August 2015
Issue 82
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Early Bird Discount Available Through September 18th for IPFCC’s Fall Intensive Training Seminar in Tampa, Florida

Take advantage of early bird pricing through September 18, 2015 for IPFCC’s Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety ~ An Intensive Training Seminar at the Hilton Tampa Downtown, in Tampa, Florida, November 2-4, 2015.

More information is in the Seminar Brochure. 

Tampa Seminar will Feature Seek and Speak Your Story and Hospital Tour

Story to tellAttendees at IPFCC's Seminar will enjoy the Celebratory Dinner, Tuesday, November 3, which is included at no extra charge for seminar registrants. This fun event will include Moffitt Cancer Center’s exciting, inspiring, and entertaining program, Seek and Speak Your Story. The program, developed by PowerStories Theater—an organization recognized at the White House for its work with personal stories—demonstrates that powerful connections begin with a story helping patients and families feel valued, validated, alive, and connected! The Celebratory Dinner also provides an opportunity for attendees to network and share their accomplishments with other seminar attendees. It promises to be a great evening.

Moffitt Cancer Center will be offering a special tour on Tuesday, November 3. Pre-registration is required as space is limited. The tour will include the Patient Library and Welcome Center, a hub for information, support, and hospitality; the Arts in Medicine Studio; the Center for Women’s Oncology; the Swim Across America Adolescent and Young Adult (AYA) Lounge, and a Blood and Marrow Transplantation (BMT) inpatient room. The tour guides will be patient and family advisors who will share information about their work, and the work of Moffitt’s Patient and Family Advisory Council.

Thanks to
Moffitt Cancer Center for providing leadership support to bring the seminar to Tampa, Florida, and to the other hospitals in the coalition for providing program support.


Other Tampa Sponsors

The Hilton Tampa Downtown is holding a limited number of hotel rooms at a special group rate until October 1, 2015. 

IPFCC anticipates that this seminar will sell out, so take 
advantage of the Early Bird pricing through September 18, 2015.

Register Now 

AHRQ Health Care Innovations Exchange 
Profiles Children’s Mercy Hospital's Commitment to Patient- and Family-Centered Care

small AHRQIE

Children’s Mercy Hospital,
an IPFCC Pinwheel Sponsor is profiled in the AHRQ Health Care Innovations Exchange, describing how the creation of a new paid position, the Family-Centered Care (FCC) Coordinator, ensured that the voices of patients and families were heard throughout the organization as well as promoting patient- and family-centered care.

The work of these FCC coordinators led to an eightfold increase in the number of patient and family advisors available to participate on hospital initiatives, which “resulted in a greater ability to elicit and address the needs of parents and families and has increased satisfaction among both parents and staff.”

The hospital has two full-time FCC coordinators who spend their time on the following major activities:

  • Real-time interviews to elicit patient/family perspective;
  • Hospital-wide committees and task forces;
  • Management and oversight of family advisory boards;
  • Patient and Family Advisory (PFA) recruitment, training, and oversight;
  • Education and support for parents, families; and
  • Staff education and training.

Results reported include:

  • Eightfold increase in PFAs actively participating on committees;
  • Committee-led improvements that have increased parent and staff satisfaction; 
  • More satisfied parents in nephrology clinic;
  • Higher parent satisfaction with delivery of follow-up laboratory results;
  • High staff satisfaction with parental involvement; and
  • High staff satisfaction with new employee orientation.

Read the entire post to learn more. 

Children's Mercy KC

Watch a video
describing Children’s Mercy’s commitment to making parents and families part of the care team. 

Learn more about patient- and family-centered care at Children’s Mercy Hospitals and Clinics featured in IPFCC’s Profiles of Change.

Read the New Profile of Change for Vidant Health  


Vidant Health
is committed to advance the practice of patient- and family-centered care. Vidant Health—a comprehensive coordinated health system-serves 1.4 million people in a 29-county region of eastern North Carolina. 

