March 2014
Issue 68
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IPFCC Announces Speakers for The 6th International Conference on Patient- and Family-Centered Care

Vancouver Banner

IPFCC is proud to announce some of the speakers for The 6th International Conference on Patient- and Family-Centered Care: Partnerships for Quality & Safety, to be held in Vancouver, British Columbia, Canada, August 6-8, 2014:
  • Sir Liam Donaldson, Chair in Health Policy, Imperial College London, Chancellor of Newcastle University, World Health Organisation’s Envoy for Patient Safety, and formerly the Chief Medical Officer for England;
  • Leilani Schweitzer, Family Leader and Patient Liaison for Stanford University Hospital and Clinic’s Risk Management;
  • G. Ross Baker, Professor, Institute of Health Policy, Management and Evaluation, University of Toronto.
  • Leslee J. Thompson, President and CEO, Kingston General Hospital, Kingston, Ontario;
  • Sue Sheridan, Director of Patient Engagement, Patient-Centered Outcomes Research Institute (PCORI);
  • J. Michael McGinnis, Senior Scholar and Executive Director, IOM Roundtable on Value & Science-Driven Health Care, Institute of Medicine;
  • John Santa, Director, Consumer Reports Health Ratings Center;
  • Jim Conway, Adjunct Lecturer on Health Care Management, Harvard School of Public Health, and formerly a member of the IOM Committee on a Learning Healthcare System;
  • Britt Wendelboe, Head of Office, Danish Patient Safety Society;
  • Shoo Lee, Neonatologist and Health Economist, Scientific Director of the Institute of Human Development, Child and Youth Health at the Canadian Institutes of Health Research; and
  • Jack Hourigan, Participant in and Speaker for the Family Integrated Care Research Study, formerly a NICU Parent Partner, Mount Sinai Hospital.
Register Now for this important event. In addition to these thought leaders, the Conference will include more than 100 cutting-edge presentations and 60 posters presented by leaders in patient- and family-centered care from the United States, Canada, and other countries.

Come to Vancouver Early and Stay Late!

Over the next four months, Pinwheel Pages will feature additional attractions that may entice you to extend your stay in Vancouver.

Come early and stay later to enjoy a wonderful vacation, including….
Capilano Suspension Bridge Park—one of the most popular tourist attractions in Vancouver, British Columbia. Capilano Suspension Bridge crosses to towering evergreens, cedar-scented rainforest air, and Treetops Adventure (seven suspended footbridges offering views 100 feet above the forest floor). The newly added Cliffwalk takes you through rainforest vegetation and suspended walkways jutting out from the granite cliff face above the Capilano River.

Don't Miss Out ~ A Few Spaces Left ~ Register Today for IPFCC’s Moving Forward with Patient- and Family-Centered Care  Intensive Training Seminar

logo_header_shc2Thanks to Stanford Hospital & Clinics for partnering with IPFCC to bring the Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety Intensive Training Seminar to California at the end of this month. Come join us March 31-April 3, 2014, at the San Francisco Airport Marriott Waterfront in Burlingame, CA. We anticipate that this seminar will fill to capacity, but, as we go to press, there are a few spaces left. So don’t delay….Register Now!

The unique format of this seminar encourages dialogue within and among health care teams, and with the seminar faculty. While “Teams of One” are always welcome to attend, each participating organization is encouraged to bring an interdisciplinary team, that includes at least one physician, an administrator, as well as one or more patient or family advisors/leaders. Patient and family leaders can register at a reduced rate. Community practices, hospitals, and health systems that bring a diverse team are best positioned to provide leadership for patient- and family-centered change following the seminar.

This meeting is intense, and includes many working lunch sessions during which participants meet in small groups with their faculty advisor, and work on individualized action plans for efforts that your organization wants to move forward. The seminar offers great opportunities to network with other attendees, make connections, share ideas, and learn from each other.

On Tuesday afternoon the sessions end early to give participants an opportunity to discover San Francisco, landmark attractions, and explore the dining scene. Come early or stay late to enjoy the sights of San Francisco.

