May 2020
Issue 132

IPFCC Events
IPFCC's 9th International Conference…is going VIRTUAL!
Due to serious concerns about COVID-19 and our commitment to promoting safety for all, IPFCC has made the decision to shift to a fully virtual conference and cancel our in-person conference, originally scheduled to take place in Nashville, TN. Instead…we’re bringing the fun, uniqueness, and music of Nashville to you! Join us for IPFCC’s 9th International Conference, in a virtual format! Learn more here.

2020 Partnership Award Deadline Extended to June 8th
There’s still time to submit your nomination for IPFCC’s 2020 Partnership Award! This year the award will be presented virtually during the Conference on August 20th. Learn more here and submit your nomination today!

Impact of COVID-19 on PFCC
IPFCC teamed up with UCSF Department of Family Health Care Nursing, School of Nursing and the University of Washington School of Nursing to develop the survey, COVID-19 Impact on Patient- and Family-Centered Care Policies and Practices, to gather information about changes to policies and practice due to COVID-19. It also explores how hospitals and health systems are engaging patient and family advisors in planning and implementing changes. Data (de-identified) from the survey will be reported on UCSF PTBi’s and IPFCC’s websites on an ongoing basis. Learn more about the survey. Data (de-identified) from the survey will be reported on UCSF PTBi’s and IPFCC’s websites and updated every 2 weeks. Ensure that your hospital is included by completing the survey today.

PFCC and Pediatric Partnerships During COVID-19

Funded by a grant from the Lucile Packard Foundation for Children's Health, IPFCC is offering a series of free webinars and online conversations about children's hospitals and other pediatric settings focused on PFCC during COVID-19. These special events will occur monthly from June through October 2020. Upcoming events include a webinar on June 25th and a PFCC.Connect Pediatric Informal Conversation on July 28th. Registration information will be sent out in June through Pinwheel Pages and to members of the PFCC.Connect community.

PopUp pic"Pop Up" Coalition for Preserving Family Presence
On May 12, 2020, more than 70 individuals, including IPFCC’s Bev Johnson and Deborah Dokken, participated in a virtual meeting sponsored by Planetree International and the Pioneer Network. The coalition of more than 60 organizations involved in the meeting developed the newly-released Guidelines for Preserving Family Presence in Challenging Times.

We've Been Here Before: Learning from the Lessons of the Past
Liz Crocker, IPFCC’s Board and faculty member, wrote a commentary reflecting on stories and lessons from past pandemics such as SARS and H1N1. Now, in the midst of our public health battle with COVID-19, Liz asks important questions about the consequences of extreme restrictions on family presence for hospitalized patients and older people in long-term care settings during a public health crisis.

PFCC in the Field
Johns Hopkins Medicine (JHM) PFACs at Work during COVID-19
Across JHM’s six hospitals, Home Care Group, and Johns Hopkins Community Physicians practices, there are more than twenty active PFACs with over 500 members. During COVID-19, the majority of the PFACs have continued their monthly meetings, using virtual tools. Among other projects, PFACs have reviewed COVID-19 website content and some members have served as “test family members” to prepare medical students for conversations with family members who have a loved one in intensive care. PFACs will continue to provide advice as JHM opens up elective procedures and outpatient appointments.
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Resources and Opportunities
OpenNotes Expands to OurNotes
In response to the vastly increased use of telemedicine during COVID-19, Beth Israel Deaconess Medical Center and other sites are testing the use of notes for pre-work for primary care telehealth visits. This pilot effort was summarized in an article in the 5/12/20 issue of the NEMJ Catalyst.
Read the article

On May 26th, PFCC.Connect hosted an informal conversation on PFCC and Pediatric Partnerships during COVID-19. The group brainstormed and identified the issues, concerns and challenges that have emerged during this unprecedented time. This information will be used to guide other events and resource development for children’s hospitals and other pediatric settings. If you have ideas and thoughts you would like to share, please email Deborah Dokken at ddokken@ipfcc.org.

If you missed the May 12th informal conversation Continuing Conversation on COVID-19: Spotlight on Language and Messaging to Promote/Sustain Partnerships or the May 26th conversation, you can access both recordings on the PFCC.Connect library. Become a PFCC.Connect member today and get access to all recordings and any mentioned resources!

Connecting with Patients During COVID-19: A Panel Discussion
A recently released report from Vizient, Connecting with Patients During COVID-19: A Panel Discussion shares the perspectives of patient and family advisors across the country about restarting elective surgeries.
Read the report

Striving for Inclusivity in COVID-19 Public Health Messaging
Striving for Inclusivity in COVID-19 Public Health Messaging, addresses inequities in communication about COVID-19 and provides some insights and strategies offered by experts in the field.
Read the article

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