June 2015
Issue 80
Email IPFCC at institute@ipfcc.org   www.twitter.com/IPFCC   www.facebook.com/IPFCC   https://www.linkedin.com/company/institute-for-patient--and-family-centered-care   www.instagram.com/IPFCC

Call for Abstracts
for The 7th International Conference on Patient- and Family-Centered Care ~ Submit Abstracts by July 31, 2015

abstract-brochure-nyIPFCC invites you to submit an abstract for The 7th International Conference on Patient- and Family-Centered Care: Partnerships in Care, Interprofessional Education, and Research. The abstract submission period runs through July 31, 2015.  

The conference will be held July 25-27, 2016, at the New York Marriott Marquis at Times Square in New York City. NYU Langone Medical Center Hassenfeld Children’s Hospital is providing leadership support for the International Conference. PCORI is providing program support for Partnerships in Research. 

The 7th International Conference on Patient- and Family-Centered Care will showcase innovative and exemplary programs that are dedicated to collaboration among health professionals, patients, families, and other care partners. The conference provides opportunities to address emerging issues in patient- and family-centered care at the direct care level as well as the organizational, community, regional, and national levels. 

Presentations accepted from IPFCC's Call for Abstracts will be included as concurrent/topical breakout sessions and poster presentations. In addition to these sessions, the conference will feature a variety of formal and informal meetings, including plenary sessions, and networking discussions.

Priority consideration will be given to submissions that highlight collaborative roles for patients, residents in long-term care communities, and families, in all aspects of a program, project, or initiative, and include them as abstract authors and presenters. In addition, abstracts will also be reviewed on the following criteria: consistent with patient- and family-centered core concepts, innovative, replicable, evidence-based, and effectiveness of proposed presentation or poster. Details about the review criteria and instructions for submitting an abstract are available on IPFCC’s website. See link below.

Plan to be part of this important International Conference! Join us in New York City to share your expertise and inspire others to advance patient- and family-centered care and create partnerships that will bring about sustainable improvements in health care quality and safety.

Learn more about the abstract submission process.

Call for Abstracts Brochure

Abstract Deadline: July 31, 2015.

IPFCC’s Fall Seminar in Tampa, Florida  ~ Mark Your Calendar: November 2-4, 2015

TampaHotelExterior 3IPFCC’s Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety ~ An Intensive Training Seminar will be held at the Hilton Tampa Downtown, in Tampa, Florida, November 2-4, 2015. Moffitt Cancer Center is providing leadership support to bring the seminar to Tampa.

Authentic partnerships with patients and families are essential as hospitals, health systems, primary care practices, and community organizations seek to improve the patient experience, the health of populations, and the cost of care. Past participants have described this seminar as “life changing.”

Watch the video reflections of a team from Vermont that attended the 2014 fall seminar.

What Makes This Seminar So Unique?

  • Faculty team of more than 20 experts in patient- and family-centered care—administrative leaders, nurses, physicians, staff, and patient and family leaders.
  • Faculty review of pre-seminar personal learning goals.
  • Three days of intensive training including over 50 sessions to tailor the program to meet your specific needs and interests.
  • Faculty-led small group discussion time each day and assistance in creating an effective Action Plan, individualized for your organization.
  • Flash drive containing over 200 practical tools—a comprehensive collection of resources for use in strategic planning; presentations, orientation, other educational sessions; and evaluation.

Continuing education credits are available.
 A tour of Moffitt Cancer Center facilities will be offered Tuesday, November 3, 2015 at 3:30 pm. Space is limited; registration required.

The Hilton Tampa Downtown is holding a limited number of hotel rooms at a special group rate until September 2,
 2015. To make your hotel reservations, call 1.813.204.3000 and indicate that you are with the IPFCC Seminar, or go to the hotel’s reservation site.

Tampa Seminar Brochure and Registration coming soon.

Learn more about IPFCC seminars

Physician Advocates for Eliminating Restrictive Visitation Policies in ICUs

the BMJDr. Samuel Brown’s Personal ViewWe Still Lack Patient Centered Visitation In Intensive Care Units, published February 11, 2015 in BMJ 2015;350:h792 doi: 10.1136/bmj.h792, tells the heart-wrenching story of when Tom, a family friend, suffered sudden cardiac arrest, Tom’s family and loved ones were restricted from being with him during the last three days of his life—due to ICU “visitation” policies.

Using adjectives like “obsolete” and “cruel and unnecessary,” Dr. Brown expresses his own anger, and reports on the adverse effects of such a restriction not only for Tom, but also for Tom’s family “possibly for years to come.” He also cites literature showing that such restrictive “visiting” policies contribute to post-intensive care syndrome among family members, including anxiety and post-traumatic stress disorder. Dr. Brown reflects that welcoming family partners in his ICU has improved his own clinical experience, and notes, “We cannot coherently advocate engagement while employing clinician centered visitation.” In discussing solutions, he states, “…decisions belong primarily in the hands of patients and families: any restrictions must arise from them.”

