October 2014
Issue 74
Email IPFCC at institute@ipfcc.org   www.twitter.com/IPFCC   www.facebook.com/IPFCC   https://www.linkedin.com/company/institute-for-patient--and-family-centered-care   www.instagram.com/IPFCC

News about the Cambridge Seminar ~ Guest Faculty Offer New Sessions; One-day Track for Partners Healthcare Residents, Fellows, and Other Trainees

The Seminar Agenda is now available
for the 
ing Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety ~ An Intensive Training Seminar, to be held November 3-6, 2014, in Cambridge, Massachusetts.

anks to BrighalogoBWHm and Women’s Hospital for its leadership support.

Guest Faculty Offer New Sessions

IPFCC is delighted to welcome guest faculty at the Cambridge Seminar who will be teaching two exciting new sessions available to all attendees.

One session will feature the award-winning OpenNotes project, a national effort to promote and examine the impact of increasing transparency in care by inviting patients to read and contribute to their medical records. On Tuesday, November 4, researchers Tom Delbanco, MD, MACP, and Jan Walker, RN, MBA, and Eileen Hughes, a patient who participated in the pilot study, will present the session, OpenNotes: Patients and Clinicians on the Same Page.

A Wednesday, November 5 session, Bringing Interdisciplinary Teams to the Bedside: Care Redesign on a General Medicine Service will be presented by Robert Boxer, MD, Kristin Huang, MD, Patricia Brita Rossi, RN, MSN, and Martie Carnie, a senior patient advisor. This session will explore the redesign effort and highlight results from a preliminary study of patient and family involvement in rounds.

These are just two of the 63 concurrent breakout sessions offered at this seminar. For specific information about the program, please see the seminar agenda.

Opportunity for Residents, Fellows, and Other Trainees in Partners Healthcare: IPFCC Offers Special One-Day Track

As part of the Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety Intensive Training Seminar, IPFCC is offering a special track for residents, fellows, and other trainees from Partners Healthcare, an affiliate of our leadership partner, Brigham and Women's Hospital. Conceived to respond to opportunities created by health care reform in the United States and the visionary recommendations of the Macy Foundation’s 2014 report: Partnering with Patients, Families, and Communities: An Urgent Imperative for Health Care, this special one-day track will focus on creating respectful, mutually beneficial partnerships with patients and families at all levels of care and with others across disciplines on the health care team.

This track for trainees will provide an opportunity to learn about best practices and innovation in improving the experience of care, quality, and safety, and enhancing learning opportunities for physicians and physicians-in-training. Physician faculty will be facilitating dialogue and networking during breakfast and lunch. In addition to the plenary sessions, there will be a special breakout session in the afternoon presented by IPFCC physician and family leader faculty for participants in this track.

Partners Healthcare trainees attending the Monday, November 3rd track are also invited to register for the Celebratory Dinner at Fenway Park on Wednesday, November 5th at 6:00 pm.

Contact Racquel Codling for more information about this special resident trainee track.

Register today for IPFCC’s intensive training seminar, Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety, scheduled November 3-6, 2014 in Cambridge, Massachusetts! 

Learn more about the Seminar. Download the Brochure.
Read the Agenda.

Announcing Pinwheel Sponsor Scholarship for Cambridge Seminar

IPFCC is proud to announce the award of a Pinwheel Sponsor Scholarship to Ann & Robert H. Lurie Children's Hospital of Chicago. With this award, Ann & Robert H. Lurie Children's Hospital of Chicago will be able to send an additional member with their team to the IPFCC’s Intensive Training Seminar in Cambridge.

All Pinwheel Sponsors have the opportunity to participate in a drawing to receive one complimentary registration fee for each IPFCC Intensive Training Seminar.

Caregiver Action Network Announces Top Programs in Patient and Family Engagement

CAN logo The Caregiver Action Network (CAN) launched an effort in April 2014 to highlight individuals and organizations working to improve health care outcomes by partnering with patients, their families, and caregivers. 

The goal of this program, Advancing Excellence: Best Practices in Patient and Family Engagement, is to bring recognition to excellent programs and to publicize best practices so that health care leaders and systems can learn from and replicate them to help improve the quality and safety of health care across the United States. 

As a result, in September 2014, the Caregiver Action Network issued its final report and identified 25 of the nation’s best examples of how patients, caregivers, hospital staff, and hospital systems have created new and innovative programs that are helping to ensure healthier outcomes for patients.

More than half of the "25 of the Nation’s Best Practices" identified by CAN are participants in the Centers for Medicare and Medicaid Services’ Partnership for Patients Program for "Hospital Engagement Networks." This program encourages hospital systems to implement five critical internal procedures that are ideal examples of how to "hard wire" partnership and patient and family engagement into the system:

  • Planning checklist provided to, and discussed with, the patient and family before every scheduled admission, with staff eliciting questions or comments from the patient or family;
  • Shift-change huddles/bedside reporting in the presence of patients and family members;
  • Leader assigned to proactively be responsible for patient and family engagement;
  • Patient/family representation on active PFAC or PFE Council and on Quality Improvement team; and
  • The hospital has at least one patient who, acting as a patient representative, serves on a governing and/or leadership board.

