February 2015
Issue 77
Email IPFCC at institute@ipfcc.org   www.twitter.com/IPFCC   www.facebook.com/IPFCC   https://www.linkedin.com/company/institute-for-patient--and-family-centered-care   www.instagram.com/IPFCC

IPFCC's Spring Seminar in Memphis ~ Special Guest Faculty Member, Antony Sheehan                  

logoMLHIPFCC’s Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety ~ An Intensive Training Seminar, will be held in Memphis, TN, March 30-April 1, 2015, with leadership support from Methodist Le Bonheur Healthcare.

Antony Sheehan Join us to hear special guest faculty member, Antony Sheehan, who will speak about his experiences as a leader serving diverse communities.

Antony Sheehan, President of the Church Health Center, the largest faith-based community health center in the US, recently authored an article in the January 2014 issue of the International Journal of Leadership in Public Services, that describes his leadership journey. Antony is a nurse by education and training, and has worked in clinical practice, education, and health care management for more than 25 years. He was an Institute for Healthcare Improvement (IHI) Fellow during 2011-2012. Prior to coming to the US, he was the CEO of one of England’s largest Community Health Services providing mental health, learning disability, and primary care services. His experience includes leadership in areas of policy for mental health, maternity and families, children’s health care, health care in the criminal justice system, and eldercare. 

In his article, Antony describes three essentials of his style of leadership:

  • Liberating talent: “...When people have their say and feel they are part of an organization, rather than its pawns, talent blooms down every hallway...”
  • Profound belief in knowledge: “…everyone has life experience knowledge, and a healthy organization is a respectful, welcoming place where sharing knowledge creates even greater connectedness…. Open[ing] the way for people working in teams to innovate and test new approaches...”
  • The principle of purpose beyond self: “…helping people feel part of something greater than depositing a paycheck twice a month unquestionably leads to creativity, productivity, and inspiration to excellence.”

According to Antony, all three “can be mediated through respect….Leaders can liberate talent, share knowledge, and inspire purpose through relationships of respect."

To learn more about Church Health Center, read the article co-authored by Antony: Health Care, the Whole Person, and Community Engagement: Church Health Center of Memphis, Tennessee, Sheehan A, Bisognano M, Waller R.,  Cambridge, Massachusetts: Institute for Healthcare Improvement; October 2014.

brochure-memphis15Join us in Memphis, March 30-April 1, and learn from this extraordinary leader and all of the IPFCC seminar faculty as you work to promote the health of populations, enhance wellness, and create partnerships with the individuals, families, and communities you serve.

Continuing education credits 
are available.

Learn more about the seminar.

Download the Brochure.

Register today. 

Special Group Rate for Hotel Rooms Through February 26, 2015!

The Peabody Memphis Hotel is holding a limited number of hotel rooms at a special group rate until February 26, 2015. To make your hotel reservations, call (800) 732-2639 or go to the hotel’s reservation site.  

Pinwheel Sponsors Scholarship Opportunity to Attend IPFCC Memphis Seminar—Deadline Extended to February 26, 2015

Extended! Pinwheel Sponsors sending a team to the Moving Forward with Patient- and Family-Centered Care ~ Partnerships for Quality and Safety Intensive Training Seminar, in Memphis, TN, March 30-April 1, 2015, now have until February 26, 2015, to submit your organization's name to Ann Selinger for the scholarship drawing. One lucky Pinwheel Sponsor organization will receive one paid seminar registration to send an additional team member to the seminar.

Learn more about the Pinwheel Sponsorship Program, and all the additional benefits.

See you in Memphis!

Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations

Top Individual-Engagement-headerIndividual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations (2014), is an issue brief sponsored by the Robert Wood Johnson Foundation's State Quality and Value Strategies* program. Authored by IPFCC’s Mary M. Minniti, Marie R. Abraham, and Beverley H. Johnson, the brief outlines best practices and suggests recommendations and strategies to support enhanced individual and family engagement efforts by Medicaid agencies, their staff, and organizations serving these populations. In developing this issue brief, IPFCC conducted a targeted literature review and a series of in-depth interviews. Over 50 individuals across the nation were interviewed, including policy specialists, health care providers, engagement experts, and individuals and family members receiving Medicaid support. A small steering committee representing these perspectives helped guide the development of the report.

Research shows that engaged individuals and families actively working with their health care teams have better outcomes, often choose less expensive options when participating in shared decision-making, and express greater satisfaction with their health care experiences.

