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September 2020
Issue 135
IPFCC Events
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And that's a wrap!
Conf Quote 2From August 18 – September 10, nearly 550 participants, including over 180 patient and family advisors, gathered virtually for the IPFCC Virtual 2020 Conference! An amazing 221 organizations from 16 countries including the U.S. and Canada were represented. Plenary presentations, breakout sessions, and posters provided both inspiration and practical strategies related to the Conference’s theme of promoting partnerships for quality, safety, and equity. Registrants can view all session recordings and explore the Poster Gallery from now until December 31st. We want your feedback! 
There's still time to register and view all recordings. Learn more here.

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IPFCC At Work

National Survey on Patient and Family Faculty Programs
IPFCC is partnering with Vizient to conduct a national survey regarding patient and family faculty programs in continuing education for health professionals and in undergraduate, graduate, resident, and interprofessional education. The survey will be disseminated in October. Do you have a patient and family faculty program at your organization? If so, we want to make sure your perspective is included. Please send key contact information to Marie Abraham, at mabraham@ipfcc.org.

Building Effective Multistakeholder Teams
On September 16th, Pam Dardess, IPFCC’s VP for Strategic Initiatives and Operations, participated in a panel for PCORI’s Annual Meeting, “Building Effective Multistakeholder Teams.” The panel discussed a new resource package created by PCORI. A free self-paced online training tool is currently available to help people engage in patient-centered outcomes research, regardless of prior experience.

Addressing Health Inequities through Patient / Community Engagement
On September 17th, Mary Minniti, CPHQ, IPFCC’s Senior Policy and Program Specialist, moderated a panel entitled Addressing Health Inequities through Patient / Community Engagement. She was joined by Kelly Bruno, President & CEO, National Health Foundation, Libby Hoy, Founder & CEO, PFCCpartners, Maria Lemus, Executive Director, Vision y Compromiso and Leticia Reyes-Nash, Director of Programmatic Services and Innovation, Cook County Health and Hospitals System. This webinar was part of a series on Health Equity offered by Center for Care Innovations. View the recording here.
Resources and Opportunities

Impact of COVID on Family Presence

Deborah Dokken, IPFCC Coordinator for Patient and Family Partnerships, co-authored a guest editorial titled “Family Presence During Challenging Times” in the July/August 2020 issue of Pediatric Nursing journal. Read the article.


Strategies to Improve the NICU Setting
Bev Johnson, IPFCC’s President and CEO, and Marie Abraham, VP, Programming and Publications, recently co-authored an article, "Reinforcing the Essential Role of Families Through First Impressions of the Physical Environment," published in a special supplement of the Journal of Perinatology, Creating the Optimal Environment of Care in the Newborn ICU: Recommended Standards for Newborn ICU Design. This article describes design strategies to create a series of positive welcoming first impressions in a NICU to support families in their parental roles and as essential members of the care team. Access the issue.

Upcoming & Past Webinars

  • Patient- and Family-Centered Care and Pediatric Partnerships during COVID-19: Moving Forward with New Learnings and Strategies
    October 29, 2020, Noon EDT
    Register here

    Through a variety of ways, IPFCC has been able to observe what the field has done since March 2020. COVID-19 has highlighted certain issues and a number of pediatric settings have responded creatively to maintain the “essence” of patient- and family-centered care, often utilizing partnerships with patients and families. This webinar will summarize and share some of these emerging best practices.
  *FREE* Webinars on COVID-19: Recordings Now Available!

Upcoming & Past Conversations
pfcc connect

September 29th 
PFCC and Pediatric Partnerships during COVID-19: Finding Strength in Crisis
Register Here


August 10th
PFCC Partnerships: Addressing Isolation and Emotional Well-being during the Pandemic
View Here

If you missed conversations, we encourage you to listen to recordings and access materials/slides at PFCC.Connect Library. A new special topics group on Behavioral Health was recently created for those interested in this topic. Consider joining PFCC.Connect today!
Institute for Patient- and Family-Centered Care
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301-652-0281
www.ipfcc.org