Our second Informal Conversation for 2024 is scheduled for Thursday, May 23rd, Evaluating the Impact of Patient and Family Advisor/Partner Programs.

If you have not registered yet, we encourage you to do so by using the registration link provided below.

In case you are unable to attend the live session, rest assured that you will have access to a recording of the event, as well as the slides and additional resources.

We are excited to offer this opportunity and hope that you find value in this month's Pinwheel Pages.

Kind regards,

The IPFCC Team

Upcoming PFCC.Connect Informal Conversation

May 23, 2024 from 1:00 – 2:00 pm ET

Join IPFCC for our next Informal Conversation, Evaluating the Impact of Patient and Family Advisor/Partner Programs. Measuring the impact and broadly sharing results of PFA/P efforts are critical to expanding and sustaining effective PFA/P programs. This Conversation will engage participants in a discussion about evaluation strategies and resources.

Thank you to our PFCC.Connect sponsors!

IPFCC’s Upcoming Visit with RMHC in Portugal

Bev Johnson, IPFCC President and CEO, will be in Portugal with the Fundação Infantil Ronald McDonald in May. The Ronald McDonald House Charities chapter in Portugal is sponsoring its third country-wide Family-Centered Care Conference. Bev will be speaking on “Communicating with Families as Essential Care Partners” (Comunicar com as famílias: parceiros essenciais nos cuidados de saúde da crianç) and participating in hospital site visits in Porto and Lisbon.

INSPIRE Soapboxx

Community Catalyst's INSPIRE (Initiating National Strategies for Partnership, Inclusion, and Real Engagement) Soapboxx is a platform for individuals with lived experiences to share their stories about meaningful community engagement in healthcare. If you are an individual with lived experience, please consider submitting a video sharing your story! Each person submitting a video will receive coaching on the process through the platform. You can view examples and submit your story here.

Revised ACHI Community Health Assessment Toolkit

AHA's Community of Health Improvement has launched a revised toolkit that includes several supplements to help users involve different populations in the community health assessment process. Populations include caregivers, people with disabilities, older adults, and refugees and migrants. The significant change in this toolkit is that it emphasizes health equity. Access the toolkit supplements here.

Community Engagement at Cancer Centers

This article recently published in CA: A Cancer Journal for Clinicians, "Evolution of Community Outreach and Engagement at National Cancer Institute-Designated Cancer Centers, an Evolving Journey" was co-authored by Barry Nelson, a family leader serving on the Dana-Farber Cancer Institute’s Patient and Family Advisory Council. The article describes the history of five decades of community outreach. It includes recommendations for implementation in order to advance this approach and particularly to partner with historically marginalized communities. Read the article here.

2024 IPFCC PINWHEEL SPONSORSHIP – Renew or Join Now! 

As a 2024 Pinwheel Sponsor your support assists IPFCC in continuing our work to transform health care by developing and sustaining meaningful partnerships with patients and families in all settings. Pinwheel Sponsor organizations will gain national and international visibility of your commitment to patient- and family-centered care. We invite you to renew, upgrade, or join today by completing the online Pinwheel Sponsor Application. If you need more information, please feel free to contact Sherry Hajec at shajec@ipfcc.org.

Special Thank You to Our Pinwheel Sponsor 2024 Renewals!

PFCC.Connect 

Providence Health Care

University Health

Health System 

Vanderbilt University Medical Center

Hospital/Organization

Akron Children’s Hospital

American College of Radiology

Children’s Mercy Kansas City

Children’s Minnesota

Children’s Specialized Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

MHA Keystone Center

Moffitt Cancer Center

Nationwide Children’s Hospital

Penn State Health Milton S. Hershey Medical Center

St. Louis Children’s Hospital

Thunder Bay Regional Health Sciences Centre

University of New Mexico Children's Hospital

Wellstar MCG (formerly Augusta Health)