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September 2016
Issue 95
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San Antonio Seminar – A Great Opportunity for Interdisciplinary Learning

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IPFCC’s Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality and Safety ~ An Intensive Training Seminar will be held in San Antonio, TX, November 16-18, with leadership support from MEDNAXJoin us at the seminar and learn from faculty who are nationally recognized leaders in patient- and family-centered care. Gain knowledge, skills, and tools for enhancing and sustaining partnerships with patients and families to improve the experience of care and enhance quality and safety. 

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While seminar content is designed for a multidisciplinary audience that includes health care executives, clinicians, staff, and patient and family advisors, several sessions will be of particular interest to physicians. Sessions are offered that focus on collaborating with patients and families in clinical practice, patient- and family-centered rounds, involving physicians in PFCC initiatives, and partnering with patient and family faculty in medical education and orientation. Faculty members, Bill Schwab, a family medicine physician, and Paul Boucher, a medical director of an adult ICU, will facilitate a popular networking breakfast for physician attendees on Thursday, November 17 from 7-8 am. Neonatologists from MEDNAX and a family advisor will share their story that began in 2013 when their small team attended an IPFCC seminar in Annapolis, MD, created a vision for change, and are now successfully building PFCC initiatives across San Antonio.

Register by September 30th to take advantage of the Early-Bird registration rate. Learn more about the seminar. Download the brochure

Pinwheel Seminar Scholarship
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Is your organization an IPFCC Pinwheel Sponsor? Are you assembling a team to come to the Seminar? Then you have the chance to add one more member to your team. Pinwheel Sponsors are eligible for one scholarship to attend the seminar. The deadline to indicate interest is October 5, 2016 by 5 pm EDT. Email Ann Selinger at if you want to be included in the scholarship drawing.

PCPCC Seminar Scholarships
IPFCC has limited scholarships available for Practice Transformation Networks (PTNs) and the practices they serve to attend the San Antonio seminar. This is a great opportunity to send a small team of partners (clinician, patient/family advisor, and quality coach) to accelerate efforts to implement the TCPI Change Package. Scholarships cover registration costs. To apply, please contact Mary Minniti at for more information. Scholarships are subject to CMS funding. 

Key IPFCC Collaborations Showcased at The 7th International Conference on Patient- and Family-Centered Care
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In addition to the new Ronald McDonald House Charities partnership featured in the August 2016 issue of Pinwheel Pages, The 7th International Conference showcased several significant collaborations between IPFCC and other organizations:

March of Dimes
IPFCC and the March of Dimes are working together to help NICUs around the country strengthen neonatal family-centered care. At a special session during the Conference, participants (including family advisors, researchers, administrators, and neonatologists) used automated instant polling to share information about successes and challenges within their units. Polling areas included:
  • FCC policies and practices to engage teen parents
  • FCC policies and practices for families who cannot be present on the unit
  • Support for non-English-speaking families
Following the polling, participants met in small groups to discuss these challenges and identify possible solutions. The March of Dimes and IPFCC will host similar discussions at the upcoming Intensive Training Seminar in San Antonio.

New Yorkers for Patient and Family Empowerment
In a special project, Better Together for NYC Hospitals, IPFCC is collaborating with New Yorkers for Patient and Family Empowerment to change restrictive visiting policies in NYC hospitals and to document that change through an updated version of the report, Sick, Scared, and Separated from Loved Ones, originally published in 2012. As part of the project, 30 leaders representing 11 public hospitals in NYC attended the Conference, supported by a grant from the United Hospital Fund and with additional funding from NYC Health + Hospitals Corporation.

Patient-Centered Outcomes Research Institute (PCORI)
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IPFCC’s two-year engagement award from PCORI for the project, “Creating Capacity for Sustainable Partnerships with Patients and Families in Research,” supported programming featuring partnerships in research at the Conference. Teams of patient/family advisors, researchers, and health care professionals from seven organizations participating in the project presented sessions and posters and took part in a working meeting to discuss ideas and preferences for the toolkit being developed as part of this project. A networking breakfast attracted over 45 people who wanted to connect with others interested in partnerships with patient and family advisors in research.

Patient-Centered Primary Care Collaborative (PCPCC)
The core concepts of patient- and family-centered care apply to all age groups and to all settings, including primary/ambulatory care. At the recent International Conference, almost 70 presentations (both oral and poster) focused on ambulatory and primary care. Presenters from the U.S. and Canada shared exemplary practices and programs which addressed both adult and pediatric patients and highlighted ways to partner with patients and families in care itself as well as in research, education, and peer support.

