Issue 172 | March 2024

IPFCC Events

Upcoming PFCC.Connect Informal Conversation

March 20, 2024 from 1:00 – 2:00 pm ET

Join IPFCC for our next Informal Conversation,

Getting Leadership Buy-In for Patient and Family Advisor/Partner Programs. Leadership commitment is critical to establish, facilitate, and sustain Patient and Family Advisor/Partner programs. This Conversation will focus on learning about practical strategies to build relationships with leaders, gain their support, and engage them in PFA/P efforts.

Register Today

Thank you to our PFCC.Connect sponsors!


Diversity, Equity, and Inclusion in Patient and Family Advisory Councils: Advancing Best Practice in Children's Hospitals

This new open-access article from the team at IPFCC and Cincinnati Children's Hospital Medical Center summarizes practices that support and advance diverse membership in children's hospital PFACs and the involvement of patient and family advisors in organization-level DEI projects and initiatives. This work was funded by a grant from the Lucile Packard Foundation for Children’s Health, Palo Alto, California. Access the article here.

Nine Dimensions of Authentic Community Engagement

A new brief from the INSPIRE partnership lays out nine dimensions of authentic community engagement along with concrete practices that healthcare organizations can adopt to bring each dimension to life. Led by the Camden Coalition, the INSPIRE team consists of Commonwealth Care Alliance, Center to Advance Consumer Partnership, Community Catalyst, IPFCC, PFCCpartners, and multiple individuals with lived experience.

Resources and Opportunities

Wellstar MCG Health Continues Advancing PFCC With Their Annual PFCC Conference and Awards

Wellstar MCG’s, formerly Augusta Health and an IPFCC Pinwheel Sponsor, presented their 17th Annual PFCC Conference, "Our Shoes Tell the Story...Bring Power to Your Steps," to inspire colleagues and underscore the importance of patient- and family-centered care. The conference resonated deeply with 651 participants, reminding everyone that every step taken in the realm of PFCC holds the potential to transform lives. 

At the close of the Conference, PFCC Awards were presented — PFCC Family Choice awards, Pat Sodomka Leadership Award, PFCC Ambassador Award, and PFCC Partnership Award recognizing individuals who are passionate and committed to promoting patient- and family-centered care. 

Read more about the Conference here.

Engagement in Research: PCORI Releases New Foundational Expectations for Partnership

The Patient-Centered Outcomes Research Institute (PCORI) has released an update of their Engagement Rubric. The Foundational Expectations for Partnership in Research are building blocks for meaningful, effective, and sustainable engagement with patients, communities, and other partners in research. IPFCC was part of the team from the American Institutes for Research (AIR) that led work to develop the Foundational Expectations.

Patient Advisors Engagement in the University of Miami (UMiami) Patient-Centered Facility Design Process

Patient voices shape University of Miami Health System’s new 160,000 square foot Doral facility using a patient-centered design process. UMiami is turning to their PFACs to make impactful choices at its facilities that will have a lasting impression on patients and families. Access the article here.

Children’s Minnesota Families as Partners Pathways

Children’s Minnesota, an IPFCC Pinwheel Sponsor, enhances patient and family care experience through their Families as Partners program. Families as Partners pathways offer diverse opportunities for involvement, including sharing experiences, educating staff, providing peer-support, and advocating for pediatric policy issues. Access Families as Partners 2023 report here.

2024 IPFCC PINWHEEL SPONSORSHIP – Renew, Upgrade, or Join Now! 

As a 2024 Pinwheel Sponsor your support assists IPFCC in continuing our work to transform health care by developing and sustaining meaningful partnerships with patients and families in all settingsPinwheel Sponsor organizations gain national and international visibility for your commitment to patient- and family-centered care. Also Pinwheel Sponsors are offered a “Connection Call” with IPFCC staff to discuss strategies to improve your organization’s PFCC. We invite you to renew, upgrade, or join today by completing the online Pinwheel Sponsor ApplicationIf you need more information, please feel free to contact Sherry Hajec at

Special Thank You to Our Pinwheel Sponsor 2024 Renewals!


Providence Health Care

University Health

Health System 

Vanderbilt University Medical Center


Children’s Specialized Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

St. Louis Children’s Hospital

Thunder Bay Regional Health Sciences Centre

University of New Mexico Children's Hospital

Wellstar MCG Health (formerly Augusta University Health)