May 2012, Issue 51

The 5th International

Conference on Patient- and Family-Centered Care

Partnerships for Quality and Safety

June 4-6, 2012   ♦   Washington, DC

The Omni Shoreham Hotel


Conference Brochure

The 5th International Conference on Patient- and Family-Centered Care ~ Partnerships for Quality and Safety
New Release: Leadership Guide and Video
Intensive Training Seminar ~ Fall 2012 in Ann Arbor, Michigan ~ Tour the C.S. Mott Children's Hospital
PICU Partners at Goryeb Children's Hospital
Engaging Patients and Families in the PCMH Care Process
Institute for Patient- and
Family-Centered Care
6917 Arlington Road, Suite 309
Bethesda, MD 20814
P: 301 652-0281
F: 301 652-0186
The 5th International Conference on Patient- and Family-Centered Care ~ Partnerships for Quality and Safety

There is still time to register for The 5th International Conference on Patient- and Family-Centered Care: Partnerships for Quality and Safety, June 4-6, 2012, in Washington, DC. The Conference offers more than 100 timely, cutting-edge sessions addressing a variety of topics to help your organization develop important initiatives to improve the patient experience, yield positive outcomes for safety and quality, increase patient satisfaction, and improve the bottom line. The conference will highlight partnerships with patients and families at all levels of health care.

A sampling of a few sessions that support the business model of patient- and family-centered care include:

  • Influencing Change and Improving Quality with Patient and Family Advisors
  • Patient and Family-Centered Care: From the Boardroom to the Bedside
  • The Family Voice: Involving Families in the Drive to Improve the Transition from Outpatient to Inpatient Care
  • Implementing and Evaluating the Guide to Patient and Family Engagement: Improving Hospital Quality and Safety by Engaging Patients and Family Members in Their Care
  • Can Academic Medical Centers Improve Service and HCAHPS Scores? Learn From the Best How It's Done!
  • Designing an Integrated Values-Based Professional Practice Model and Patient- and Family-Centered Care Delivery Model: From Strategic Plan to Accountable Results!
  • Determining Metrics for Family-Centered Care Programs: Three Tiers of Analysis or How to Figure Out What to Measure, How to Measure, and How to Report Findings

Examples of other offerings include presentations on patient-centered medical homes—a model of care to improve health outcomes and strengthen primary care in the United States; use of improved technology and electronic health records; impact of patient- and family-centered rounds on patient safety, patient and family satisfaction, interdisciplinary care team performance, and medical education; mind-body programs and practices; and strategies to improve patient safety and quality of care, plus much more!

Keynote and Highlighted Speakers

The Conference is featuring an array of speakers who each bring their own perspective to the Conference, be it from their role as patient, provider, innovator, author, advocate, educator, or government official. Keynote speakers include Don Berwick, Debra Ness, Tiffany Christensen, Steven Johnson, and Liz Crocker. Highlighted speakers include Jeffery Horbar, Joanna Celenza, Richard J. Baron, Farzad Mostashari, Christine Bechtel, Susan Edgman-Levitan, and Tracy W. Gaudet. Profiles for these speakers can be found on the Conference Brochure.

In addition to plenary speakers and concurrent sessions, the Conference will include so much more—your senses will be on overload! Here is a peek at what else you can experience:

Poster Presentations
In the Exhibit Hall on Monday and Tuesday, attendees can view poster presentations showcasing innovative programs and patient- and family-centered initiatives from hospitals, health care systems, and other organizations. There will be an interactive poster session with the authors during both the morning and lunch break on Monday.


Visit the Exhibit Hall—which will feature more than 30 exhibitors—to learn more about various organizations that support hospitals and health care systems. This is a great opportunity for participants to network with exhibitors and learn about their products and services.

Book Signing
Steven Johnson, an award-winning author on innovation, and the intersection of science, technology, and personal experience will autograph copies of his best selling book, Where Good Ideas Come From: The Natural History of Innovation.

Lunch Grab and Gab Discussions
Pick up your lunch and connect with others who share your interest in one of five hot topics regarding patient safety. Each group will include an expert who will facilitate a discussion on the topic. 

  • Medication Management
  • Families in Rounds
  • Transitions in Care
  • Hospital Acquired Infections
  • Education Materials to Engage Patients and Families in Their Own Care

Table Talks
Various experts, including some of the Exhibitors, will be hosting Table Talks during breakfast and lunch on Tuesday. Pick up your lunch in the Exhibit Hall and join these informal discussions at designated tables.

  • Where Can Out-of-Area Patients and Families Stay While Receiving Medical Care?
  • Creating a Distinctive Art Program on a Shoestring Budget
  • Patient and Family-Centered Communication
  • How Qualified Interpreters Help You Keep the Focus on the Patient and Family When Working Through a Language Barrier
  • Value in Incorporating Complementary Medicine in Today's Traditional Medical Setting

Working Group for Profiles of Change

A working group will be convening at the conference to develop criteria for selecting hospitals or health care oganizations to be included in the Institute's website's Profiles of Change. If you are interested in participating, please ask for Joanna Kaufman or Barbara Kahl when checking in at the registration desk on Sunday.