Read more about the "25 of the Nation’s Best Practices" which include organizations, and individuals from organizations, that are IPFCC Pinwheel Sponsors.

Patient- and Family-Centered Care and the Patient Experience in Medical Education

EngagingPatientsLogo2014063The recent online article, Medical Schools Putting Focus on the Patient Experience by Barbara Lewis, MBA, September 11, 2014, EngagingPatients.org,* examines the various clinical skills courses implemented in medical schools across the country. Many courses deal with communication and empathy, necessary components of patient- and family-centered care.

Example of innovations include:

  • Use of videos and interactive web-based learning modules to help students assess and improve their interaction with real or simulation patients.
  • Humanities courses at medical schools to improve the students’ observation and listening skills.
  • Family Centered Experience Program at the University of Michigan Medical School in which medical students visit the homes of volunteer patients and their families who live with serious or chronic medical conditions. In small groups, the students then discuss observations, thoughts, and insights with clinician-educators.
  • Interprofessional courses designed to increase health profession students’ competencies in collaborative practice with other disciplines.

Lewis notes that in addition to standard and informal curriculum, there is the "hidden" curriculum, "where students watch and mimic residents and doctors as they interact with each other, nurses, and patients—often without being aware they are teaching important social lessons." She notes that the hidden curriculum must support the rest of the curriculum or "future doctors won’t have the humanistic qualities that enhance the patient experience..."

*EngagingPatients.org, launched in 2013, believes "that patient engagement is central to the transformation of health care." The organization strives to serve as a resource for "real-time news and relevant content" and a place to "share best practices, and engage in thoughtful discussion."

Health in Aging Foundation Joins with IPFCC in the Better Together: P
artnering with Families Campaign

IPFCC welcomes 
Health in Aging Foundation as a partner in launching IPFCC’s Better Together: Partnering with Families Campaign, which calls on all hospitals to eliminate restrictive visiting policies and welcome families 24 hours a day. IPFCC is committed to changing policies in 1,000 hospitals by 2017.

The Health in Aging Foundation is a national non-profit organization established by the American Geriatrics Society in 1999, to bring the knowledge and expertise of geriatrics health care professionals to the public. The Foundation provides expert, reliable health information to older adults and their caregivers; advocates on behalf of programs and policies that help older people lead healthy, active lives; and supports research on the diseases and disorders of older adults.

The Foundation is also working to educate the public and supports research in the field of geriatrics. It is committed to "ensuring that the public is empowered to advocate for high quality care for themselves or their loved ones, by providing them with trustworthy information and resources." The Foundation's flagship initiative is the website, HealthinAging.org, which provides consumers and caregivers up-to-date information on health and aging.

Thanks to all the Better Together partners, including Health In Aging Foundation, Canadian Foundation for Healthcare Improvement, New Yorkers for Patient and Family Empowerment, American Society for Healthcare Risk Management, American Association of Critical-Care Nurses, and the National Partnership for Women & Families.

Welcome To IPFCC’s Michal Rachlin

MichalIPFCC is delighted to welcome Michal Rachlin to the staff.

As Webinar Coordinator/Meeting Planning Specialist, Michal manages all technical aspects of the IPFCC's webinars and evaluations, and is part of the database team. Michal also assists in coordinating the marketing for  events and webinars, including developing IPFCC's social media presence as well as providing support in meeting logistics.

Michal brings expertise in educational programming design, implementation, and coordination. She also has experience in marketing, webinars, writing, and social media. Michal graduated from Towson University (BS in sociology-anthropology), and George Washington University (MAT in museum education).

In her free time, Michal enjoys volunteering, gardening, cooking, reading, and photography. She also likes to try new sports activities.

We are happy to have Michal on the IPFCC team.

IPFCC Seeking Information on Peer-to-Peer Programs

IPFCC is seeking examples of exemplary AND emerging peer-to-peer programs in hospitals and outpatient settings across the United States and Canada. If you are currently involved with or conducting ANY peer-to-peer activities and want your program to be considered for inclusion in a new section of the IPFCC website which will highlight peer-to-peer programs, please contact Nancy DiVenere or Joanna Kaufman.

In This Issue


  • News about the Cambridge Seminar ~ Guest Faculty Offer New Sessions; One-day Track for Partners Healthcare Residents, Fellows, and Other Trainees
  • Announcing Pinwheel Sponsor Scholarship for Cambridge Seminar
  • Caregiver Action Network Announces Top Programs in Patient and Family Engagement
  • Patient- and Family-Centered Care and the Patient Experience in Medical Education
  • Health in Aging Foundation Joins with IPFCC in the Better Together: Partnering with Families Campaign
  • Welcome To IPFCC’s Michal Rachlin
  • IPFCC Seeking Information on Peer-to-Peer Programs
  • Congratulations to Debra Ness ~ Recipient of the PCPCC’s Barbara Starfield Award
  • 2014 Patient-Centered Cancer Care Design Winners Announced
  • PFCC News from Australia
  • October is Patient-Centered Awareness Month
  • October is Health Literacy Month