The report makes “practical, action-oriented recommendations…within four broad categories…” including:

  • Advance individual and family engagement best practices as a strategic priority within the Medicaid agency;
  • Expand opportunities for individuals and families to engage with Medicaid staff and managed care entities to influence policies, programs, and practices;
  • Support direct care service providers in acquiring the knowledge and skills to develop effective partnerships with individuals and families; and 
  • Encourage and support individuals and families in engaging more fully in their health and with their health care team.

Read the report for more detailed information on its recommendations.

IPFCC is making available additional material generated by this collaborative projecta summary of the methodology, an annotated bibliography, recommendations resulting from interviews, and other resources. Check out the new IPFCC Special Topic section: Engagement Strategies for the Medicaid Population on the IPFCC website.

State Health and Value Strategies—directed by Heather Howard at the Woodrow Wilson School of Public and International Affairs at Princeton University and funded by Robert Wood Johnson Foundation—provides technical assistance to support state efforts to enhance the value of health care by improving population health and reforming the delivery of health care services.

American Academy of Pediatrics: Patient- and Family-Centered Care of Children in the Emergency Department

AAP logoThe American Academy of Pediatrics, published online its revised technical report, Patient- and Family-Centered Care of Children in the Emergency Department (December 29, 2014). This report “draws on previously published policy statements and reports, reviews the current literature, and describes the present state of practice and research regarding patient- and family-centered care for children in the emergency department [ED] setting as well as some of the complexities of providing such care.” The AAP notes that this report is consistent with and is “intended to supplement the joint policy statement of the American Academy of Pediatrics (AAP) and American College of Emergency Physicians, [citation omitted] which was reaffirmed in October 2011."

The report states, “Patient- and family-centered care (PFCC) is an approach to the planning, delivery, and evaluation of health care that is grounded in a mutually beneficial partnership among patients, families, and health care professionals [citing IPFCC]." In addition to the rich discussion of patient- and family-centered care in the ED, the report includes resources for PFCC in appendices, including potential solutions for common challenges to providing PFCC faced in the ED, an outline for a protocol for family member presence (FMP) during invasive procedures, and resources for promoting institutional change.

The report addresses many aspects of PFCC, including the importance of:

  • Supporting family member presence;
  • Addressing issues of health literacy, and the need for culturally effective and timely professional interpreter services;
  • The development, with the collaboration of patients and families, of institutional policies for the provision of PFCC through environmental design, practice, and staffing; and
  • The teaching of principles of PFCC as part of the education of ED health care professionals, with active participation by patients and families in formal medical education.

Read the entire report….

Celebrate the National Patient Safety Foundation’s Patient Safety Awareness Week: March 8-14, 2015

PSAW2015The National Patient Safety Foundation (NPSF) is celebrating Patient Safety Awareness Week (PSAW) March 8-14. The 2015 theme is United in Safety. Patient Safety Awareness Week is an annual education and awareness campaign for health care safety.

According to NPSF, “Everyone in the health care process plays a role in delivering safe care and by uniting together and sharing that common goal, we can make a difference in patient safety. From patients to care providers, from the front lines to the executive suite, from the patient and family advocate to the corporate solutions provider—we are all united in the goal of keeping patients and those who care for them free from harm. The focus of this campaign is patient engagement and emphasizes the importance of the relationship between providers and patients and their families. Enhanced communication begins with an informed and engaged patient and helps to lead to safer care.”

This year, NPSF is partnering with “expert organizations in the field to develop and disseminate educational materials for clinicians, health systems, and patients and consumers specifically related to better understanding how patients and providers can enhance communication, which can increase engagement.” IPFCC is proud to be one of the PSAW partners, along with the Gordon and Betty Moore Foundation. See other partners

A complimentary webcast on patient engagement will be offered during Patient Safety Awareness Week. Details and registration will be available soon. Learn more… 

The DAISY Foundation Joins with IPFCC in the Better Together: Partnering with Families Campaign

Daisy FoundationIPFCC welcomes The DAISY Foundation as the newest partner in IPFCC’s Better Together: Partnering with Families Campaign, which calls on all hospitals to eliminate restrictive visiting policies and welcome families 24 hours a day. IPFCC is committed to changing policies in 1,000 hospitals by 2017.

The DAISY Foundation was created in 1999 in memory of the extraordinary nursing care provided to Patrick Barnes during his hospitalization for idiopathic thrombocytopenia purpura. The care Patrick and his family received from Pat's nurses compelled them to say "thank you" for the compassionate and skillful care nurses provide every day.
They established The DAISY Award™ for Extraordinary Nurses that celebrates the best of patient- and family-centered care. This award has evolved over the years to play a strategic role in health care organizations. DAISY's programs are highly respected by the nursing profession as providing unique, meaningful, and impactful recognition that benefits nurses and their employers.