Conference Session Recordings 
Conference audio recordings and session materials are available for purchase on the IntelliQuest Media website.
Primary Care Corner ~ Scholarships Available to Attend Patient, Family, and Clinician Partners Training
Are you a patient or family advisor working in an ambulatory or primary care setting? Would you like to attend a national conference with a member of your healthcare improvement team? Scholarships are available for patient, family and clinician partners to attend the 2016 Patient-Centered Primary Care Collaborative (PCPCC) Annual Conference that will be held in Washington, DC on November 10-11, 2016. For selected teams, conference registration fees and/or support for travel will be covered. The funds are provided by CMS as part of the Transforming Clinical Practice Initiative (TCPI).

The deadline to submit applications is September 26, 2016. Scholarship recipients will be notified by October 6. PCPCC hopes to recruit up to 75 patient and family advisors and clinicians for this partner training.

Learn more at the PCPCC Conference Website

IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support and Alignment Network (SAN)This column provides highlights from the field.

If you already partner with patients and families to improve primary or ambulatory care and want to share your successes, or you want to learn more, IPFCC hosts a free online learning community for Primary and Ambulatory Care Partnerships on its PFAC Network. For more information about joining, please contact Mary Minniti at or sign up on IPFCC's PFAC Network.

In this Issue 
  • San Antonio Seminar – A Great Opportunity for Interdisciplinary Learning
  • Key IPFCC Collaborations Showcased at The 7th International Conference on Patient- and Family-Centered Care

  • Primary Care Corner ~ Scholarships Available to Attend Patient, Family and Clinician Partners Training

  • IPFCC Webinars

  • Health Transformation Task Force Affirms Need for Patient Involvement in Care and Decision-Making
  • IPFCC Faculty Member Anna Roth Discusses Partnerships in Safety Net Hospitals

  • Pediatric Nursing’s Family Matters Section Features Family Leader Cara Coleman
    IPFCC Webinars 
    October 6, 2016
    Leveraging the Principles of High Reliability to Advance Patient and Family Engagement in Safety

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    Join Juliette Schlucter and Dr. Fiona Howard Levy as they outline two important frameworks that organizations have used successfully—high reliability and patient and family-centered care—to advance patient and family engagement in safety. Get more details and register.

    October 13, 2016
    Building Self-Management Support in Primary and Ambulatory Care

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    Bryant Campbell

    What does it take to create health and wellness for individuals with a chronic condition? How can primary and ambulatory care practices have a key role in self-management support? This webinar will explore implementation of effective self-management programs. Best practices from the perspective of a patient with a chronic condition will be shared. Get more details and register.

    Recording Now Available:
    Strengthening and Growing Advisor Partnerships

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    Join Kelly Parent, IPFCC Program Specialist for Patient and Family Partnerships, as she reflects on a decade of experience as a family leader and shares strategies for successful and rewarding advisor collaborations. Register for access to the recording.

    IPFCC’s webinars are a cost-effective educational resource. Cost is per line, so a group of any size can participate from the same location on one line.
    Learn more about webinar faculty, learning objectives, and Pinwheel Sponsor discounts.

    Health Transformation Task Force Affirms Need for Patient Involvement in Care and Decision-Making

    The Health Transformation Task Force including more than 40 executives representing health systems, insurance companies, advocacy groups, and consultants recently published a paper outlining six principles for patient-centered care. The principles include involving patients in decision-making at all levels of care. Read the full article.

    IPFCC Faculty Member Anna Roth Discusses Partnerships in Safety Net Hospitals

    In the 9/7/16 issue of NEJM Catalyst, IPFCC faculty member, Anna Roth, CEO of Contra Costa Regional Medical Center in the San Francisco Bay area, talks about safety net hospitals and partnering with patients. Read the full article.

    Pediatric Nursing’s Family Matters Section Features Family Leader Cara Coleman

    In the July/August 2016 issue of Pediatric Nursing journal, Cara L. Coleman, a family leader, talks about her experience with her daughter Justice Hope who has multiple disabilities and complex medical needs. Coleman specifically focuses on the important role of nurses in empowering families to be partners in care and advocates. Read the full article

    IPFCC Seminar in San Antonio

    Thanks to MEDNAX for providing leadership support and to the other hospitals in the coalition providing support.

    Program partners: 


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    About Us
    Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care (IPFCC) works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.

    Institute for Patient- and Family-Centered Care
    6917 Arlington Road, Suite 309 • Bethesda, MD 20814