December 2015
Issue 86
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Join Us in Chicago for IPFCC's Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar!

Chicago FlyerRegistration is now open for IPFCC’s Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety ~ An Intensive Training Seminar, to be held at the Chicago Marriott Downtown Magnificent Mile, in Chicago, Illinois, April 4-6, 2016. Read more about the seminar.

This internationally acclaimed seminar provides you and your team with the knowledge, strategies, and tools you need to advance patient- and family-centered care at your organization. "The patient- and family-centered care concepts presented at this seminar have a tremendous impact on the care we provide to our patients everyday. Every healthcare professional should attend this seminar." ~ Claire Barrette, NICU Nurse Discharge Coordinator, Joe DiMaggio's Children's Hospital

A tour of Lurie Children's Hospital will be offered, on Tuesday, April 5th. This new hospital showcases best practices in evidence based hospital design
Important Requirement for the tour: For the safety of Lurie Children's patients and families, all tour participants are required to have been vaccinated for the flu. Pre-registration is required as space is limited. 

Thanks to Ann & Robert H. Lurie Children's Hospital of Chicago for providing leadership support in bringing the seminar to Chicago, Illinois.


The Chicago Marriott Downtown Magnificent Mile is holding a limited number of hotel rooms at a special group rate until March 11, 2016.

IPFCC anticipates that this seminar will sell out, so take 
advantage of the Early Bird pricing through February 19, 2016.

Register Now 

Canada Updates Accreditation Standards, Embracing Core Principles of Patient- and Family-Centered Care

Acc Canada
This month, Accreditation Canada* announced important changes to its accreditation program to strengthen the focus on patient- and family-centered care. The Canadian Standards use the term Client- and Family-Centred Care (CFCC), noting that the word client also means patients, and residents in long-term care communities. According to Accreditation Canada, “CFCC is an integral component of the Qmentum accreditation program and Accreditation Canada is supporting health care providers to implement client- and family-centred care in their organizations.”

Client- and Family-Centred Care is the subject of the Fall/Winter 2015 issue of Accreditation Canada’s Quality Matters—a publication on quality improvement and patient safety in health services. The first article, The Importance of Client- and Family-Centred Care, written by Liz Crocker and Bev Johnson, notes the new standards are “based on the four core values of respect and dignity, information sharing, participation, and collaboration as defined by the Institute for Patient- and Family- Centered Care (IPFCC). The emphasis on partnership and collaboration throughout the standards conveys the message that quality improvement teams are not actually complete without clients and families.”

The new Canadian standards take effect January 1, 2016. Evaluations of health care and social services organizations participating in the accreditation program will be measured against new requirements to help ensure that patients and families are placed at the center of care.

Organizations will be required to:

  • Partner with patients and families in planning, assessing, and delivering their care;
  • Include patient and family representatives on advisory and planning groups; and
  • Monitor and evaluate services and quality with input from patients and families.

The Canadian advisory committee that guided the development of these new standards included equal numbers of patient and family representatives, service providers, and administrators with knowledge and experience in implementing patient- and family-centered care.

Wendy Nicklin, President and CEO of Accreditation Canada, stated, “Partnering with patients and families is the key to better quality and better health for all Canadians.” In keeping with this sentiment, other Canadian organizations are working to make the concept of partnership with patients and families a reality in health care organizations across Canada. For example, see the story in the November 2015 Pinwheel Pages about the Canadian Foundation for Healthcare Improvement (CFHI) recent launch of the Better Together in Canada.  

*Accreditation Canada is an independent, not-for-profit organization that accredits health care and social services organizations in Canada and around the world. Accredited by the International Society for Quality in Health Care (ISQua), its comprehensive accreditation programs foster ongoing quality improvement through evidence-based standards and a rigorous external peer review.

The Value and Increasing Frequency of Hospital Patient and Family Advisory Councils

WSJLaura Landro’s recent Wall Street Journal article, Hospitals Form Patient Advisory Councils to Learn How They Can Improve Care, (November 29, 2015), reports how increasingly hospitals are recruiting former patients to join Patient and Family Advisory Councils (PFACs) to work with hospital staff members to improve care. These councils bring together patient and family volunteer advisors, clinical, administrative, and executive hospital staff—all of whom work together on projects, policies, and procedures that can range “from the design of hospital rooms to improving communication with nurses....”  

According to Landro, a survey* published in the journal BMJ Safety and Quality, Patient and Family Engagement: a Survey of US Hospital Practices, "earlier this year found that about 38% of hospitals surveyed had the panels.” Landro also reports that hospitals with PFACs show improved patient satisfaction, as indicated on patient satisfaction surveys.

