March 2020
Issue 130

IPFCC Events
IPFCC is closely monitoring developments related to the coronavirus disease (COVID-19) and its potential impact. At this time, our 9th International Conference on Patient- and Family-Centered Care in Nashville, TN from August 18-20, 2020 is expected to proceed as planned. IPFCC takes very seriously the responsibility to protect the health, safety, and well-being of all and will provide updates as needed on our website.  

Screen Shot 2020-03-30 at 3.45.50 PMCMS Quality Conference
In February, IPFCC's Bev Johnson and Pam Dardess joined over 3,000 leaders in health care and quality improvement at CMS's Quality Conference. IPFCC has been a long-standing partner in key CMS initiatives to promote patient and family engagement in hospitals and ambulatory care settings.

PFCC in the Field
Partnering with Patient and Family Advisors During a Pandemic 

small christ hospitalKeesha Goodnow is the Coordinator and Co-Facilitator of the PFAC at
Christ Hospital Family Medicine Center and assisted with the expansion of PFACs at a Federally Qualified Health Center in three sites. In the midst of COVID-19, they are partnering virtually with their PFACs to help in several areas including communicating with patients, educating patients, and distributing information about resources throughout their communities. Keesha recently wrote an article, Three Reasons to Prioritize Your Patient and Family Advisory Council During the Coronavirus Pandemic in Physician Practice outlining their collaborative efforts. Read more about their PFACs.

Hôtel-Dieu Grace Healthcare is a unique community hospital (a sub-acute facility) offering services in Mental Health & Addictions; Rehabilitative Care; Complex Medical and Palliative Care; and Children and Youth Mental Health. HDGH also offers a unique blend of services including but not limited to community and home based services in Windsor Ontario. 

The hospital transitioned from Pandemic Planning to instituting an Incident Management Response Team for COVID-19. It involved patient and family advisors—the PFAC Chair and the patient advisor who sits on the Governing Board and consulted with the HDGH ethicist. The PFAs assisted in planning a "No visitor" policy (with the exception patients who are at end of life) and developing a letter and FAQ sheet given to every inpatient. The PFAC, along with HDGH staff, are helping establish a "Family Support Team" to connect in person with patients and facilitate virtual connections with their families. PFAC members are participating in this planning via teleconference. 

Resources and Opportunities
COVID-19 Resources and Information
  • IPFCC’s webinar held on March 24th and 26th, "Patient- and Family-Centered Strategies in the Time of COVID-19” provided insights and hope during this stressful time. Honoring the essential partnerships developed with patients, families, and communities is important especially now. IPFCC reached out to patient- and family-centered leaders working in the field to identify emerging best practices and resources. Listen to the recording and access slides and handouts here

    words matter 
    The choice of words and tone matter in all 
    communications about COVID-19.

  • The New England Journal of Medicine now offers all content on COVID-19 at no cost, without a subscription.

  • The American Institutes for Research (AIR) developed a plain-language FAQ sheet on COVID-19, as a resource for schools, day cares, healthcare organizations, and other public centers to distribute.

  • Planetree International hosted a webinar on March 18th, “Let’s Talk About Person-Centered Care During Pandemics.” Access the recording, slides, and handouts on their website.

  • The Beryl Institute is hosting a series of free webinars on COVID-19, every Thursday in April at 2pm ET as well as a Facebook Live every Friday at 11 am ET. To register and find other resources, visit their website.


Join us on Tuesday, March 31st at 12 pm ET to discuss COVID-19: Exploring PFCC Strategies and Challenges. The informal conversation will be facilitated by Mary Minniti. This is not a webinar or formal presentation but rather a discussion guided by sharing our collective experiences. Any PFCC.Connect member can access the recordings of previous conversations in the PFCC.Connect library. If you're not a member, join today!

Have an idea for future PFCC.Connect conversations? Send them to mminniti@ipfcc.org.

TakeCHARGE – 5 Steps to Safer Health Care
TakeCHARGE is a new patient safety initiative organized by the Pulse Center for Patient Safety Education & Advocacy. The TakeCHARGE campaign outlines five steps that anyone can take to improve their chances of a positive outcome from medical care. Learn more here.

Story Booth
The MyPaTH Story Booth team has launched a new website to share stories whats your storybetween patients, health researchers, and clinicians and to make patients’ voices central to health research. Users can search for and listen to stories, learn about engagement opportunities, and browse a collection of resources for supporting stakeholder-engaged research teams. IPFCC served on the Stakeholder Advisory Board and is proud to be a current Partner. 

2020 Partnership Award
Are you or someone else in your organization doing inspiring work to improve health care in partnership with patients and families? Then don’t miss the opportunity to submit a nomination for IPFCC’s 2020 Partnership Award! The deadline for nominations is May 6, 2020. Learn more here.

Institute for Patient- and Family-Centered Care
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