April 2017
Issue 101 
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IPFCC's 8th International Conference – Call for Abstracts Coming in May 

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8th International Conference on Patient- and Family-Centered Care: Promoting Health Equity and Reducing Disparities will be held in Baltimore, MD, June 11-13, 2018. The Conference theme highlights the importance of building authentic and sustainable partnerships with individuals and families living in diverse and underserved communities to eliminate disparities in health and health care. In late May, the Call for Abstracts materials will be available and the online submission site will be open.
With leadership
support from
Johns Hopkins Medicine logo

American College of Physicians’ Internal Medicine Annual Meeting
Three years ago, the American College of Physicians (ACP), the largest medical specialty organization in the U.S., launched a new Center for Patient Partnership in Healthcare (CPPH) to “engage patients, families, and patient organizations as partners with ACP in designing patient-centered care delivery and in developing educational materials for patients.”

As part of that overall effort, IPFCC President and CEO, Bev Johnson, and a group of patient advisors were invited to attend ACP’s recent Internal Medicine Annual Meeting in San Diego “to observe various educational events, venues, and sessions . . . to provide recommendations for future years.”

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At the Annual Meeting’s Convocation Program, Bev Johnson was the recipient of the Edward R. Loveland Memorial Award. The award, established in 1961, recognizes a layperson or lay organization for a distinguished contribution in the health field.

Partnerships in Safety – Children’s Mercy Hospital
Children's Mercy entrance photo 

Children’s Mercy (CM) in Kansas City, MO, has a long history as an institution committed to the philosophy of family-centered care. Currently, it has eleven Patient Family Advisory Councils, a parent mentor program, and parent advisors on a number of hospital committees. There is now a parent advisor on every hospital-acquired condition (HAC) committee and advisors are regular contributors to improving safety processes. CM also has a dedicated FCC Department made up of six parents and a former patient on staff.

Recently, the Surgical Site Infection (SSI) team noted that pre-surgery baths were not being done regularly/properly by parents – thereby, increasing infection risk for patients. With the help of advisors, the team created an educational video, “Bathing Your Child Before Surgery,” (in both English and Spanish) to teach the importance of pre-op bathing and the proper way to do it. The video is shown in the pre-admission testing visit prior to a child’s surgery as well as being on the hospital website. The video’s narrator is a member of CM’s Family Advisory Board who tells parents, “You’re one of the most important members of your child’s health care team. Let’s work together to prevent surgical site infections.” Since the introduction of the video, the hospital’s SSI bundle reliability rate has improved from 92.65% to 99.08%.

Primary Care Corner – Memorial Health University Physicians (MHUP)
IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support Alignment Network (SAN). This column provides highlights from the field. 
Memorial Health University Physicians (MHUP) is a hospital-affiliated physician practice group, in Savannah, GA. MHUP is a multispecialty, multi-site medical group, including two large academic practices. Ten primary care practices within MHUP are Level 3 certified Patient-Centered Medical Homes. In 2016, these ten Primary Care practices in Georgia and South Carolina decided to create a Patient Advisory Board (PAB). The objective was to create a formal mechanism where patients, families, and caretakers had a voice in operational decisions and strategy for the practice – where they were truly at the “center of care.”

With the goal of recruiting approximately three patients from each primary care practice, MHUP staff engaged in a deliberate, multi-step process to identify potential PAB members. Using models from the San Francisco Health Network and hospitals in the Memorial Health System, MHUP also developed a PAB Handbook that outlines the vision and goals/outcomes for the Patient Advisory Board, including:
  • Leverage the patient voice . . . to improve our delivery of comprehensive, compassionate patient centered care.
  • Strengthening communication and transitions between healthcare settings.
During the first meeting, an 80-year-old patient shared her reason for agreeing to serve on the PAB: “I am here because I want to help my doctor’s office the way they have helped me the past 12 years. They have always steered me in the right direction with my health. So whatever I can do to give back to my doctor’s office, I’m happy to do. So I’m happy to be here and represent my experiences and people like me.”

In the future, MHUP hopes to expand the Patient Advisory Board in an effort to gain more perspectives from specialty and surgical practices. Currently, 1 in 4 patients on the PAB sees physicians in other specialty areas (e.g., cardiology, oncology). MHUP is also designing a long-term patient recruitment process for adding new PAB members.
Spotlight on TCPI Person and Family Engagement Performance (PFE) Metrics
We continue this month to share resources to help ambulatory practices embed PFE performance standards into the way they provide care and operate their practices. Below, we briefly explore the metric, Point of Care, Shared Decision-Making.

“Does the practice support shared decision-making by training and ensuring that clinical teams integrate patient-identified goals, preferences, outcomes, and concerns into the treatment plan (e.g., those based on the individual’s culture, language, spiritual, social determinants, etc.)?”