PFACs may be organized at the hospital level and the health care system level, or in any health care setting, including ambulatory practices. Many health care systems have multiple PFACs. In addition to patient and family advisors (PFAs) serving as members of PFACs, hospitals and health care systems often find it advantageous to also recruit volunteer PFAs to sit on other committees and councils, and to work collaboratively with staff on other projects. Having a variety of ways to partner with advisors is the most effective way to bring the patient and family voice to the table—a necessary component of patient- and family-centered care.

Read the entire WSJ article to learn more about the recruitment of advisors, and what types of contributions they can make. Additional information about patient and family advisors, and how they contribute to positive change can be found in IPFCC’s Profiles of Change

IPFCC offers many resources to help your organization launch new PFACs, develop existing PFACs, and recruit and train PFAs, to positively improve the quality and safety of care, and the patient and family experience of care. Learn more about IPFCC resources, such as Essential Allies: Patient, Resident, and Family Advisors and Words of Advice: A Guide for Patient, Resident, and Family Advisors, PFAC Network, IPFCC webinars, such as the upcoming February 9, 2016 Creating a Patient and Family Advisory Counciland IPFCC services

*Survey conducted by the nonprofit Health Research and Educational Trust and funded by the Gordon and Betty Moore Foundation.

OpenNotes: Sharing Physician Notes Electronically With Patients Is Associated With Improved Medication Adherence  

OpenNotes LogoA recent OpenNotes 
study among patients within the Geisinger Health System (GHS),
Sharing Physician Notes Through an Electronic Portal is Associated With Improved Medication Adherence: Quasi-Experimental Study, showed improved medication adherence. Patients in the group with participating physicians were offered access to their primary care provider (PCP) notes via the MyGeisinger Web portal. Those patients received an email message sent to their personal email address notifying them of a portal message, with a direct link to the message, once the physician documented the meeting. Prior to the next appointment, these patients received an electronic reminder message, “encouraging the patient to review the previous PCP note(s) prior to the appointment.” Control patients—those whose physicians did not participate—met certain inclusion criteria, and were MyGeisinger portal users, but did not have access to their PCP notes.

This study is “the first large-scale report suggesting that medication adherence to antihypertensive medications improves among patients granted access to review PCP notes through a Web portal. In individual interviews, focus groups, and surveys, patients indicated that being reminded to, and having access to, read their clinicians’ notes lead them to use prescribed medications “better”…. As the use of fully transparent records spreads, patients invited to read their clinicians’ notes may modify their behaviors in clinically valuable ways.”

The OpenNotes original study—a multicenter, prospective study—invited patients to read primary care providers’ notes. The original study included three different sites: Beth Israel Deaconess Medical Center in Boston, Harborview Medical Center in Seattle, and the Geisinger Health System in Pennsylvania. Surveys completed by patients and physicians, both those volunteering to participate in the intervention and those declining participation, are reported on in previous publications. To learn more about the original OpenNotes project, read Inviting Patients to Read Their Doctor Notes, in the September 2013 issue of Pinwheel Pages.

Read the entire article about the recent study, and read other OpenNotes publications.

Profiles in Excellence: Quality Improvement Lessons from the AHA-McKesson Quest for Quality Prize Recipients

AHA McKessonThe AHA-McKesson Quest for Quality Prize honors hospitals that demonstrate progress in achieving the Institute of Medicine's six quality aims – safety, patient-centeredness, effectiveness, efficiency, timeliness and equity. For the first time, two children's hospitals were recognized: Children's Hospital Colorado, winner of the 2015 AHA-McKesson Quest for Quality Prize, and Nationwide Children's Hospital, recipient of a 2015 AHA-McKesson Quest for Quality Prize Citation of Merit.

The Hospitals in Pursuit of Excellence
TM webinar, Profiles in Excellence: Quality Improvement Lessons from the AHA-McKesson Quest for Quality Prize Recipients Part 1, explores the journeys of these two award-winning hospitals to eliminaterather than reducepatient harm, and how these hospitals partner with patients and their families in all aspects of care and decision-making. The webinar includes the importance of and the ways in which these hospitals involved patients and families in their quality and safety improvement work.

Learn more about the AHA-McKesson Quest for Quality Prize and the 2015 Honorees.

Congratulations to IPFCC Pinwheel Sponsors Named to U.S. News & World Report’s Most Connected Hospitals

USNWRU.S. News & World Report recognized 159 medical centers as the Most Connected Hospitals 2015-16 as a result of their “commitment to the use of digital technology in health care. To qualify, the centers had to demonstrate their ability to share data with providers both within their walls and elsewhere, improve patient safety through computerization, and engage patients in their care by providing them with electronic access to their own medical information.”

In order to be eligible, hospitals first must “have been nationally ranked or rated as high performing by U.S. News in 2015-16 in Best Hospitals (for complex care), Best Hospitals for Common Care or Best Children’s Hospitals.”