As noted in a response to the article by Bev Johnson,  
IPFCC President, and Deborah Dokken, IPFCC Family Consultant, IPFCC endorses the elimination of restrictive “visiting” policies. Its campaign, Better Together: Partnering with Families, in the U.S. and Canada, urges hospitals to welcome families as members of care teams 24/7, according to patient preference. The goal of the campaign is to change visiting policies in 1000 hospitals by 2017. See related article below.

Better Together Campaign Welcomes UAB as an Exemplar Hospital

Better Together logo

IPFCC welcomes UAB Hospital to the roster of Better Together exemplars that successfully have changed "visiting" policies to family presence policies. The exemplar hospitals are models for IPFCC’s Better Together: Partnering with Families campaign, which calls upon all hospitals to welcome families 24 hours a day, embracing the idea that patients' family members and loved ones are included in care and decision-making according to patient preferences.

IPFCC's Better Together campaign equips hospital leaders with the rationale, tools (such as a self-assessment, sample policies, and profiles of hospitals), and other support needed to change visiting policies. Read more about the free Toolkit, IPFCC’s Better Together campaign, its campaign partners, and exemplar hospitals.

New HRET Guide on Partnering with Patients and Families to Improve Quality and Safety

frameworkThe Symposium for Leaders in Healthcare Quality developed AHA’s Health Research & Educational Trust (HRET) new guide, 
Partnering to Improve Quality and Patient Safety: A Framework for Working with Patient and Family Advisors. This document provides guidance “to help hospitals and care systems build and sustain partnerships with patient and family advisors, specifically to improve quality and safety.” Examples include “partnering with patient and family advisors on advisory councils, hospital committees, and collaborative projects to improve quality and safety.” 

Included are five steps to “kick-start efforts toward engaging patients as advisors” which include:

  • Recruitment of patients and family members as advisors;
  • Preparation, including education and training of advisors;
  • Creation of and fostering a culture of engagement;
  • Implementation of quality improvement initiatives and measurement of their impact; and
  • Sustaining the effort by “maintaining open channels of communication, updating advisors on progress, and sharing opportunities on future projects in which they might participate.”

The guide has more detailed information about each of these steps.

Several IPFCC materials are among the additional resources included in the guide for increasing “patient and family engagement, building patient and family advisory councils, and working with patient and family advisors.” The guide also has interviews, which provide the perspective of both a patient advisor and a hospital leader, on partnering with patient and family advisors.

Learn more at Health Research & Educational Trust. (2015, March). Partnering to improve quality and safety: A framework for working with patient and family advisors. Chicago, IL: Health Research & Educational Trust. Accessed at www.hpoe.org

Newly Released Framework for Integrating Oral Health in Primary Care Recommends Partnering with Patients and Families

Dental White PaperQualis Health published a white paper, Oral Health: An Essential Component of Primary Care, which presents the case for delivering preventive oral health care as a component of routine medical care and enhancing partnerships between primary care and dentistry. This paper provides "practical activities for primary care teams to reduce the burden of oral disease and improve overall health for patients and families.” Implementation advice and tips for primary care practices include partnering “with patients and families to plan your program” and engaging patients and families in self-care. In addition, the section on quality improvement includes the importance of metrics, including those that measure the patient experience.

The National Interprofessional Initiative on Oral Health sponsored this project with support from the DentaQuest Foundation, the REACH Healthcare Foundation, and the Washington Dental Service Foundation. IPFCC’s Senior Policy and Program Specialist, Mary Minniti, served on the technical expert panel.

Learn more. 

The AHA-McKesson Quest for Quality Prize

2016 Call For Nominations 

The AHA-McKesson Quest for Quality Prize 2016 Call For Nominations is announced and the application is now available.

Learn more at: 
The AHA-McKesson Quest for Quality Prize


In This Issue
  • Call for Abstracts for The 7th International Conference on Patient- and Family-Centered Care ~ Submit Abstracts by July 31, 2015 
  • IPFCC’s Fall Seminar in Tampa, Florida ~ Mark Your Calendar: November 2-4, 2015
  • Physician Advocates for Eliminating Restrictive Visitation Policies in ICUs
  • Better Together Campaign Welcomes UAB as an Exemplar Hospital
  • New HRET Guide on Partnering with Patients and Families to Improve Quality and Safety
  • Newly Released Framework for Integrating Oral Health in Primary Care Recommends Partnering with Patients and Families
  • The AHA-McKesson Quest for Quality Prize 2016 Call For Nominations
  • IPFCC Summer Webinars 
  • Recommendations from the Conference on Advancing Compassionate, Person- and Family-Centered Care Through Interprofessional Education for Collaborative Practice
  • IPFCC Pinwheel Sponsors Named to Honor Roll of Best Children’s Hospitals
  • Congratulations to Dr. Catherine Crock, Member of the Order of Australia

IPFCC Summer Webinars

IPFCC is offering several new Webinars this summer.