Congratulations to Debra Ness ~ Recipient of the PCPCC’s Barbara Starfield Award

PCPCC logo

Debra L. Ness

Congratulations to
Debra L. Ness, MS, President of the National Partnership for Women & Families, who will receive the Patient-Centered Primary Care Collaborative’s (PCPCC) Barbara Starfield Award* at PCPCC’s Annual Fall Conference, in November 2014, for her long-standing commitment to person-centered care. According to PCPCC, "Ness has been a leading advocate for social justice and equality for women, patients, families, and consumers within the health care arena. Her dedication as an advocate for the health and well-being of women and families continues to influence innovations in care delivery that improve health care for vulnerable populations."

Tickets to the November 12, 2014 awards dinner are available for $100. For more information, contact Staci GoldbergBelle at PCPCC.

*Barbara Starfield Award honors the work of Dr. Starfield, and recognizes "her enduring commitment to the ph
ilosophy that all individuals should receive comprehensive, coordinated, and person–focused care. The award is presented annually to an individual or organization that demonstrates exceptional work toward advancing the goals of primary care and, in particular, a strong commitment to person-focused care."

2014 Patient-Centered Cancer Care Design Winners Announced
PCCCD logo

The Institute for Patient-Centered Design, Inc.,* is pleased to announce the top three winning submissions in the 2014 Family Centered Cancer Care Design Competition. The three winning teams—ERDMAN, Madison, Wisconsin; RS&H, Inc., Jacksonville, Florida; and DesignGroup, Columbus, Ohio—will receive their awards and present their designs at the 2014 Healthcare Design Conference in November. Conference participants will have the opportunity to vote for their favorite project. The final model will be developed working with the winning team, built and presented as the Patient Experience Simulation Lab for the 2015 Healthcare Design Conference.

Learn more about the principles that the Institute for Patient-Centered Design, Inc. applies to health facility design.

Read the letter from Dr. Rozanne Hug Willie that inspired this year's design competition. Roz tells her family’s story of their hospital experiences with their son, Hendrix, who was diagnosed with an aggressive form of leukemia, and provides inspiration for design improvements to help others who face similar situations.

*The Institute for Patient-Centered Design, Inc., is comprised of "patients, healthcare professionals, and design professionals dedicated to improving the healthcare environment through advocacy and education," and was "founded by patients and design professionals with the purpose of giving patients a voice in the development of the healing environment."

PFCC News from Australia

Susan Biggar's Memoir Published


The Upside of Down – A Memoir is, according to the author, Susan Biggar, a personal account about "... living well with illness across a mixed bag of countries [including the United States, New Zealand, France and Australia] and health care cultures …" Susan, American born, is the mother of three sons, two of whom live with Cystic Fibrosis. According to Susan, "Health professionals try to understand what it’s like for the patient, but it’s pretty hard when you’ve been trained as a medical practitioner, you see health through your own lens."

Susan is "passionate about improving the health care experience through collaboration between patients, families, and staff."  Her book describes the ups and downs of various health systems across the world and focuses on her family's personal journey to forge true partnerships with health care providers. While Susan is not medically trained, she says, "I'm trained as a family member—I've had 20 years of experience."

Among her many roles, Susan is Senior Manager for Consumer Partnerships at the Health Issues Center. She is also a board member of the Australian Institute for Patient and Family Centred Care (AIPFCC), which is a "not-for-profit organisation
 comprising patients, family members and healthcare professionals" with a "vision is to transform the quality and safety of Australian healthcare by developing effective and innovative
partnerships between patients, families and healthcare professionals."

Read more about Susan Biggar and her book, The Upside of Down.


Dr. Catherine Crock Wins APRA/AMCOS Art Music Award for The Hush Collection

AMAward logo2014

Dr. Catherine Crock, Executive Director of the Australian Institute for Patient and Family Centred Care (AIPFCC), received the Australia Performing Right Association (APRA) and the Australian Music Centre (AMC) 2014 Art Music Award for Excellence by an Individual for The Hush Collection, Volumes 1-13, in recognition of her support of Australian composers to create new works designed to help children and their parents during medical procedures. The music included in the collection is designed to reduce stress and can be enjoyed by individuals of any age. Volume 14 will be released in December.

Learn more about Catherine Crock and the Hush Music Foundation.

October is Patient-Centered Awareness Month


This October, hospitals and health care organizations around the world commemorate the 8th annual Patient-Centered Care Awareness Month. This year’s theme is Patients as Our MVPs: Most Valuable Partners.


Previous Issues​

About Us

Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.

♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦


October is Health Literacy Month

   October is designated as Health Literacy Month. Health literacy—the ability to understand basic health information—has an important impact on health. Learn more about health literacy and get ideas for how to raise awareness. 


  ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦ ♦

Better Together logo
Learn more about IPFCC's campaign
to change the concept of families as "visitors"
to families as partners.

Institute for Patient- and Family-Centered Care
6917 Arlington Road, Suite 309 • Bethesda, MD 20814