Congratulations to IPFCC Pinwheel Sponsors, or their affiliates*, who are on the roster:

  • Akron Children's Hospital
  • Anne Arundel Medical Center
  • Brigham & Women's Hospital
  • Bronson Methodist Hospital (Bronson Healthcare)
  • Children's Medical Center Dallas (Children's Health Medical Center)
  • Memorial Hospital Miramar and Memorial Regional Hospital (Memorial Healthcare System)
  • Norton Hospital (Norton Healthcare)
  • NYU Langone Medical Center
  • Stanford Health Care
  • UAB Hospital
  • University of Iowa Children's Hospital
  • University of Michigan Health System
  • University of Minnesota
  • University of Texas Medical Branch Hospitals (UTMB Health, Family Medicine Department)
  • Vivant Medical Center (Vidant Health)

* Pinwheel Sponsors may be entire health systems or individual hospitals. Where an entity's name is different but affiliated with a Pinwheel Sponsor, the entity that is the Pinwheel Sponsor is noted in parenthesis.

Learn more about IPFCC's Pinwheel Sponsorship Program.

Spotlight on Primary Care
PCPCCIn November, the Patient-Centered Primary Care Collaborative (PCPCCkicked off its 2015 Annual Conference with patients and families as keynote speakers.

Juliette Schlucter, IPFCC faculty member, spoke about strategies to partner with patients and families as co-designers of advanced primary care and Hala Durrah, Patient Advocate, along with her husband, Adeeb Jaber, MD, and daughter, Ayah Jaber, shared a moving story of their family’s journey and the urgency to include them as partners in care and decision-making.

Stay tuned for future monthly profiles in Pinwheel Pages featuring advances in patient- and family-centered primary care as IPFCC partners with PCPCC as part of their 
Transforming Clinical Practice Initiative (TCPI) Support and Alignment Network (SAN). Learn more about this project.

IPFCC will be identifying primary care practices that are partnering with patients and families in quality improvement and practice transformation. If you want to be involved, please send your contact information to Mary Minniti at Further information about partnerships in primary care will be posted in IPFCC's PFAC Network in early January.

In This Issue
  • Join Us in Chicago for IPFCC's Moving Forward with Patient- and Family-Centered Care Intensive Training Seminar! 
  • Canada Updates Accreditation Standards, Embracing Core Principles of Patient- and Family-Centered Care
  • The Value and Increasing Frequency of Hospital Patient and Family Advisory Councils
  • OpenNotes: Sharing Physician Notes Electronically With Patients Is Associated With Improved Medication Adherence
  • Profiles in Excellence: Quality Improvement Lessons from the AHA-McKesson Quest for Quality Prize Recipients
  • Congratulations to IPFCC Pinwheel Sponsors Named to U.S. News & World Report’s Most Connected Hospitals
  • Spotlight on Primary Care
  • Mark Your Calendar: The 7th International Conference on Patient- and Family-Centered Care in NYC, July 25-27, 2016
  • IPFCC Webinars 
  • Just Announced! Foundations Unite to Support Access to Clinical Notes for 50 Million Patients Nationwide
  • American College of Radiology Partnering with Patients and Families  
  • Pinwheel Sponsors DFCI and BWH’s Patricia Reid Ponte Appointed Next President of the American Nurses Credentialing Center 
  • Creating Patient Stories 

Mark Your Calendar: The 7th International Conference on Patient- and Family-Centered Care in NYC, July 25-27, 2016

abstract-brochure-nyPlanning is in full swing for The 7th International Conference on Patient- and Family-Centered Care: Partnerships in Care, Interprofessional Education, and Research, which will be held in New York City, July 25-27, 2016. After the extensive review by experts in the field, over 100 sessions and 80 posters have been accepted. Join us in New York for this inspirational and informational event!

One of the many sessions that will be offered is Patient and Family Faculty in High Impact Interprofessional Education—From Classroom to Simulation Center.

Juliette smallerIPFCC is thrilled to welcome Juliette Schlucter, Director, Child and Family Experience, Sala Institute for Child and Family-Centered Care, NYU Langone Medical Center. Juliette brings more than 20 years of experience leading patient and family faculty programs in a wide array of settings, including academic medical centers, ambulatory and primary care practices, and medical, nursing, and social work schools. Juliette, along with Jeremy Donovan and Jennifer Daly, both Family Advisors and Family Faculty, and an interprofessional team of clinicians from NYU Langone, will present an interactive, real-time simulation scenario based on the work at their Simulation Center, NYSIM.

This session will include core program elements of Patient and Family Faculty programs flexibly designed to suit a variety of learning environments and will provide successful strategies to teach patients and families how to harness the power of their own narrative to teach health care professionals.

Plan to join IPFCC's
7th International Conference in New York City, July 25-27, 2016.

