Issue 159 | November/December 2022

IPFCC Events

IPFCC’s 30th Anniversary Celebration

On November 15, 2022, IPFCC celebrated its 30th Anniversary with a special virtual event, Transforming Health Care Through Partnerships: A Vision for the Future of PFCC. We highlighted achievements in the field by honoring the 2022 IPFCC Partnership Award recipients and explored the future of patient- and family-centered care with an inspiring panel. Thank you all for supporting IPFCC as we reach this important milestone! If you missed the live Celebration, a recording of the event is available here.


Visit IPFCC’s Partnership Award page to learn more about this year’s recipients.


The Intersection of Diversity, Equity, and Inclusion with Pediatric Patient and Family Advisory Councils

IPFCC's Pam Dardess and Deborah Dokken are co-authors of a new article in the Patient Experience Journal presenting results from a mixed methods study of children’s hospitals’ patient and family advisory councils (PFACs). The article focuses on PFAC diversity, exploring barriers, drivers, and enablers of recruitment, retention, and engagement of patient and family advisors with diverse perspectives and backgrounds. The work was done in conjunction with a team from the Cincinnati Children's Hospital Medical Center led by Dr. Ndidi Unaka, and with funding support from the Lucile Packard Foundation for Children's Health. Read the article here

Resources and Opportunities


Special thank you to our Pinwheel Sponsors for supporting and celebrating our 30th Anniversary! With your 2023 sponsorship, IPFCC can continue our work to transform health care by developing and sustaining meaningful partnerships with patients and families in all settings.

Pinwheel Sponsor organizations will gain national and international visibility of your commitment to patient- and family-centered care. We invite you to renew or join today by completing the online Pinwheel Sponsor Application. If you need more information, please feel free to contact Sherry Hajec at

Essential Partners — Patient and Family Advisors

As IPFCC continues our 30th Anniversary celebration this year, we want to recognize and thank the amazing patient and family advisors/partners who are helping improve health care for all! We are excited to highlight several Pinwheel Sponsors’ PFAs on our website’s new section, Patient and Family Advisors in Action.

Health Systems Strategies to Ensure a Focus on Children with Health Complexity

The Lucile Packard Foundation for Children's Health has an upcoming webinar on Wednesday, December 7th at 10 am PST on how health systems can identify and support children with health complexity. Presenters will share actionable strategies and models that can be used to improve services and supports for families. Attendees are asked to read the brief Health Systems Strategies to Ensure a Focus on Children with Health Complexity prior to the webinar. Join the discussion and register here

Optimizing Pediatric Patient Safety in the Emergency Care Setting

The American Academy of Pediatrics recently revised the policy statement titled “Patient Safety in the Emergency Care Setting.” This is the first joint policy statement by the American Academy of Pediatrics, the American College of Emergency Physicians, and the Emergency Nurses Association to address pediatric patient safety in the emergency care setting. This policy statement outlines the recommendations necessary for EDs to minimize pediatric medical errors and to provide safe care for children of all ages. Read the statement here.

Special Thanks to Our 2022 Pinwheel Sponsors!

Akron Children's Hospital

Alliant Health Solutions

American College of Radiology

Augusta University Health

Centre for Addiction and Mental Health

Chatham-Kent Health Alliance

Children's Mercy Kansas City

Children's Minnesota

Children's Specialized Hospital

Emory Healthcare

H. Lee Moffitt Cancer Center & Research Institute

Hasbro Children's Hospital

IWK Health Centre

Joe DiMaggio Children's Hospital

Luminis Health/Anne Arundel Medical Center

MHA Keystone Center

Nationwide Children's Hospital

Penn State Health Milton S. Hershey Medical Center

Providence Health Care

St. Louis Children's Hospital

Stanford Health Care

Thunder Bay Regional Health Sciences Centre

University of Iowa Stead Family Children's Hospital

University of Miami Health System

University of New Mexico Children's Hospital

Vanderbilt University Medical Center

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