In 2009, Vidant Health established a Corporate Office of Patient-Family Experience to guide the spread of patient- and family-centered care cultural transformation across the entire health system, while respecting each Vidant Health entity's local culture and community. Speakers from the Institute for Patient- and Family-Centered Care (IPFCC) and the Institute for Healthcare Improvement (IHI) pro
vided educational opportunities and conducted a system-wide assessment of current and desired states of patient-family engagement.   

Vidant Reviewed by Ps and FsNow, across Vidant Health’s care system, patient and family advisors partner with leaders, physicians, and front line staff on quality, safety, and patient experience teams. Advisors serve on performance improvement teams, make safety rounds, serve as faculty in education programs, interview applicants for key positions, serve on population health work groups, assist in facilities design and development, and develop and edit patient education materials. Patient-family advisors are embedded in every Vidant Health entity including hospitals, home health and hospice, ambulatory surgery center and physician practices and are engaged in the work of key committees at the entity and corporate levels to advance the quality agenda. 

In addition to engaging patient-family advisors on organizational decision-making teams, Vidant Health employs multiple strategies to advance patient- and family-centered care. Examples of some of its recent successes include:

  • Development of the Patient Engagement and Care Coordination Model—created and developed by patient-family advisors in collaboration with staff from various departments, including quality, nursing, and patient experience, as well as with physician leaders.  
  • The strategic use of storytelling, including during staff and leadership meetings, making an annual Experience of Care video, and the authorship of Connections, a collections of stories inspired by care experiences and modeled after Privileged Presence by IPFCC's Bev Johnson and Liz Crocker.
  • Partnerships with patients and families at the bedside, using various strategies including hourly rounding, bedside shift report, physician and nursing leader rounds, and patient-family advisor rounds.

Read IPFCC’s updated Vidant Health Profile of Change to learn more about the history of Vidant Health’s journey, and more about its current strategies and successes.

NCQA PCMH Designation ~ Congratulations to 
Children’s Specialized Hospital

logo-childerns-specialized-hospitalPediatric Primary Care at Children’s Specialized Hospital, IPFCC Pinwheel Sponsor, is the first pediatric practice in New Jersey to receive a Patient-Centered Medical Home (PCMH) designation by the National Committee for Quality Assurance (NCQA), specifically for caring for children with special health care needs. NCQA is the most widely adopted model for recognizing PCMH standards. Read more...

Read IPFCC's profile of Children's Specialized Hospital and learn more about IPFCC's Pinwheel Sponsor Program.

IPFCC’s Faculty Member, Deborah Dokken, Will Share Her Personal Stories on Coordination of Care

tmb-deborah-dokken1During the webinar, 
Coordination of Care – a Caregiver’s Perspective, Thursday, September 10, 2015 at 1 – 2 pm EDT, IPFCC’s consultant and faculty member, Deborah Dokken, MPA, will share stories as a mother, wife, and daughter who has served as her family’s caregiver and advocate. Deborah will discuss strategies to improve communications and transitions in care. Registration is required for this free webinar, offered by PerfectServe, a company that provides a “communications platform that connects clinicians in any care setting, across the care continuum…” to minimize communications breakdowns. 

In This Issue
  • Early Bird Discount Available Through September 18th for IPFCC’s Fall Intensive Training Seminar in Tampa, Florida
  • Tampa Seminar to Feature Seek and Speak Your Story and Hospital Tour
  • AHRQ Health Care Innovations Exchange Profiles Children’s Mercy Hospital's Commitment to Patient- and Family-Centered Care
  • Read the New Profile of Change for Vidant Health
  • NCQA PCMH Designation ~ Congratulations to
    Children’s Specialized Hospital
  • IPFCC’s Faculty Member, Deborah Dokken, Will Share Her Personal Stories on Coordination of Care
  • Excitement is Building ~ IPFCC Receives Amazing Response to the Call for Abstracts for The 7th International Conference
  • IPFCC Fall Webinars 
  • New Resources Added to IPFCC’s Website on Engagement Strategies for the Medicaid Population
  • Five IPFCC Pinwheel Sponsors Named to Honor Roll of Best Hospitals 

Excitement is Building ~
IPFCC Receives Amazing Response to the Call for Abstracts for The 7th International Conference 

Thanks to all who responded to IPFCC's Call for Abstracts for 
The 7th International Conference on Patient- and Family-Centered Care to be held in New York City, July 25-27, 2016. IPFCC had a record number of abstracts submitted!

