May 2018
Issue 113

IPFCC Events
Conference Banner
Top Reasons to Attend IPFCC's 8th International Conference:
  • Inspiring plenary sessions discussing critical topics including collaborative approaches to address health disparities, the opioid crisis, and developing new models of care
  • Over 110 sessions and 80 posters on a variety of subjects including creating effective patient and family advisory programs, partnering to improve safety and quality, engaging underserved populations, and collaborating with patients, families, and communities in research
  • CEUs and CMEs offered for Nurses, Physicians, Patient Experience Personnel, and Social Workers
  • Special events include a Tour of Johns Hopkins Hospital, StoryCorps, and a luncheon chat with Jon Kerstetter, author of the compelling memoir, Crossings: A Doctor-Soldier’s Story
Download the Updated Program Brochure and Register Today!
June 11-13, 2018
Baltimore Marriott Waterfront
Baltimore, MD
With leadership support from With program support from
Armstrong Institute for Patient Safety and Quality
Patient-Centered Outcomes Research Institute (PCORI)

Attention Patient and Family Advisors!
IPFCC is collaborating with PFCCpartners, to convene a pre-conference Patient and Family Advisor (PFA) summit on June 10, 2018, focused on the opioid epidemic. The Summit will prepare national agencies, organizations, and patient and family advisors for partnership in developing strategies and programs to address this serious public health issue. Advisors with lived experience related to the opioid crisis are particularly encouraged to attend, but all advisors are welcome. There is no registration fee for this event.
Space is limited so Register Today or email Pam Dardess at pdardess@ipfcc if you have any questions.

In collaboration with:  With leadership support from:
Upcoming Webinars
PFCC in the Field 
IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support Alignment Network (SAN).
This section brings stories from the field, from this initiative and others, right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.
UF Health: Neuromedicine Interdisciplinary Clinical and Academic Program (NICAP)
The Neuromedicine Advisory Panel at UF Health was formed to bring the patient and family voice into NICAP’s three ambulatory clinics. Using a structured approach for monthly meetings (e.g., questions about quality and safety, palliative and hospice care, and nurse and physician communication), the Advisory Panel has identified a number of needs, including improved patient education.
Read more
NICAP logo

Peer Support: Enhancing Care for Patients and Their Families
Peer support can play an important role in enhancing primary and ambulatory care for patients and their families. IPFCC, with PCPCC, recently presented a webinar to introduce PTNs and practices to the benefits and use of peer support and the networks that already exist. In addition to the recording, you can also download the webinar presentation slides as well as a simple brochure.
Resources and Opportunities
A Conversation on Meaningful Family Engagement, from Clinical Care to Health Policy
Join the Lucile Packard Foundation for a lively discussion on the article, Families of Children With Medical Complexity: A View From the Front Lines, being held on June 6, 2018. The lead author and experts in the field will review the article’s key content and share ways to strengthen family engagement. We suggest attendees read the article prior to the event. Audience Q&A is highly encouraged. Attendees can listen via web or phone.
Learn More and Register

Support for Caregivers
An estimated 42 million people in the U.S. are primary caregivers of both adults and children. These caregivers are almost two times more likely to have emotional and physical problems. An article in the May 1, 2018 issue of Kaiser Health News describes new programs to both coach caregivers for their roles and to provide stress reduction.
Read the full article

IPFCC at Work
2018 Partnership Award Recipients Selected!
But it is still a secret! Join us at IPFCC's 8th International Conference, where the winning teams will be announced and honored.

pfcc connect Congratulations to our Raffle Winners!
Thank you to everyone who participated in our April recruitment campaign and a big congratulations to the following raffle winners:
  • Michael Tibbles - winner of a copy of Words of Advice
  • Jennifer Baisa - winner of a copy of Privileged Presence
Missed last month's contest? You have another chance to win at our upcoming 8th International Conference! Find the PFCC.Connect exhibit table and sign up to become a member, then have your name entered into the raffle for a chance to win some exciting new prizes!
Join PFCC.Connect Today!

Institute for Patient- and Family-Centered Care
6917 Arlington Road, Suite 309 • Bethesda, MD 20814