Register Now

Thanks to Partnership for Patients for Funding Scholarships to IPFCC’s California Seminar

ThaPartnership for Patients logonks to the Partnership for Patients contractor, Weber Shandwick, for allocating resources for scholarships allowing 21 patient and family leaders/advisors from US hospitals to attend IPFCC’s upcoming Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar in California. Participants receiving an honorarium are required to attend each day of the seminar, complete the seminar Action Plan, and write a blog entry (no more than 500 words) within five days of the Seminar sharing their insights and experiences from the training.

According to Weber Shandwick, the "Institute's intensive training seminar will go a long way to support the aims of Partnership for Patients by helping to equip and empower interdisciplinary teams of hospital administrative leaders, physicians, nurses and other clinical staff, in conjunction with patient and family advocates, to integrate patient- and family-centered concepts within a quality and safety agenda, and to create action plans for patient- and family-centered change."

Just Released! Safety is Personal: Partnering with Patients and Families for the Safest Care

Safety-Is-Personal_cover-for-PPT-231x300 The National Patient Safety Foundation's (NPSF) Lucian Leape Institute just released Safety is Personal: Partnering with Patients and Families for the Safest Care, the report of the Roundtable on Consumer Engagement in Patient Safety. The report calls for “a strategic alignment…to commit to increasing patient engagement in order to reduce harm.”

According to the report, “Engaging patients and families in improving health care safety means creating effective partnerships between those who provide care and those who receive it—at every level, including individual clinical encounters, safety committees, executive suites, boardrooms, research teams, and national policy-setting bodies. Increasing engagement through effective partnerships can yield many benefits, both in the form of improved health and outcomes for individuals and in safer and more productive work environments for health care professionals.”

The report includes recommendations, “draw[n] from the growing evidence about the power of engagement…” Read more about this “call to action for leaders of health care organizations, health care professionals, patients and their families, and the public.”

Members of the 
Roundtable on Consumer Engagement in Patient Safety will discuss this report at a free NPSF webinar on Tuesday, April 29, 2014, 11 am – Noon EDT. Registration is required. Learn more…

Patient Engagement Transforms Care

In the February 2014 issue of Hospitals & Health Networks® (H&HN) magazine, the author, Marty Stempniak, looks at Your Not-So-Secret Weapon to Transform Care ~ Hospitals are peering through the eyes of the health care consumer to reshape the delivery system. The first in a series on patient engagement, this article explores the potential of partnering with patients and families.

According to Bev Johnson, President and CEO of IPFCC, “This is a paradigm shift in thinking about how to plan, implement, and evaluate systems of health care delivery.” Patients “have tremendous insights, expertise, and experience that can help us build cost-effective, high-quality, safe systems of care.”

Hospitals can start with a self-assessment to identify the level of patient and family engagement. According to Maulik Joshi, President of the American Hospital Association’s Health Research & Educational Trust (HRET), here are some of the questions that can be asked:
  • Are patients and their families included on advisory councils?
  • What about the level of access patients have to their records?
  • Can families be with their loved ones any time they desire?
HRET, with funding support from the Gordon and Betty Moore Foundation, conducted a survey in the nation's hospitals to determine how they are performing on patient engagement, and expect to release the results mid-2014.

Included in the article are resources available to assist with patient and family engagement. One example is the AHRQ’s 2013 Hospital Engagement Guide, which outlines four strategies to more effectively involve patients in improving care:
  • Promoting better communication at the bedside to improve quality;
  • Including patients and families in nursing bedside shift reports; and
  • Engaging patients and families in discharge planning.

More resources can be found in HRET’s July 2013 guide, “A Leadership Resource for Patient and Family Engagement Strategies,” which offers five steps of action that executives can take to implement their patient improvement strategy.

Read the H&HN Article 

IPFCC offers many resources on patient- and family- centered care, including how to foster patient engagement. Check out IPFCC’s website, webinars, upcoming educational meetings such as the California Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar, and The 6th International Conference on Patient and Family-Centered Care.

