IPFCC is excited to launch The Art of the Possible: An IPFCC Leadership Series on January 30, 2025.

Register now for the inaugural webinar "Straight Talk - What Matters Most.” Liz Crocker, IPFCC Board Member and co-author of Privileged Presence, will interview Sherry B. Perkins, PhD, RN, FAAN, President of Anne Arundel Medical Center in Annapolis, Maryland, and the Luminus Health Chief of Hospital Integration.

We hope you have a great holiday season.

Kind regards,

The IPFCC Team

The Art of the Possible: An IPFCC Leadership Series

Straight Talk - What Matters Most 

January 30, 2025 from 1:00 - 2:00 pm ET

Are you interested in a program of provocative conversations for these challenging times? Do you wonder how leaders manifest their values and manage uncertainty and complexity? 

On January 30, 2025, IPFCC will launch "The Art of the Possible: An IPFCC Leadership Series."

Liz Crocker lives in Nova Scotia and is an IPFCC Board Member and co-author of Privileged Presence. In this series, Liz will facilitate several informed and important conversations with a variety of leaders who have influenced health care and who have been champions of supporting patient- and family-centered values and making change when it has mattered. Learn about the mentors and circumstances which have shaped these leaders. Listen to their greatest challenges. Hear both their cautions and encouraging advice for the future. 

For the inaugural webinar, Liz will interview Sherry B. Perkins, PhD, RN, FAAN, President of Anne Arundel Medical Center in Annapolis, Maryland, and the Luminus Health Chief of Hospital Integration. The title of their conversation is "Straight Talk - What Matters Most."

The Leadership Series webinars will be an hour in length and will provide opportunity for participants to ask questions.  

Fee for this live and recorded webinar is $60 USD with a 50% discount for all employees and PFAs from Pinwheel Hospitals and Health Systems.

A Research Agenda for High-Value, Equitable Care

Academy Health established a consensus group of researchers, health system leaders, patients, community representatives, payers, policy makers, and research funders to collaborate on developing a research agenda for high-value and equitable care. Marie Abraham, IPFCC's Vice President for Programming and Publications served on the consensus group. The group met three times over the course of a year to provide insight and input. This comprehensive report presents the process, framework, driver diagram, and research questions. Access the report.

2025 IPFCC PINWHEEL SPONSORSHIP – Renew, Upgrade, or Join Now! 

Your support as a Pinwheel Sponsor assists IPFCC in continuing our work to transform health care by developing and sustaining meaningful partnerships with patients and families in all settings. Pinwheel Sponsor organizations gain national and international visibility for your commitment to patient- and family-centered care. Sponsors may join Pinwheel Leadership Forums facilitated by Bev Johnson and collaborate with other Pinwheel leaders, discuss specific PFCC issues on a one-hour connection call, and also receive discounts on IPFCC events and resources. 

We invite you to renew, upgrade, or join today by completing the online Pinwheel Sponsor Application. If you need more information, please contact Sherry Hajec at shajec@ipfcc.org.

Guidelines for NICU Discharge Preparation

Transitions in newborn intensive care are important. This article, NICU Discharge Preparation and Transition Planning: Guidelines and Recommendations, published in 2022 in the Journal of Perinatology is a useful, thoughtful, and comprehensive resource. It describes in detail a family-centered approach and strategies for the healthcare team to partner with families in getting ready for a safe transition to home from admission to discharge. Access the article here.

Screening for Social Drivers of Health: Children's Hospitals Respond

A Children’s Hospital Association and Nyoo Health Screening for Social Drivers of Health: Children's Hospitals Respond report provides information from 29 children’s hospitals on how they screen patients and families for social drivers, respond to positive screens, build community partnerships, and improve workflows and referral processes. To learn more about the guiding principles for social driver screenings, read the article here.

The Case for Multilingual Patient Engagement

Health Affairs October article, The Case for Multilingual Patient Engagement, focused on the inclusion of patients and families who speak languages other than English in patient engagement and how the diversity of PFACs should represent the demographics of communities they serve. This project was supported by the Agency for Healthcare Research and Quality (AHRQ). Patient engagement in direct care, organizational design and governance, and policy making is critical to improving health care quality, efficiency, and population health. A growing body of evidence suggests that patient engagement can drive innovations in patient safety and quality improvement while mitigating rising health care costs. Read the article here.

Ethical Principles for Medical Research Involving Human Participants

The World Medical Association published the Declaration of Helsinki Ethical Principles for Medical Research Involving Human Participants in JAMA on October 19, 2024. A key principle included is that patients and communities should be engaged in research design, implementation, and dissemination. Access the Declaration here.

Catherine Crock Recognized for Her Work in Transforming Healthcare

Congratulations to Professor Catherine Crock AM, founder of Hush, for receiving the prestigious Honorary Fellowship of the Royal Australasian College of Medical Administrators (RACMA). This honor is awarded to distinguished individuals who have made outstanding contributions to the advancement of medical leadership and the betterment of society. It recognizes those who have gone well beyond the usual expectations of health services leadership, achieving notability in their field. Through compassion and collaboration with patients and families, her leadership and vision continues to inspire us all.

The Importance of Collaborating in Health Care Space Design

A recent commentary in the AMA Journal of Ethics, Who Should Contribute to Decisions About Health Care Space Design? highlights the need to include patients and families as partners in design planning. It discusses why it is important to involve all that have experienced the built environment, such as patients, families, staff, clinicians, in shared decision-making. Access the article here.

Thank You to Our 2024 Pinwheel Sponsors!

PFCC.Connect 

Emory Healthcare

Providence Health Care

University Health

Health System 

Vanderbilt University Medical Center

Hospital/Organization

Akron Children’s Hospital

Alliant Health Solutions

American College of Radiology

Children’s Mercy Kansas City

Children’s Minnesota

Children’s Specialized Hospital

IWK Health Centre

Luminis Health Anne Arundel Medical Center

MHA Keystone Center

Moffitt Cancer Center

Nationwide Children’s Hospital

Penn State Health Milton S. Hershey Medical Center

St. Louis Children’s Hospital

Thunder Bay Regional Health Sciences Centre

University of Iowa Stead Family Children's Hospital

University of Miami Health System

University of New Mexico Children's Hospital

Wellstar MCG (formerly Augusta Health)