IPFCC Launches Better Together Campaign; Challenges Hospitals to Eliminate Restrictive Visiting Policies
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The
Institute for Patient- and Family-Centered Care (IPFCC) is launching
the Better Together campaign, calling on all hospitals to welcome
families 24 hours a day. IPFCC asks hospitals to transform their
approach to care, so that patients' families and loved ones are included
in care and decision-making according to patient preferences. As the
campaign kicks off, IPFCC recognizes 12 hospitals that exemplify success
when changing the concept of families as "visitors."
"These 12 exemplar
hospitals understand how important it is to partner with patients'
families instead of treating them as outsiders who are interfering in
their loved one's care," said Beverley Johnson, IPFCC President and CEO.
"Hospitals that have changed their policies are proving that giving
patients the access they want to their loved ones actually helps them
get better."
"All too often, families
and loved ones are prevented from being with patients,
leaving them alone and isolated, often when they need support the
most," said Johnson. "This is based on outdated beliefs that
frequent contact with loved ones interferes with care, exhausts the
patient, or spreads infection; that just isn't true," she added.
In addition to changing
their visiting policies, these 12 hospitals are committed to working
directly with family members as care partners. Johnson says that nurses
report greater job satisfaction because they are partnering with
patients and families in care, instead of enforcing policies that many
don't agree with.
A toolkit,
available on the IPFCC Better Together website, includes sample policies, guides,
videos, and case studies of how hospitals successfully changed their
policies to welcome families.
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The 6th International
Conference on Patient- and Family-Centered Care Features Better Together
Special Events |

In
conjunction with the launch of IPFCC’s Better Together campaign (see
related article above), the International Conference, to be held August
6-8, 2014, will showcase Better Together activities.
A Special Luncheon:
Better Together – Changing the Concept of Families as Visitors on
Thursday, Aug 7, will feature speaker Suzanne Y. Mattei, the primary
author of the report, Sick, Scared and Separated from Loved Ones: A
Report on NYS Hospital Visiting Policies and How Patient-Centered
Approaches Can Promote Wellness and Safer Healthcare. This is a joint release by
New Yorkers for Patient & Family Empowerment, Inc., and the New
York Public Interest Research Group (NYPIRG).
Suzanne Y.
Mattei, Esq., is an attorney with over 30 years of experience in public
interest law and policy. Ms. Mattei, a graduate of Yale Law School,
conducted research and advocacy that helped obtain passage of the New
York City Childhood Lead Poisoning Prevention Act,
a national model for prevention of permanent brain damage in children.
The luncheon will also highlight the experiences of exemplar hospitals
that have changed their policies and practices. New web resources
are available as part of IPFCC’s campaign, with an eye towards changing restrictive policies that label families as visitors, to policy and practice that welcomes family presence
and participation. Luncheon reservations are required—space is limited.
In addition, there will
be a Networking Breakfast on Friday, Aug 8. Join others for breakfast to
discuss how you will move forward with changing the visiting policy in
your organization. (No reservations required).
The Exhibit Hall will
include posters featuring the Better Together: Partnering with Families campaign. Visit these posters and learn more about IPFCC’s campaign.
Posters will illustrate
how exemplary hospitals are changing the concept of families as
visitors. Review successful strategies employed by exemplar hospitals
that have already made this important change.
Hospitals presenting posters include:
- Anne Arundel Medical Center, Annapolis, MD
- Essentia Health, Duluth, MN
- Methodist LeBonheur, Memphis, TN
- South Health Campus, Calgary, Alberta
- Spectrum Health, Grand Rapids, MI
- University of Michigan Health System, Ann Arbor, MI
- University of Washington Medical Center, Seattle, WA
- Vanderbilt University Medical Center, Nashville, TN
Register Now for The 6th International Conference on Patient- and Family-Centered Care.
Read Brochure.
With leadership support from:

