March 2018
Issue 111

IPFCC Events
Conference Banner
Author's Luncheon with John Kerstetter, MD
Participate in a memorable Author’s Luncheon on the last day of the Conference! Jon Kerstetter, MD, author of Crossings: A Doctor-Soldier’s Story, will be interviewed by IPFCC Board member and author, Liz Crocker, about his childhood on a Native American reservation, his time as a combat physician, and his recovery from a stroke. Liz will ask Dr. Kerstetter about both the challenges and insights gained moving from healer to one who needed to be healed, what mattered most in that transition, and what it meant to write and share his story.
Kerstetter Photo - Credit Nicole Kerstetter Kerstetter_Crossings_final
 Download the Program Brochure and Register Today!
Photo credit: Amy Kerstetter  
June 11-13, 2018
Baltimore Marriott Waterfront
Baltimore, MD
With leadership support from With program support from
logoJohnsHopkinsMedicineHorizontal logoPCORI

PFA Summit on the Opioid Epidemic
IPFCC is pleased to collaborate with PFCCpartners to convene the 3rd Annual Patient / Family Advisor (PFA) Summit. Focusing on the opioid epidemic, the PFA Summit will be held on June 10, 2018 in Baltimore, MD, directly before IPFCC’s 8th International Conference, with leadership support from Beaumont Health. The Summit will provide a collaborative space where patient and family advisors can strengthen their skills, and federal agencies and national organizations can learn to partner effectively with patient and family advisors to address the opioid epidemic.

Advisors attending IPFCC's 8th International Conference are welcome to attend the PFA Summit on the Opioid Epidemic to learn with invited national partners. Space is limited. For more information, contact
Pam Dardess or Libby Hoy.
In collaboration with:  With leadership support from:

Upcoming Webinars
PFCC in the Field 
IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support Alignment Network (SAN).
This section brings stories from the field, from this initiative and others, right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.
Southwest Pediatric Practice Transformation Network (PTN)
Through TCPI, the Southwest Pediatric PTN has supported more than 230 pediatric practices in transforming their delivery of care, including actively engaging parents. Through the mechanism of PFACs, parents informed the development and implementation of Pediatric Clinical Guidelines for pneumonia.
Read more
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Resources and Opportunities
Conference Scholarship Program for Consumer Empowerment download
The New York State Health Foundation (NYSHealth) has just renewed its Conference Scholarship program, open to New York-based organizations, to receive up to $2,000 per person to cover registration and travel expenses to attend a patient/consumer empowerment conference. IPFCC’s upcoming 8th International Conference on Patient- and Family-Centered Care is an eligible conference under the scholarship program.
Access the application

Diverse Voices Matter: Improving Diversity in Patient and Family Advisory Councils
Diversity Resource
Even well-established PFACs often struggle with achieving diversity in their members. This new publication was created by Kendra Jones, a DNP student at the University of Minnesota, and developed in collaboration with IPFCC and five PFACs. It outlines strategies for recruiting and keeping “diverse voices” on PFACs and includes a number of practical tools.
View the Toolkit

Person-Centred Care: A Year in Review
Cancer Care Ontario recently published its 2017 annual report, highlighting patient, family, and public advisors as well as innovative activities across Ontario’s cancer and renal centers that are improving the health care experience for patients.
Read the report

Report of Better Together Policy Roundtable
Better Together BannerSince 2014, the Canadian Foundation for Healthcare Improvement (CFHI), IPFCC’s Canadian partner for the Better Together initiative, has encouraged the adoption of family presence policies across Canada. Nearly 50 Canadian hospitals and health care organizations have pledged to be part of the campaign. To continue the campaign’s momentum, CFHI hosted a pan-Canadian Better Together Policy Roundtable in September 2017. Patients and families participated in the Roundtable and were actively involved in its planning.
Read the Roundtable report

IPFCC at Work
Nominate a Team Today!
Don’t wait any longer! Nominate a team from your organization for IPFCC’s 2018 Partnership Award.
The deadline for online nominations has been extended and must be received no later than April 5, 2018. Winning teams will be given two discounted registrations for and honored at the 8th International Conference on Patient- and Family-Centered Care in June 2018. They will also have the opportunity to present at the 9th International Conference in 2020.

IPFCC Staff Member Supports Children's National Medical Center
On March 3, IPFCC Communications Specialist, Annette Lee, participated in Terp Thon’s dance marathon at her alma mater, the University of Maryland, College Park. Terp Thon is a student-led organization that raises awareness and funds For The Kids at Children’s National Health System, their local Children’s Miracle Network hospital. Their yearlong efforts culminate at the annual 12-hour dance marathon, representing the length of a typical nurse’s shift at the hospital. This year, Terp Thon raised $734,617.10, totaling to over $4 million raised for the hospital since it was established in 2009.
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pfcc connect Join for a Chance to Win!
Do you or someone you know want to connect with others (patient and family advisors, health care staff and clinicians or PFCC Coordinators) to learn together and share resources and ideas? PFCC.Connect the free online learning community could be just the ticket.

IPFCC is encouraging new members to join PFCC.Connect by offering the following incentives:
  • For new members who are in the role of a patient family advisor, you will be entered in a drawing to win a copy of Words of Advice.
  • For any current members of PFCC.Connect that recruit new members (especially patient and family advisors), you will be entered in a drawing to win a copy of Privileged Presence. Be sure and have your referrals enter your name into the registration field: How did you hear about PFCC.Connect?
  • And the individual who recruits the most new PFCC.Connect members by May 1 will receive a free IPFCC webinar registration.
Join PFCC.Connect Today!

Institute for Patient- and Family-Centered Care
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