If you are not attending the Conference, but would like to send us your thoughts, please contact us.

Stop by the Institute's Twitter table in the Exhibit Hall and learn how to Tweet.

And More!
Conference participants also can participate in hospital tours, special luncheons, informal networking dinners, networking breakfasts, yoga sessions, chair massages, and so much more. Check out the Conference Brochure for the detailed schedule of events.

Availability of Conference Handouts and Audio Recordings

There are numerous ways to access information from the Conference: Conference handouts and materials may be downloaded for free. Audio recordings of the Conference sessions are available for purchase. Pricing varies depending upon when the order is placed. The most significant savings are available when purchased before the Conference using the Early Bird price. Learn more....


Sneek peek preview of the film, ESCAPE FIRE: The Fight to Rescue American Healthcare, an official selection of the 2012 Sundance Film Festival, to be shown on Wednesday, June 6, 2012, at 12:30 pm - 2:00 pm in the Exhibit Hall. ESCAPE FIRE examines the powerful forces maintaining the status quo, a medical industry designed for quick fixes rather than prevention, and for profit-driven care rather than patient-driven care. The film follows dramatic human stories, as well as leaders fighting to transform health care at the highest levels of medicine, industry, government, and even the US military. ESCAPE FIRE is about finding a way out and saving the health of a nation.

Conference Registration

New Release: Leadership Guide and Video

The Institute is pleased to announce the availability of two new resources. Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care Communities, is a timely and comprehensive guide that shows how partnerships with patients, residents living in long-term care communities, and families have been essential to organizational change in health care settings across the continuum of care. It provides a framework for senior leaders to create and sustain effective partnerships and offers specific steps that leaders can take to develop partnerships to redesign and improve health care. Best practices from over 130 exemplary organizations provide concrete and real-world examples. Several practical tools and a detailed listing of written, audiovisual, and online resources are included. A chart, describing outcome data associated with partnerships, is also included in the publication.

Partnerships with Patients, Residents, and Families: Leading the Journey, is a 20-minute video that highlights the accomplishments and ongoing activities of key leaders who have created exemplary partnerships in two health care organizations representing very different types of care settings—acute and long-term, urban and rural. MCGHealth System in Augusta, Georgia, (now known as Georgia Health Sciences Health System), is an urban academic center with a large ambulatory program. Perham Memorial Hospital and Home (now known as Perham Health and Perham Living), in Perham, Minnesota, is a rural, critical access hospital with a long-term care community. The video captures the experiences of leaders in these organizations and shares their insights regarding the benefits of collaborating with patient, resident, and family advisors.

The Institute is grateful to the Hulda B. & Maurice L. Rothschild Foundation for their generous support of both the guide and video. Both resources will be available for sale at the International Conference, and can be ordered on the Institute's website starting May 25, 2012. An Executive Leadership Team Resource Package that includes 10 copies of the guide, a copy of the DVD, and a discussion booklet will also be available.

Intensive Training Seminar ~ Fall 2012 in Ann Arbor, Michigan ~ Tour the C.S. Mott Children's Hospital

The Institute's Hospitals and Communities Moving Forward with Patient- and Family-Centered Care ~ An Intensive Training Seminar Partnerships for Quality and Safety, will be held in Ann Arbor, Michigan, October 1-4, 2012. The Institute is thrilled to be partnering with University of Michigan Health System (UMHS), which is providing leadership support for bringing this seminar to Michigan.

The University of Michigan Health System, based in Ann Arbor, Michigan, is part of one of the world's leading universities. UMHS is known for its excellence in patient care, medical education, and research. UMHS includes three U-M Hospitals and a multitude of Health Centers, and Specialty Centers, the U-M Medical School and faculty group practice, biomedical research facilities, educational programs, as well as the U-M School of Nursing, and the Michigan Health Corporation. Learn more about UMHS's honors and awards.

Check out the new UMHS projects that are showcased in a recent article in Health Facilities Management, Taking Flight: CS Mott Children's Hospital and Von Voigtlander Women's Hospital. See these firsthand and learn more about patient- and family-centered care by attending the fall Seminar. The brochure and registration will be coming soon to the Institute's website.

May is National Geriatric Care Manager Month

The National Association of Professional Geriatric Care Managers (NAPGCM) is a volunteer nonprofit association with over 2,000 members with the mission "to advance professional geriatric care management through education, collaboration, and leadership. The NAPGCM announced the launch of a national annual campaign to promote geriatric care management during the month of May. Tools for National Geriatric Care Manager Month are available on the NAPGCM website.