And support from our Program Partner:
Come to Vancouver Early and Stay Late ~ Enjoy Butchart Gardens
The Butchart Gardens,
located near Victoria o n beautiful Vancouver Island, is a must see!
Don’t miss this National Historic Site of Canada. Based on a 2014 poll
by USA Today and 10Best.com readers for best public garden, Butchart
Gardens—the only Canadian garden on the list—was chosen as the third
best garden in North America.
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Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Care
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In its just released Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Care, the Josiah Macy Jr. Foundation* offers recommendations from its conference on Partnering with Patients, Families, and Communities to Link Interprofessional Practice and Education. See related article in IPFCC's April Pinwheel Pages e-newsletter.
A group of 40 invited leaders who represented health care organizations, health professions schools, and consumers, including IPFCC’s President and CEO, Bev Johnson, participated at this meeting. The participants recommended that patients and their families “must be welcomed as equal partners” at every level and in every health-related endeavor from designing curricula to setting research priorities to hiring faculty.
The resulting report provides a roadmap for “moving beyond the popular concept of patient engagement—the realm of personal care decisions, consumer focus groups, satisfaction surveys, and community meetings—to more meaningful partnership with patients, families, and communities in the planning and implementation of health care. This includes patients working collaboratively with health care educators and providers to set agendas, determine policies and priorities, and help guide and implement necessary reforms in both clinical practice and health professions training and education. In such partnerships, the patient perspective should be recognized as important as professional expertise." To learn more, read the entire press release or download the Report.
*The Josiah Macy Jr. Foundation strives to foster innovation in health professional education and to align the education of health professionals with contemporary health needs and a changing health care system.
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First Issue of Journal of Patient Experience Features Article in Support of Family Presence in the Emergency Room
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Featured prominently in the first issue of the Journal of Patient Experience—a
peer reviewed journal dedicated to improving and advancing the patient
experience—is yet another story that recounts one family’s experience as
a result of the policy and practice of not allowing family presence
with loved ones during procedures and resuscitation.
Pediatrician
Dr. Lacey Colligan recounts her traumatic experience of being kept
apart from her 21-year-old daughter, who was dying. Colligan argues that
hospitals should make it a standard of care to give families the choice
to be with their loved ones, no matter how upsetting the scene might be.
Read this story, and others in this new journal of the nonprofit Association for Patient Experience.
Join IPFCC’s Better Together campaign challenging hospitals to eliminate restrictive visiting policies.
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In This Issue |
- IPFCC Launches Better Together Campaign; Challenges Hospitals to Eliminate Restrictive Visiting Policies
- The 6th International Conference on Patient- and Family-Centered Care Features Better Together Special Events
- Come to Vancouver Early and Stay Late ~ Enjoy Butchart Gardens
- Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Care
- First Issue of Journal of Patient Experience Features Article in Support of Family Presence in the Emergency Room
- Children’s Specialized Hospital’s Patient- and Family-Centered Care Journey
- Traveling into Canada for the Conference? Read this Important Travel Information!
- Connect with IPFCC on Social Media
- Register Now ~ IPFCC's Fall Intensive Training Seminar in Cambridge, Massachusetts
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Children’s Specialized Hospital’s Patient- and Family-Centered Care Journey
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Children’s Specialized Hospital (CSH)—with 12 locations in New Jersey—is the largest pediatric rehabilitation health system in the United States. It recently received an Excellence in Quality Improvement Award for its innovative Patient- and Family-Centered Care Program from the New Jersey Hospital Association. Here’s how the hospital achieved this success:
In 2004, CSH embarked on its patient- and family-centered care journey, sending a team to IPFCC’s intensive training seminar. The team’s goal was to develop an action plan to include families as meaningful partners in all aspects of the organization. This was essential to fulfill the hospital’s mission “to be the preeminent provider of specialized health care services for infants, children, and young adults.”
The information and training received at the seminar, combined with surveys of current families and research on best practices in hospitals that were leaders in family-centered care, resulted in the creation of five Family-Centered Care priorities in 2005:
- Hire families;
- Involve families in hospital orientation;
- Involve families in reviewing all policies and procedures;
- Include families on key hospital committees; and
- Develop a Family Advisory Council.
In one year, the hospital met these goals and established the first dedicated Patient- and Family- Centered Care (PFCC) team, established the Family Advisory Council, and the Family Faculty staff positions. This PFCC team provides the focus and unique family perspective required to build awareness, educate, engage, and fully integrate Patient- and Family-Centered Care principles into the health care policies and practices across the hospital.
Read more….
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Traveling into Canada for the Conference? Read this Important Travel Information! |
The Canadian Border Services Agency (CBSA) has officially recognized IPFCC’s 6th International Conference on Patient- and Family-Centered Care. As a result of this formal recognition, non-Canadians do not need a Canadian work permit to participate in the conference.
All non-Canadian
attendees, exhibitors, sponsors, and presenters, remember to print the
agency’s Letter of Recognition and present it to the Border Services Officer when you enter Canada.
You will need a valid
passport to enter Canada. For information about passports, visas, and
other travel documents visit the conference visa information page.
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Connect with IPFCC on Social Media
Become the first to know about IPFCC's latest news and events!
What better way to stay connected with IPFCC than through social media? Please consider following us on these social media platforms to stay up-to-date and connected. Stay abreast of patient- and family-centered care news, timely events, and inspirational content:
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Register Now ~ IPFCC's Fall Intensive Training Seminar in Cambridge, Massachusetts

Consider attending the next Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar, November 3-6, 2014, in Cambridge, MA. The Seminar is sponsored in partnership with Brigham and Women’s Hospital, and will be held at the Hyatt Regency Cambridge.
Registration now open. Early Bird Registration will be available through September 4, 2014.
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About Us
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Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.
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