Issue 170 | January 2024


Happy New Year!

We hope you all are beginning the new year with renewed commitment and passion to advance patient- and family-centered care.

As always, our newsletter, Pinwheel Pages is filled with information and useful resources.

Kind regards,

The IPFCC Team

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IPFCC Events

2024 PFCC.Connect Informal Conversations

As we plan our topics for 2024 PFCC.Connect Informal Conversations, IPFCC would like to hear from you about what topics you would like discussed in future Conversations? Our Informal Conversations are designed to be engaging and informative. Knowing what you are interested in will inform topic selection. 


Please take a moment to complete the survey to help IPFCC prioritize what we should focus on in 2024. 

Complete Survey

Thank you to our PFCC.Connect sponsors!

IPFCC at Work

IPFCC’s 2023 Highlights

IPFCC is excited to share the 2023 Highlights of our work with you:

  • Eliminating health disparities;
  • Ensuring that patient and family advisory councils (PFACs) and PFA programs are representative of the communities served and engaged meaningfully in improvement of health care; and
  • Reestablishing family presence and participation in all settings.

The above priorities will continue to be major areas of focus for IPFCC in 2024.

Welcoming Jazmine Orazi, MPH to IPFCC’s Team

As IPFCC’s new Program Manager, Jazmine Orazi will lead and support multiple projects and initiatives across IPFCC contributing methodological, project management, and content expertise with an understanding and commitment to patient- and family-centered care (PFCC), engagement, and partnerships. Her career has focused on evaluating health equity initiatives and workforce diversity, equity, and inclusion (DEI) strategies.

Ronald McDonald House Charities (RMHC®) Global Family-Centered Care Collaboration 

Working with the RMHC® Chapter in Ukraine, Bev Johnson, IPFCC President and CEO, virtually presented “Advancing the Practice of Family-Centered Care and the Education of the Interdisciplinary Team” at its very successful 6th country-wide family-centered care conference in December 2023.

Innovative Approach to Patient- and Family-Centered Rounds

Deborah Dokken, Marie Abraham, and Bev Johnson were invited to write a commentary for Pediatrics on a study about an approach to conducting patient- and family-centered rounds. What made this study unique was that it implemented a collaborative process reflected by its use of triads of physicians, nurses, and parents in mentoring teams, co-investigating, and co-production of quality improvement. The commentary, published ahead of print, is available for purchase on the American Academy of Pediatrics website.

Deborah Dokken, IPFCC Senior Specialist, Patient and Family Partnerships Retires

Congratulations and best wishes to Deborah on her retirement! As a family advocate and leader, her passion for healthcare improvement grew out of personal experiences. In addition to Deborah’s IPFCC staff and faculty roles these past ten years, her numerous contributions to the Better Together Campaign, IPFCC resources, and journals will continue to advance patient- and family-centered care. 

New IPFCC Grant: Advancing DEI in Children's Hospital PFACs

IPFCC has been awarded a new grant from the Lucile Packard Foundation for Children's Health that builds on our work to identify promising practices for advancing diversity, equity, and inclusion (DEI) in children's hospital patient and family advisory councils (PFACs). The new grant will include the development of resources and a learning community for children's hospitals. The two-year project, which begins February 1st, also continues IPFCC's multi-year partnership with Cincinnati Children's Hospital Medical Center.

Resources and Opportunities

Call for Working Group Nominations: Complex Care Supervisors' Core Competencies

The Camden Coalition is accepting nominations, including self-nominations, until February 16th to be part of a national team that defines the standards of practice for complex care supervisors. People with lived experience of complex health and social needs, whether themselves or as a family caregiver are encouraged to apply!

10th Edition of the NICU Design Recommended Standards 

See how NICUs have evolved over nearly 30 years and how these standards have played an important role in driving changes that have benefited babies, their families, and their caregivers. Bev Johnson, IPFCC President/CEO, FAAN serves on the Recommended Standards for Newborn ICU Design Consensus Committee. Access the recently published 10th edition of the Recommended Standards here.

2024 IPFCC PINWHEEL SPONSORSHIP – Renew, Upgrade, or Join Now! 

As a 2024 Pinwheel Sponsor your support assists IPFCC in continuing our work to transform health care by developing and sustaining meaningful partnerships with patients and families in all settingsPinwheel Sponsor organizations gain national and international visibility for your commitment to patient- and family-centered care. Please consider upgrading your sponsorship level to a PFCC.Connect Pinwheel Sponsor and contribute to this vital online learning resource. (Recordings of all PFCC.Connect Informal Conversations are available on PFCC.Connect). We invite you to renew, upgrade, or join today by completing the online Pinwheel Sponsor ApplicationIf you need more information, please feel free to contact Sherry Hajec at

Special Thank You to Our Pinwheel Sponsor 2024 Renewals!

Children’s Specialized Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

St. Louis Children’s Hospital

Vanderbilt University Medical Center

Wellstar MCG (formerly Augusta University Health)