Taught by experts in the field, webinars provide information to help you and your organization effectively implement and advance patient- and family-centered care.

Applying Patient- and Family-Centered Concepts to Design and Design Planning for Renovation and New Construction Projects
Tuesday, June 30, 2015

Join in the conversation with Beverley H. Johnson, IPFCC President and CEO, about how to partner with patients and families, front-line staff, and leaders in design planning, and in all phases of the process of construction and the “move in.”

The Role of the Security Department in Patient- and 
Family-Centered Care

Wednesday, July 15, 2015

IPFCC Faculty member, Perry Spencer, MS, CPP, CHPA, Interim Director, Health System and Hospitals Security, University of Michigan–Division of Public Safety and Security, will discuss how the security services directors, managers, and staff at the University of Michigan Hospitals & Health Centers have been key partners in advancing patient- and family-centered care.

Being a Patient and Family Advisor ~ Stories and Strategies for Successful Collaboration
Registration Coming Soon
Tuesday, July 21, 2015

Join Kelly Parent, IPFCC Program Specialist for Patient and Family Partnerships, and Patient- and Family-Centered Care Program Manager and Family Leader,
University of Michigan Health System, as she reflects on a decade of experience and shares strategies for successful and rewarding advisor participation.

Building Community ~ Involving Individuals and Families on Medicaid as Partners in Health Care Improvement
Registration Coming Soon
Wednesday, August 5, 2015

Join Mary Minniti, CPHQ, Program and Resource Specialist, IPFCC, as she shares emerging best practices and recommendations for engaging individuals and families on Medicaid as partners in their own health care and in health care transformation within health care organizations and across the community.

IPFCC’s webinars are a cost-effective educational resource. Cost is per line, so a group of any size is welcome to participate in the same room on one line. Handouts and supplemental resources are included with registration. 

Learn more about webinar faculty, learning objectives, and Pinwheel Sponsor discounts.

Recommendations from the Conference on Advancing Compassionate, Person- and Family-Centered Care Through Interprofessional Education for Collaborative Practice 2015

The Schwartz Center for Compassionate Healthcare, The Arnold P. Gold Foundation, and its academic partner, The Bucksbaum Institute for Clinical Excellence, with support from the Josiah Macy Jr. Foundation, held an invitational conference in Atlanta, Georgia, from October 30 to November 1, 2014. For more on this conference, see the article in Issue 75 of Pinwheel Pages, November/December 2014.

In March 2015, the hosting organizations posted a report that summarizes and provides details about recommendations formulated by the conference participants to advance "The Triple C"—Compassionate, Collaborative Care.

In summary, the Report recommends:

  • “Involve patients and families as partners in health professional education, their own care, and in co-designing healthcare delivery;
  • Educate patients, families, professionals, and staff about the importance of ‘The Triple C’ and align salient competencies with existing education, assessment, and standards; 
  • Conduct research to measure ‘The Triple C’ at all levels (individuals, teams and organizations) and to study its outcomes;
  • Incentivize and reward ‘The Triple C.’“

Read the full report to learn more.

IPFCC Pinwheel Sponsors Named to Honor Roll of Best Children’s Hospitals

Congratulations to eight of our Pinwheel Sponsors who are on the just released U.S. News & World Report's 2015-2016 Honor Roll of the twelve Best Children’s Hospitals. 
badge-best-ped-hospitals-wm-87Of 184 pediatric centers surveyed, 83 hospitals ranked among the top 50 in at least one of the ten pediatric specialties. The twelve members of the 2015-2016 Honor Roll of the Best Children’s Hospitals ranked with high scores in at least three specialties. 

IPFCC is proud to have eight of the twelve as Pinwheel Sponsors:

  • Boston Children’s Hospital
  • The Children’s Hospital of Philadelphia
  • Cincinnati Children’s Hospital Medical Center
  • Texas Children’s Hospital, Houston
  • Seattle Children’s Hospital
  • Children’s Hospital Los Angeles 
  • Nationwide Children’s Hospital, Columbus
  • Ann and Robert H. Lurie Children’s Hospital of Chicago  

Congratulations to all who are honored and thanks to all our Pinwheel Sponsors for their continued support!

Learn more about Pinwheel Sponsors.

Congratulations to Dr. Catherine Crock, Member of the Order of Australia

Congratulations to Dr. Catherine Crock, on being made a Member of the Order of Australia in the annual Queen’s Birthday 2015 Honours List, for her significant service to medicine.

”Catherine is a visionary leader in patient and family centred care and recognizing the powerful role that arts can play in health.” ~ Barbara Yeoh, Chair, Monash Health.

Learn more about Catherine Crock


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About Us

Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.

Institute for Patient- and Family-Centered Care
6917 Arlington Road, Suite 309 • Bethesda, MD 20814