Innovative Patient- and Family-Centered Care Program at Children’s Specialized Hospital Receives Excellence in Quality Improvement Award

At its
logo-childerns-specialized-hospitalrecent annual meeting, the New Jersey Hospital Association (NJHA), through its Institute for Quality and Patient Safety,
recognized the innovative patient- and family-centered care (PFCC) program at Children’s Specialized Hospital. Donna Provenzano, Director of Family Centered Care, on behalf of Children’s Specialized Hospital, received an Excellence in Quality Improvement award for the hospital’s PFCC program at PSE&G Children's Specialized Hospital which provides comprehensive inpatient rehabilitation therapy for children following a serious injury, illness, premature birth, major surgery, chronic illness or pain, or any other life-threatening injury.

The PFCC program at Children’s Specialized Hospital advances the practice of Patient- and Family-Centered Care in a number of ways. It created a PFCC strategic plan that is incorporated into the CSH strategic plan; it has family members on all operational committees and the Board's Quality committee; and it employs family members of current or former patients known as family faculty. Children’s Specialized Hospital also has an active Family Advisory Council and has developed a stand-alone PFCC Leadership team consisting of family faculty and clinical and non-clinical staff across the organization.

The PFCC leadership team, which included patient and family faculty and advisors, clinical and nonclinical staff, and leadership, researched best practices and defined the ideal patient and family experience, beginning at the community level and working back into its organizational practices and culture. The strategic plan created a process to examine five phases of the patient and family experience: community, initial point of contact, environment, clinical experience, and discharge/community integration. The project also explored barriers and improvements needed to deliver the ideal experience.

According to Amy Mansue, President and CEO of CSP, “…Ms. Provenzano and her team have created a partnership with the families where we are working together, real time, shoulder to shoulder to improve the clinical care and patient experience for every child we serve….”


Pictured above are Children’s Specialized Hospital senior staff and award recipient, Donna Provenzano CENTER holding the award with Warren Moore, EVP and COO; Michael Dribbon, Ph.D., VP of Rehabilitation Services and Program Development. Behind them, from left to right is Bill Dwyer, VP of Human Resources; Christopher Haines, DO, FAAP, FACEP, Chief Medical Officer; Patricia Foley, PT, MS, MPA, FACHE, VP of Outpatient Services; Amy B. Mansue, President and CEO; Bonnie Altieri, PhD, RN, NEA-BC, VP of Patient Care Services and Chief Nursing Officer; and Charles Chianese, Chief Strategic Improvement Officer. Behind them is Joseph Dobosh Jr., VP and CFO.

In This Issue
  • IPFCC Announces Speakers for The 6th International Conference on Patient- and Family-Centered Care
  • Come to Vancouver Early and Stay Late!

  • Don't Miss Out ~ A Few Spaces Left ~ Register Today for IPFCC’s Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar

  • Thanks to Partnership for Patients for Funding Scholarships to IPFCC’s California Seminar
  • Just Released! Safety is Personal: Partnering with Patients and Families for the Safest Care
  • Patient Engagement Transforms Care
  • Innovative Patient- and Family-Centered Care Program at Children’s Specialized Hospital Receives Excellence in Quality Improvement Award

  • Promising Care: How We Can Rescue Health Care by Improving It 
  • Patient- and Family-Centered Care: A Partnership Exemplar
  • Fostering Partnership and Teamwork in the Pediatric Medical Home 
  • The Schwartz Center for Compassionate Healthcare and the Arnold P. Gold Foundation Announce Request for Abstracts
  • Having Trouble Receiving Pinwheel Pages?

  • Save The Date! ~ The 6th International Conference on Patient- and Family-Centered Care
Two New Publications:

Promising Care: How We Can Rescue Health Care by Improving It

Berwick Book CoverDr. Donald M. Berwick's Promising Care: How We Can Rescue Health Care by Improving It (Jossey-Bass) is now available. This book includes a collection of Dr. Berwick’s landmark speeches delivered at IHI’s annual National Forum on Quality Improvement in Health Care from 2003-2012, and additional selected speeches “that clearly show why our medical systems don’t reliably contribute to our overall health.” Dr. Berwick—an internationally acclaimed champion of health care improvement, physician, health care educator and policy expert, leader of the Institute for Healthcare Improvement (IHI), and former administrator of the Centers for Medicare & Medicaid Services—shares his vision for making the systems “safer, more effective, more efficient, and more humane.”

