July/August 2019
Issue 124

IPFCC Events

We continue to hear from participants about their excitement about our intensive seminar in Detroit.
“Our advisors and myself found the seminar to be overwhelmingly helpful and we’re grateful we could attend together.”
Please be in touch and let us know what you are doing to move forward with your action plans!
Better Together and Northwell Health
Profile_Northwell Health Logo (300 dpi)Beginning in the fall of 2018, 15 hospitals from Northwell Health, a large integrated health care organization in New York State, participated in IPFCC’s initiative, Better Together: Partnering with Families, A Learning Community for Hospitals in NYS. Over a 10-month period, led by Northwell’s Office of Patient and Customer Experience, significant changes were made to enhance system-wide family presence and participation.  
Read more about Northwell’s work
Advance Care Planning in Primary Care
With funding from the Patient-Centered Outcomes Research Institute (PCORI®), Oregon Health & Science University, in collaboration with six other institutions in the US and Canada (the Meta-LARC consortium), is moving into the second year of a research project to explore models for advance care planning in primary care. Forty-two practices and more than 1,000 seriously ill patients will participate in the study. IPFCC is serving in a leadership role for the patient engagement component of the 5-year project.
Review the project website
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Depression and Bipolar Support Alliance
IPFCC is working with the Depression and Bipolar Support Alliance (DBSA), a peer-directed national organization. IPFCC will be conducting focus groups with people living with depression and/or bipolar disorder to learn more about their perspectives on wellness and priorities for treatment outcomes. This work supports DBSA's ten-year strategic effort to ensure that peer-desired treatment outcomes are incorporated in research and the delivery of mental health care throughout the entire health care system.
Learn more about DBSA at their website
Upcoming Webinars
  • Advancing the Practice of PFCC Across a Health System: The Imperative of Leadership at Every Level
    Susan M. Grant, DNP, RN, NEA-BC

    EVP and CNO, Beaumont Health
    September 10th, 1 PM ET
    Registration coming soon!

    This webinar will describe the journey of Beaumont Health, the largest health system in Michigan, to integrate PFCC in its hospitals, ambulatory practices, long-term care communities, hospice, home care, and educational partner organizations. Presenter Susan Grant will also share how, at every step in this journey, leadership – from the governing board to unit managers – modeled commitment and guided the process to build partnerships with patients and families. As background for this webinar, we recommend reading the article, "Advancing the Practice of Patient- and Family-Centered Care Across a Health System: The Role of Nursing Leadership,” in the August 2019 issue of Nurse Leader.
Featured Recorded Webinars
PFCC in the Field
IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support Alignment Network (SAN).
This section brings stories from the field, from this initiative and others, right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.
Spectrum Health
UrgentCareroundingSpectrum Health is a not-for-profit health system based in West Michigan. The system has 18 PFACs – some for clinical service lines and others representing regional community hospitals. Each PFAC addresses the full range of patients’ needs, both inpatient and outpatient. Important initiatives related to ambulatory care include walk-in clinics and telemedicine visits with primary care providers.
Read more
Resources and Opportunities
Building Trust in Primary Care
An article in the 7/10/19 issue of NEJM Catalyst summarizes a talk given by Patrick T. Courneya, MD, CMO for Kaiser Permanente’s National Health Plan and Hospitals Quality. Dr. Courneya emphasized the need for individuals and communities to have sustained relationships, built on trust, with their primary care providers.
Read the article
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Surviving a Coma: The Importance of Family Presence
blink of an eye In the June 6, 2019 issue of the Wall Street Journal, author and scientist, Rikke Schmidt Kjaergaard, shared the story of her difficult and courageous journey to recover from the effects of a deadly bacterial infection. Key to her eventual recovery was the presence and participation of her husband Peter. Rikke is also the author of a book, The Blink of an Eye. 

For more about family presence, review the Toolkit materials included in IPFCC’s Better Together campaign

Pediatric Care Coordination Curriculum
The National Resource Center for Patient/Family-Centered Medical Home (NRC PFCMH) and the National Center for Care Coordination Technical Assistance have just published the Pediatric Care Coordination Curriculum, 2nd Edition.

pfcc connect July and August Informal Conversations
PFCC.Connect hosts informal conversations monthly for members to learn from each other on topics that advance patient- and family-centered care. Rather than a structured presentation, the discussion is guided by what participants want to learn about through sharing collective experiences. The most recent conversation was held on July 18th on Behavioral Health–Engaging Patients and Families. The recording and chat, along with resource materials, are available in the PFCC All Members Library.

Our next conversation will be held on August 1st at 2 PM ET/11 AM PT on Measurement: Tracking Patient and Family Engagement Activities and Outcomes. Registration details have been sent to all members and is also posted in the PFCC.Connect Events calendar. Become a member so you don’t miss out!

Join PFCC.Connect Today!

Institute for Patient- and Family-Centered Care
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