients, families, and providers; and identifying family strengths and addressing health-related social needs. Access the Child Health Transformation Resource Center.


As a 2024 Pinwheel Sponsor your support assists IPFCC in continuing our work to transform health care by developing and sustaining meaningful partnerships with patients and families in all settings. Pinwheel Sponsor organizations will gain national and international visibility of your commitment to patient- and family-centered care. We invite you to renew or join today by completing the online Pinwheel Sponsor Application. If you need more information, please feel free to contact Sherry Hajec at

Special Thanks to our 2023 Pinwheel Sponsors!

Akron Children's Hospital

Alliant Health Solutions

American College of Radiology

Augusta University Health

Centre for Addiction and Mental Health

Chatham-Kent Health Alliance

Children's Mercy Kansas City

Children's Minnesota

Children’s Specialized Hospital

Emory Healthcare Inc *

H. Lee Moffitt Cancer Center & Research Institute 

Hasbro Children's Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

MHA Keystone Center

Nationwide Children’s Hospital

Penn State Health Milton S. Hershey Medical Center 

Providence Health Care *

St. Louis Children’s Hospital

Stanford Health Care

Thunder Bay Regional Health Sciences Centre

University Health *

University of Iowa Stead Family Children's Hospital

University of Miami Health System

University of New Mexico Children's Hospital

Vanderbilt University Medical Center

* PFCC.Connect Pinwheel Sponsors