Today, over 1,800 healthcare facilities internationally are committed to honoring their nurses with The DAISY Award for Extraordinary Nurses. To date, 45,000 nurses have been honored and more than 425,000 nurses nominated.

The DAISY Foundation joins the other Better Together partners, American Society for Healthcare Risk Management, American Association of Critical-Care Nurses, Health In Aging Foundation, Canadian Foundation for Healthcare Improvement, the National Partnership for Women & Families, and New Yorkers for Patient and Family Empowerment. Thanks for your partnership.

Learn more about Better Together, and how you can get

Tools for Engaging Patients in Quality Improvement ~ AF4Q Webinar


The Aligning Forces for Quality (AF4Q) is hosting a free webinar, Tools for Engaging Patients in Quality Improvement, on Wednesday, March 25, 1:00-2:00 PM ET, that will highlight the Patient Engagement Toolkit. Provider, patient, and program representatives from AF4Q communities will introduce the toolkit materials.

The webinar is intended for medical providers and staff, representatives of regional health improvement collaboratives, patients, and health care consumer advocates—anyone interested in learning how patients and providers can partner to improve care.

Register for this free event.


In This Issue


  • IPFCC's Spring Seminar in Memphis ~ Special Guest Faculty Member, Antony Sheehan
  • Pinwheel Sponsors Scholarship Opportunity to Attend IPFCC Memphis Seminar—Deadline Extended to February 26, 2015

  • Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations
  • American Academy of Pediatrics: Patient- and Family-Centered Care of Children in the Emergency Department
  • Celebrate the National Patient Safety Foundation’s Patient Safety Awareness Week: March 8-14, 2015
  • The DAISY Foundation Joins with IPFCC in the Better Together: Partnering with Families Campaign

  • Tools for Engaging Patients in Quality Improvement ~ AF4Q Webinar
  • Farewell and Best Wishes to the Amazing Joanna Kaufman
  • IPFCC’s March 2015 Webinars

  • Thanks to Our Pinwheel Sponsors ~ Still Time to Renew or Join

  • Participate in the 2015 State of Patient, Resident, and Family Experience Study 
  • Thanks to Boston Children’s Hospital and The Children’s Hospital of Philadelphia ~ 2015 Sponsors for the PFAC Network
  • IPFCC Seeks Recent Annual Reports from Patient and Family Advisory Councils (PFACs) 

Farewell and Best Wishes to the Amazing Joanna Kaufman

JoannaIPFCC wishes Joanna Kaufman all the best in her retirement!
Joanna’s career is legendary for her enthusiastic and high energy work to expand partnerships among health care professionals, patients, and families all across
North America, and internationally as well.

During her nine-year tenure at IPFCC, in addition to being a faculty member at seminars, conferences, and webinars, Joanna served as a Program/Information Specialist. Joanna provided training and technical assistance to hospitals and health systems nationwide. She took over the PFAC Network listserv, and grew it into the robust online forum it now is, serving more than 1100 members. Joanna was one of the primary architects for IPFCC’s Better Together Campaign and its resources, to change the restrictive “visiting” policies of hospitals to policies that welcome family presence 24 hours a day. Joanna also served as researcher, writer, and editor, and spear-headed efforts to expand the IPFCC website with multiple new sections. She was the co-founder, co-writer, and co-editor of the IPFCC’s electronic e-newsletter Pinwheel Pages. Joanna also served as a font of knowledge, answering countless inquiries from the public about IPFCC, PFACs, PFCC, and a myriad of other related topics. Joanna was always available as a resource, connecting people and projects all over the globe to advance the practice of patient- and family-centered care.

Joanna brought more than 25 years of experience in patient- and family-centered care to her tenure at IPFCC. Joanna is a registered nurse with more than a decade of pediatric clinical experience at Strong Memorial Hospital, Charity Hospital of New Orleans, and Johns Hopkins Hospital. Since then, Joanna has served in a variety of executive and consulting roles. As the Executive Director for the Coordinating Center, Inc., Joanna developed, founded, and managed a nationally recognized pediatric case management system. Prior to that, Joanna served as Executive Director of the United Cerebral Palsy of Maryland, Inc. In addition, Joanna has authored many articles in a variety of professional journals, given speeches, led workshops, and served as a grant reviewer and on editorial advisory boards, and as a board member for several organizations.

In her “retirement” Joanna will continue to serve as an advocate for patients and their families. She is a member of the Maryland Patient Safety Board, and plans to continue, as her retirement plans permit, as an advocate for patient- and family-centered care.

Joanna’s wealth of knowledge, intelligence, compassion, work (and play) ethic, wit, sense of fun, and unique presence will be sorely missed! The entire crew at IPFCC wishes Joanna all the best in this next phase of her life!