Each speech is accompanied by a brief commentary by a prominent figure in health care, policy, or politics, bringing a unique perspective to that particular speech.

Included in this book is Dr. Berwick’s Yale School of Medicine Graduation Address of May 24, 2010, with the commentary by IPFCC’s President and CEO, Bev Johnson. In her remarks, Bev notes that “Don Berwick challenged the graduates to ‘unlock the door’ of policy and rules to open health care to participation by patients and families…family presence is a theme woven throughout the stories in Dr. Berwick’s speech.” Bev concludes her commentary by noting, “Now is the time to change the concept of families as visitors and to move toward respecting and encouraging families in their essential caring roles and recognizing them as allies for quality and safety.”

Learn more about Dr. Berwick’s new book.

Patient- and Family-Centered Care: A Partnership Exemplar

Transforming InterP Partnerships...Book


In the recently published book, Transforming Interprofessional Partnerships ~ A New Framework for Nursing and Partnership-Based Health Care,* the authors, Riane Eisler, a social scientist and attorney, and Teddie M. Potter, a clinical professor of nursing, provide a “framework to shift health care relationships from hierarchies of domination and isolated professions to high-functioning interprofessional teams ready to be full partners with patients, families, communities, and one another.”

Part III of this IV part volume “offers readers a template to shift every relationship in health care towards partnership.” Patient- and family-centered care is offered as an exemplar, and the authors discuss IPFCC’s mission and work in advancing patient- and family-centered care. For example, included are IPFCC’s four core concepts, the notion of integrating partnerships with patients and families throughout every level of the health care system, changing the concept of families as visitors, and recognizing families as partners in the care of patients.

In discussing patient- and family-centered care, the authors conclude, “The only way authentic patient- and family-centered care will become manifest is when health care professionals fully embrace a partnership paradigm…we will see patients and families participating as full partners in care conferences, in education of health professionals, and in the design of health care policy.”

*Published by Sigma Theta Tau International Honor Society of Nursing® in 2014.

Fostering Partnership and Teamwork in the Pediatric Medical Home

The American Academy of Pediatrics National Center for Medical Home Implementation is featuring a three-part "how to" Webinar Series on Fostering Partnership and Teamwork in the Pediatric Medical Home. Although it is too late to participate in the live February webinar on Implementing Team Huddles, you can access the recorded February webinar. There is still time to participate in the remaining two webinars: Enhancing Care Partnership Support on March 27, 2014 (1-2 pm CST); and Starting and Supporting Family Advisory Groups April 24, 2014 (11am-noon CST). Learn more...

The Schwartz Center for Compassionate Healthcare and Arnold P. Gold Foundation Announce Call for Abstracts

The SchwartzCenter logo SM

TheArnoldPGold logoSM

The Schwartz Center for Compassionate Healthcare
 and the Arnold P. Gold Foundation  recently announced a Request for Abstracts (RFA) for Advancing Compassionate, Patient- and Family-Centered Care Through Interprofessional Education and Collaborative Practice invitational conference to be held October 30-November 1, 2014 in Atlanta, GA.

The goal of this conference is to “advance professional education for compassionate and collaborative, patient-centered care.” According to The Schwartz Center, “participants will identify models and opportunities, as well as barriers that must be addressed to ensure that the values, knowledge and behaviors needed to provide such care are explicitly taught, demonstrated, supported and sustained within and across clinical settings.”

The deadline for submission of a 300-word application is 5 pm Friday, May 30, 2014. For more information, see the Instructions for Abstracts.
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About Us
Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.

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August 6-8 2014
Vancouver, British Columbia, Canada

Register Now
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Institute for Patient- and Family-Centered Care
6917 Arlington Road, Suite 309 • Bethesda, MD 20814