Each abstract will be reviewed and scored by experts on the Abstract Review Committee. This review will take several months and IPFCC will notify all who submitted about decisions in early December 2015.

Save the date! Plan to join IPFCC's 7th International Conference in New York City, July 25-27, 2016.

IPFCC Fall Webinars

IPFCC will be offering the following webinars this fall:

Patient and Family Involvement in Change of Shift Report
Thursday, September 10, 2015

tmb-terry-griffinJoin Terry Griffin, MS, APN-BC, as she discusses strategies for involving patients and families in bedside change of shift report to enhance quality and safety.

Responding to Medical Errors in a Patient- and Family-Centered Environment 
~ Date and Details Coming Soon 

A Beginner's Guide: Applying Patient- and Family-Centered Practices in Hospitals and Ambulatory Care 
~ Date and Details Coming 

More information about IPFCC's fall webinar schedule, and registration, will be available on IPFCC's website soon.

IPFCC’s webinars are a cost-effective educational resource. Cost is per line, so a group of any size is welcome to participate in the same room on one line. Handouts and supplemental resources are included with registration. 

Learn more about webinar faculty, learning objectives, and Pinwheel Sponsor discounts.

New Resources on IPFCC’s Website ~ Engagement Strategies for the Medicaid Population

Check out the new free resources on the Engagement Strategies for the Medicaid Population section of IPFCC’s website.

Medicaid smallerInformation gleaned from more than 50 individuals interviewed for the issue brief, Individual and Family Engagement in the Medicaid Population: Emerging Best Practices and Recommendations (2014), sponsored by the Robert Wood Johnson Foundation's State Quality and Value Strategies program, is presented in multiple documents in this section of IPFCC’s website. Recently added:

Individual and Family Engagement Themes ~ This document includes practical tips and suggestions for improvement and partnership, summarizing the common themes and messages that emerged from the cadre of experts who contributed their time and wisdom to this project.

Recommendations of Interviewees ~ The engagement of individuals and families served by Medicaid programs is a key factor in reducing costs, and improving care and health in communities. This document provides insights and recommendations gleaned during the extensive interviews with those who receive care and those who deliver care.

Read more…

Did you miss IPFCC's recent webinar on this topic, Building Community – Involving Individuals and Families on Medicaid As Partners in Health Care Improvement? The recording of this webinar can be purchased. Please contact IPFCC for more information.

Five IPFCC Pinwheel Sponsors Named to Honor Roll of Best Hospitals

Best HospitalsCongratulations to five of our Pinwheel Sponsors who are on the recently released U.S. News & World Report's 2015-2016 Honor Roll for America’s Best Hospitals.

The annual U.S. News & World Report ranking of the country’s elite medical centers is a tool for patients who need medical sophistication most facilities cannot offer. The hospital’s “ability to take on and meet the most difficult challenges” is the special quality shared by the hospitals that made it onto the new Best Hospitals rankings (out of nearly 5,000 that were considered), and even more so by the 15 hospitals that made it onto the Honor Roll, all of which “achieved high scores in at least six of the 16 Best Hospitals specialty rankings.“ Five of IPFCC’s Pinwheel Sponsors are on that short list!

Congratulations to the following Pinwheel Sponsors who are in the top 15 of the 2015-2016 Honor Roll for America’s Best Hospitals

  • Johns Hopkins Hospital, Baltimore, MD
  • Brigham and Women’s Hospital, Boston, MA
  • NYU Langone Medical Center, New York, NY
  • Barnes-Jewish Hospital/Washington University, St. Louis, MO 
  • Stanford Health Care – Stanford Hospital, 
    Stanford, CA 

Learn more about Pinwheel Sponsors.


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About Us

Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.

Institute for Patient- and Family-Centered Care
6917 Arlington Road, Suite 309 • Bethesda, MD 20814