February 2018
Issue 110

IPFCC Events
Conference Banner
Dynamic Experts Featured during Plenary Sessions at the 8th International Conference
  • Dr. Leana Wen, Commissioner of Health in Baltimore City
  • Julia Lanham, Patient and Family Advocate at Carolinas HealthCare System, and DeeJo Miller, Patient and Family Program Manager for Children's Mercy Kansas City
  • Dr. Sarah Wakeman, Medical Director for the Substance Use Disorders Program at MassGeneral Hospital, and Tamela Milan-Alexander, Partnership and Outreach Worker at Access Westside Healthy Start Community Action Network
  • Dr. Toyin Ajayi, Chief Health Officer at Sidewalk Labs' Care Lab
Don't miss these inspiring presenters! Download the Program Brochure and Register Today!
June 11-13, 2018
Baltimore Marriott Waterfront
Baltimore, MD
With leadership support from With program support from
logoJohnsHopkinsMedicineHorizontal logoPCORI

PFA Summit on the Opioid Epidemic
IPFCC is pleased to collaborate with PFCCpartners to convene the 3rd Annual Patient / Family Advisor (PFA) Summit. Focusing on the opioid epidemic, the PFA Summit will be held on June 10, 2018 in Baltimore, MD, directly before IPFCC’s 8th International Conference, with leadership support from Beaumont Health. The Summit will provide a collaborative space where patient and family advisors can strengthen their skills, and federal agencies and national organizations can learn to partner effectively with patient and family advisors to address the opioid epidemic.

Advisors attending IPFCC's 8th International Conference are welcome to attend the PFA Summit on the Opioid Epidemic to learn with invited national partners. Space is limited. For more information, contact Pam Dardess or Libby Hoy.
In collaboration with:  With leadership support from:

Upcoming Webinars
PFCC in the Field 
IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support Alignment Network (SAN).
This section brings stories from the field, from this initiative and others, right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.
Maine Quality Counts: Helping Patients "Choose Wisely"
Maine Quality Counts is sharing the national Choosing Wisely campaign with consumers/patients, health care providers, health plans and employers in Maine. The goal is to help patients/consumers understand why they should become more involved in their health and why they should have more informed conversations with their doctors and other health care providers.
Read more
Resources and Opportunities
Patient Safety Awareness Week
A joint initiative of the Institute for Healthcare Improvement (IHI) and the National Patient Safety Foundation (NPSF), the week is designed as a dedicated time and platform to increase awareness about patient safety among health professionals and the public. This year, Patient Safety Awareness Week is March 11-17, 2018.

Various downloadable materials are available, as well as items that can be ordered to help mark Patient Safety Awareness Week. IPFCC would love to hear how staff and patient and family advisors are collaborating in patient safety. Email us at institute@ipfcc.org or log onto our PFCC.Connect learning community to share.
Patient Safety Week 2018 

Giving Healthcare Consumers A Voice: The Role of Philanthropy
In a recent Health Affairs blog, Amy Shefrin, Program Officer for the New York State Health Foundation, discusses the role of foundations in giving patients and families “a voice and a seat at the table.” One of NYSHealth’s priority funding areas is “Empowering Health Care Consumers.”
Read more

Health Care Transformation Task Force
From a Recent Report, "Consumer Engagement Structures and Mechanisms"
In outlining opportunities to partner with patients at the organizational and policy levels, the report suggests four areas needing additional analysis and development of best practice: (1) Consumer/patient recruitment; (2) Consumer/patient training; (3) Operational structures to support consumer engagement; and, (4) Integration across “silos of patient engagement” within organizations.
Read the report

OpenNotes Logo
OpenNotes in Pediatrics
OpenNotes, the international movement that encourages clinicians to share their notes with patients and families, is moving into pediatric settings. Read the “Family Matters” section in the January/February 2018 issue of Pediatric Nursing to learn more about OpenNotes generally – and in pediatrics.

IPFCC at Work
Nominate a Team Today!
Don’t wait any longer! Nominate a team from your organization for IPFCC’s 2018 Partnership Award. Online nominations must be received no later than March 26, 2018; winning teams will be honored at the 8th International Conference on Patient- and Family-Centered Care in June 2018.

pfcc connect Share and Learn!
  • Are you a patient/family advisor? 
  • Do you like to meet new people who share their lived experiences to make health care better?
  • Would you like to explore tools and resources created by others in the field?
If you answered YES to any of these questions, we encourage you to join PFCC.Connect, our free online learning community. Meet other individuals who value partnership, enjoy sharing their experience, and collecting ideas and inspiration from others. Our membership spans the globe, represents many kinds of health care settings, and includes a variety of people and disciplines.

Institute for Patient- and Family-Centered Care
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