The intent of this metric is to ensure that patients (and their families) are authentically part of the care team. Shared decision-making is a collaborative process and gives patients the opportunity to express their own values, desires, and outcomes for treatment. Patients need to be encouraged and supported to participate and be given useful and affirming information about their choices.

The following resources provide more information about implementation of shared decision-making to promote engagement.

Visit the PCPCC Support and Alignment Network website for information on upcoming events, as well as resources and other information to support patient- and family-centered care.

If you already partner with patients and families to improve primary or ambulatory care and want to share your successes or learn more, IPFCC hosts a free online learning community for Primary and Ambulatory Care Partnerships on its PFAC Network. Additional discussion on the PFE Metrics will occur through this online community. For more information about joining, please contact Mary Minniti.

Integrating Caregivers in Discharge Planning Reduces Hospital Readmissions
A new study conducted by the University of Pittsburgh Heath Policy Institute confirms that involving family caregivers in the discharge planning process for older adults in both hospitals and skilled nursing facilities reduces readmissions. The study was a meta-analysis of 15 randomized control trials. The researchers found that involving family caregivers in the discharge process resulted in 25% less risk of 90-day readmission and 24% less risk of 180-day readmission. Access the abstract.

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For resources about involving family members and care partners as members of the health care team, including in discharge planning, visit the Better Together section of IPFCC’s website. 

In this Issue 
  • 8th International Conference – Call for Abstracts Coming in May

  • American College of Physicians’ Internal Medicine Annual Meeting

  • Partnerships in Safety – Children’s Mercy Hospital

  • Primary Care Corner – Memorial Health University Physicians (MHUP)
  • Integrating Caregivers at Discharge Reduces Hospital Readmissions
  • Webinars
  • New Culture Change Toolkit for Primary Care Practices
  • Julie Moretz Returns to Augusta
  • Patient Engagement – Catalyzing Improvement and Innovation in Healthcare
  • Join IPFCC to Celebrate Its 25th Anniversary
Upcoming Webinars 

Involving Patient and Family Advisors as Teachers in Medical Education

Kelly Parent, BS

Kate Balzer, MSW
Michigan Medicine

Trisha Paul, BS
University of Michigan Medical School

Get more details and register.


A Beginner's Guide to Advancing Patient- and Family-Centered Care

Marie Abraham, MA

Julie Moretz, BS
Augusta University Medical Center

CNE Credit Available

Get more details and register.

Featured Webinar Recordings

Missed one of these IPFCC webinars? Register to view the recording!

Partnering with Security to Sustain PFCC in Escalated Situations

Communication Essentials for Patient- and Family-Centered Care

View More Recordings.

IPFCC Webinars are a cost-effective educational resource. Cost is per line, so a group of any size can participate from the same location on one line. Learn more

New Culture Change Toolkit for Primary Care Practices 
Developed by Planetree in collaboration with the PCPCC SAN, with assistance from IPFCC, this new resource is now available to download.

Julie Moretz Returns to Augusta
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Julie Moretz, IPFCC faculty member and former IPFCC staff member, has been appointed Assistant Vice President of Patient- and Family-Centered Care/Chief Experience Officer for AU Medical Center in Augusta, GA. Julie’s work was inspired by her young son’s battle with heart disease as he underwent multiple surgeries and a heart transplant. In 1995 she became the inaugural volunteer Chair of the Family Advisory Council at the Medical College of Georgia (now AU Health). She was then hired as Director of Family Services Development at MCG. From May 2013 to May 2017, Julie served as Associate Vice Chancellor for Patient- and Family-Centered Care at the University of Arkansas for Medical Sciences.

Patient Engagement – Catalyzing Improvement and Innovation in Healthcare
Published in 2016, Patient Engagement – Catalyzing Improvement and Innovation in Healthcare is a casebook that provides examples of health care organizations in Canada, the U.S., and England that have advanced patient- and family-centered care and patient engagement. The book’s editors are G. Ross Baker from the University of Toronto and Maria Judd and Christine Maika from the Canadian Foundation for Healthcare Improvement.

The book is available through Amazon.

Join IPFCC to Celebrate Its 25th Anniversary  
We are celebrating IPFCC’s 25 years of leading the field in patient- and family-centered care and our commitment to continue that work into the future.
 25th anniversary Pinwheel
Join us for the Gala dinner at the National Press Club in Washington, DC, November 3, 2017. IPFCC’s accomplishments under the leadership of Bev Johnson, Founder, President and CEO, will be recognized. More information will follow in the upcoming months about this special celebratory event. And, please consider making a contribution to IPFCC to support and expand its work.  



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About Us
Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care (IPFCC) works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.

Institute for Patient- and Family-Centered Care
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