Register for the Conference.


Conference Abstract Update:
On December 4, 2015, IPFCC sent electronic notification of decisions to all those who submitted abstracts. If you submitted an abstract, and did not receive an e-mail notice, please contact us at

IPFCC Webinars 

Advancing the Practice of Patient- and Family-Centered Care: The Role of Leaders
January 21, 2016 

Join Beverley H. Johnson, IPFCC's President and CEO, to learn more about how leaders can effectively develop meaningful and sustained partnerships with patients and families.

Creating a Patient and Family Advisory Council
February 9, 2016

Join Julie Moretz, Vice Chancellor for Patient- and Family-Centered Care, University of Arkansas for Medical Sciences, and Hollis Guill Ryan, Program Coordinator of Patient and Family Centered Care at the University of Washington Medical Center, to explore how to start a council. Recruiting and preparing advisors and staff to work in collaborative partnerships, developing an agenda, sharing useful resources and tools, are a few of the topics to be covered.

Partnering with Patients and Families Using Social Media, and Mobile and Virtual Technologies
February 18, 2016

Join Kelly Parent, IPFCC Program Specialist for Patient and Family Partnerships and PFCC Program Manager at the University of Michigan Health System (UMHS), and Juliette Schlucter, Director, Child and Family Experience, Sala Institute for Child and Family-Centered Care, NYU Langone Medical Center, to understand how social media, and mobile and virtual technologies can enhance patient- and family-centered collaboration.

IPFCC’s webinars are a cost-effective educational resource. Cost is per line, so a group of any size is welcome to participate in the same room on one line. Handouts and supplemental resources are included with registration. 

Details and registration for these webinars coming soon to IPFCC's website.

Learn more about webinar faculty, learning objectives, and Pinwheel Sponsor discounts.

Just Announced! Foundations Unite to Support Access to Clinical Notes for 50 Million Patients Nationwide

On December 15, 2015, Cambia Health Foundation, Gordon and Betty Moore Foundation, Peterson Center on Healthcare, and the Robert Wood Johnson Foundation jointly announced new funding of $10 million to spread access to clinical notes to 50 million patients nationwide.

“For the next three years, the new funding will support OpenNotes’ ability to assist providers with adoption, to reach a wide range of consumers, and to evaluate the impact of the effort on health outcomes and costs. OpenNotes will work with a broadly representative advisory board to target health care organizations and consumer advocacy groups, and also individual clinicians and consumers.” Read more…

American College of Radiology Partnering with Patients and Families

ACR logo
The American College of Radiology (ACR®)
recently announced the revision of the name of the Patient Experience Commission to the ACR Commission on Patient- and Family-Centered Care to better reflect the commission’s scope and purpose.

James V. Rawson, MD, FACR, Chair of the American College of Radiology Commission on Patient- and Family-Centered Care, sought this name change early in his three-year tenure as Chair. The new name is more inclusive and representative of the work of the Commission. “The change to the Commission on Patient- and Family-Centered Care reflects the need to engage patients and their families in the planning and improvement of radiology care and in the operation of the radiology enterprise,” said Dr. Rawson. “This can help ensure that we provide high quality care in a manner that incorporates the needs, wants, and values of our patients and communities and leads to better satisfaction among those we serve.”

Currently 5 patients are members of the Commission. The ACR is actively recruiting family members, as well as more patients, to join in the work of the Commission. For more information, contact Becky Haines at

Pinwheel Sponsors DFCI and BWH’s Patricia Reid Ponte Appointed Next President of the American Nurses Credentialing Center

ANA logoCongratulations to Patricia Reid Ponte, newly appointed by the American Nurses Association Board of Directors, as the next president of the American Nurses Credentialing Center (ANCC). Pat will begin her two-year term January 1, 2016. Reid Ponte is CNO and Senior Vice President of Patient Care Services at the Dana-Farber Cancer Institute (DFCI), and the Executive Director of Oncology Nursing and Clinical Services at Brigham and Women’s Hospital (BWH), both in Boston, positions she has held since 2000. Both DFCI and BWH are IPFCC Pinwheel Sponsors.

Creating Patient Stories

Listen to the podcast, Creating Videos of Patients’ Stories to Inspire and Remind Caregivers About Why Their Work Matters, in which Chad Brough, Executive Director of the Office of Patient Experience at Cone Health in Greensboro, NC, talks with Helen Osborne, host of Health Literacy Out Loud, about how patients’ stories can inspire and teach clinicians and caregivers, why patients willingly share their stories, and the best ways to tell patients’ stories. This podcast includes recommendations, lessons learned, and stories about storytelling in health care.


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About Us

Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.

Institute for Patient- and Family-Centered Care
6917 Arlington Road, Suite 309 • Bethesda, MD 20814