IPFCC's March Webinars 
IPFCC is offering two exciting Webinars in March. Please join us.
Keeping the Patient and Family in a Patient-Centered Medical Home Transformation
Wednesday, March 11, 2015

Listen to Mary Minniti, CPHQ, Program and Resource Specialist, IPFCC, and Bryant Campbell, patient and family advisor for Providence Medical Group in Portland, Oregon, as they share their experiences in advancing patient- and family-centered care in primary care settings.

Creating a Patient and Family Advisory Council
Wednesday, March 18, 2015

Julie Moretz, Vice Chancellor for Patient- and Family-Centered Care, University of Arkansas for Medical Sciences and Hollis Guill Ryan, Program Coordinator of Patient and Family Centered Care, University of Washington Medical Center, provide ideas, strategies, and tools to create advisory councils.

These webinars are a cost-effective educational resource. The cost is per line, and a group of any size may participate in the same room on one line. Handouts and supplemental resources are included with registration. Learn more about faculty, learning objectives, and Pinwheel Sponsor discounts.

Thanks to Our Pinwheel Sponsors ~ Still Time to Renew or Join 

Pinwheel logo smaller IPFCC appreciates the support of Pinwheel Sponsors for their commitment to advancing the understanding and practice of patient- and family-centered care. IPFCC is proud to have partnered with more than 82 Pinwheel Sponsors in 2014. These organizations demonstrate the importance of working with patients and families at all levels to deliver safe, efficient, and high-quality health care. By developing and applying best practices, Pinwheel Sponsors serve as role models to other health care organizations. Their commitment to partnerships, inspired by visionary leaders, is transforming the health care system.

A complete listing of current Pinwheel Sponsors can be found on the IPFCC website. Benefits to Pinwheel Sponsors include: the posting of the organization's logo and a link to its website; welcome packet with some of IPFCC's most popular publications and a commemorative plaque for display; 10% discount on IPFCC publications and videos; special registration discount for IPFCC conferences, seminars, and webinars; and the opportunity to participate in the Pinwheel Scholarship drawing for an additional complimentary seminar registration.

Now is a great time for organizations to become a Pinwheel Sponsor to receive recognition and the full benefits of participation. Please contact IPFCC or Ann Selinger to learn more about becoming a new IPFCC Pinwheel Sponsor
or to renew an existing sponsorship.

Participate in the 2015 State of Patient, Resident, and Family Experience Study
Beryl logoThe Beryl Institute and Catalyst Healthcare Research launched the third biennial study on the state of patient, resident, and family experience in health care globally. The study will “gather information about what hospitals, health systems, medical groups and long-term care organizations are doing to improve the health care experience.”

The confidential survey—open now through February 28—takes 10-15 minutes to complete. Please take the survey, and encourage others to do so as well. Also enter a drawing for a free Apple Watch and opt-in for the early release of the resulting research paper.

Thanks to Boston Children’s Hospital and The Children’s Hospital of Philadelphia ~ 2015 Sponsors for the PFAC Network
PFACnetworkIPFCC is thrilled to announce that Boston Children’s Hospital and The Children’s Hospital of Philadelphia generously have agreed to support funding of IPFCC’s PFAC Network for 2015, showing their commitment to patient- and family-centered care and authentic partnerships with patients and families.

PFAC Network—Patient and Family Advisors and Leaders Network—is an online forum for anyone interested in the work of patient and family advisory councils, and other collaborative efforts with patient and family advisors in all health care settings. Originally developed with the support of the Cincinnati Children’s Hospital, the PFAC Network, hosted by IPFCC since October 2010, is a lively forum that now includes more than 1100 members who participate in discussion forums, post member profiles, share documents, and more.

The PFAC Network is accessible from the Tools for Change section of the IPFCC website.

Please contact Ann Selinger if your organization would like to join as a sponsor of the PFAC Network. Listserv sponsors will receive international recognition, their organizational logo on the PFAC Network home page, along with all the associated benefits of IPFCC Pinwheel Sponsorship.


Previous Issues​

About Us

Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.

 IPFCC Seeks Recent Annual Reports from Patient and Family Advisory Councils (PFACs)

IPFCC has a website section devoted to Annual Reports of Patient and Family Advisory Councils and Committees (PFACs). In addition to describing what annual reports are and their benefits, IPFCC includes links to actual annual reports from a wide variety of organizations.

Please send IPFCC your latest annual report, to be posted on the IPFCC website. This provides a treasure trove of information on how PFACs can work, and on the wonderful progress that is being made to advance patient- and family-centered care! 

Institute for Patient- and Family-Centered Care
6917 Arlington Road, Suite 309 • Bethesda, MD 20814