PICU Partners at Goryeb Children's Hospital

As reported in PICU Partners in Advances for Nurses, April 25, 2012, the Pediatric Intensive Care Unit (PICU) in Goryeb Children's Hospital, in Morristown, NJ, welcomes parents of patients as partners in care. "Whether it's listening in on bedside rounds, sitting with their child in recovery or spending the night, it is all part of the patient- and family-centered care culture at the Morristown, NJ facility...everyone on the PICU team views their care through the eyes of the patients and their families."

Funded with a grant from the R Baby Foundation, the unit began to implement patient- and family-centered care over the last four years. "Our culture has changed a full 180 degrees. Four years ago, we were a locked unit. Parents had to ring a bell and were asked to leave during rounds and procedures," stated Liz DuBois, MS, RN, CPN, NE-BC, nurse manager for the PICU. The first team initiative was to have change of shift at the bedside with patients and parents always included. Another initiative was the implementation of daily PFCC rounds, performed by the critical care interdisciplinary team, including the patient and the family, "to review, discuss and, ultimately, revise the current plan of care, as well as the long- and short-term patient and family goals."

"A driving goal for PFCC in the PICU is to coordinate and improve the critical care patients' course of stay across the entire continuum of care by strengthening the communication between the nurse, patient, family, physician, and support staff. We believe parent participation not only improves quality, but also has demonstrated to reduce errors."

Watch video from Goryeb Children's Hospital to learn more.

Engaging Patients and Families in the PCMH Care Process

A recent American Academy of Family Pediatricians article described a recent meeting of the Patient-Centered Primary Care Collaborative (PCPCC) which "focused on how physicians, payers, and purchasers of health care can partner with patients and their families to deliver high-level care." Marci Nielsen, MPH, PhD, the new Executive Director of the PCPCC, called on participants "to engage patients in their own care and to engage their family members as well."

Bev Johnson, President and CEO of the Institute for Patient- and Family-Centered Care, moderated and participated in a plenary session on patient and family partnerships. Bev discussed how various physician practices and health care systems have partnered with patients and their families "to really change the level of care." One example she shared was of a health system that turned to patient and family advisors to help define 24/7 access as a key component of the Patient-Centered Medical Home (PCMH). While patients and families don't have all the answers, according to Bev, "they bring an important and needed perspective to the table. At the core of achieving true innovation, we need lots of voices, lots of different perspectives."

Gordon Harvieux, MD, a pediatrician and Medical Director of a medical home for Essentia Health in Duluth, MN, explained how he partners with patients and their families to improve health care with his Patient-Centered Medical Home (PCMH) practice. Mark Albertson—a parent from Essentia who presented along with Gordon—shared the family perspective about partnerships with patients and families in primary care.

Other speakers shared strategies to engage patients and family members in improving care.

Other Institute Staff in the News

Joanna Kaufman, Information Specialist at the Institute for Patient- and Family-Centered Care, was interviewed for an April 2012 article in the Boston Globe, In a Family Way, about hospitals relaxing maternity policies to allow sibling presence in the delivery room in response to patients' requests.

Julie Moretz, Director, Special Projects, and Marie Abraham, Senior Policy and Program Specialist, at the Institute for Patient- and Family- Centered Care, authored the second in a series articles published in March/April 2012 issue of Pediatric Nursing, Implementing Patient- and Family-Centered Care: Part II Strategies and Resources for Success. The authors discuss three broad areas: educating oneself and a team in detail about patient- and family-centered care, educating others in the unit or hospital to broaden awareness and understanding, and involving leadership in creating the infrastructure to sustain and grow patient- and family-centered care. Organizations that serve as models are identified and lessons learned are shared.

CMS Receives Comments on Meaningful Use — Stage 2  ~  Follow the Controversy

On May 7, 2012, the comment period closed for the Centers for Medicare & Medicaid Services, Department of Health and Human Services, proposed rulemaking on Medicare and Medicaid Programs: Electronic Health Record Incentive Program Stage 2. The proposed rulemaking was published in the March 7, 2012 Federal Register (CMS-0044-P).

Earlier this month, a storm started brewing. The American Hospital Association's comments to this proposed rule are taking fire. In particular, AHA is objecting to a 36-hour time-frame for patient access to information following discharge, and instead supports a 30-day window for giving patients access to their own medical summary. Christine Bechtel of the National Partnership for Women & Families calls this information "basic, crucial and highly time-sensitive information and discharge instructions, medication lists, lab test results and care transition summaries...the very information that can help keep patients from being readmitted unnecessarily." Learn more about the story.

Surfing the Healthcare Tsunami: Bring Your Best Board

Check out the Discovery Channel's Surfing the Healthcare Tsunami: Bring Your Best Board, which is an eye-opening documentary about the "tsunami of harm and waste" in health care. Learn about the cutting edge of patient safety improvements.

Fundamentals of Patient-Centered and Family-Centered Care Showcased in It's a Dog's World

Preview It's a Dog's World, a 14-minute training video, to see a typical patient's journey compared to his dog's treatment at the vet's office. Viewers are given an impossible-to-ignore viewing and it changes the way one sees patient interactions. See what is and is not patient- and family-centered care in a memorable way.