May 2019
Issue 122

IPFCC Events

Don't Miss Out!
There is still time to register for IPFCC’s intensive seminar, Moving Forward with Patient- and Family-Centered Care: Partnerships for Quality & Safety. Join us for this acclaimed educational event to position your organization at the “cutting edge” in patient- and family-centered care! The seminar will be held on June 13-14, 2019 at the Crowne Plaza Detroit Downtown Riverfront Hotel.

Review the Program and Register Now
Partnering with Patients and Families to Address the Opioid Epidemic
Building on its June 2018 PFA Summit on the Opioid Epidemic and the resulting White Paper, IPFCC will bring the “voice” of patients and families to the National Academy of Medicine’s new Action Collaborative on Countering the U.S. Opioid Epidemic. IPFCC is one of the Collaborative’s Networking Organizations and IPFCC’s President and CEO, Bev Johnson, serves on the Collaborative’s Health Professional Education and Training Work Group that met on April 29-30 in Washington, DC. Please contact IPFCC if you know of educational programs for health professions in which patients and/or families with lived experience are serving as faculty.
Learn more about the Collaborative

Upcoming Webinars
Featured Recorded Webinars
PFCC in the Field
IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support Alignment Network (SAN).
This section brings stories from the field, from this initiative and others, right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.
Clinica Family Health
Located outside of Denver, CO, Clinica is a federally qualified health center providing integrated care for people of all ages. In 2018, its six outpatient clinics cared for more than 57,000 patients. Through a variety of mechanisms, including Patient Voice Committees, Clinica solicits and utilizes patient and family perspectives at all levels of the organization.
Read more
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 Honors for Patient/Family Leaders
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Caroline (on left) pictured with MUSC Provost, Dr. Lisa Saladin.
Caroline DeLongchamps, Manager, Patient- and Family-Centered Care, at MUSC Health addressed MUSC’s 2019 graduating class during commencement ceremonies on May 18th. She was also awarded an honorary Doctorate of Humane Letters. Congratulations, Caroline!

Amy Kratchman

Amy Kratchman, Director of Family Collaboration for the LEND Program at the Children’s Hospital of Philadelphia, has been appointed to a new National Family Health Care Transition Advisory Group that advises Got Transition™, the national resource center that assists youth and young adults in the transition from pediatric to adult health care.

Solutions for Kids in Pain (SKIP)

The Canadian government recently awarded a $1.6-million grant, over four years, for Solutions for Kids in Pain (SKIP), a new network to improve children’s pain management. SKIP will include more than 100 Canadian and international partners working together to put evidence-based solutions to child pain into practice.
More information and resources
Resources and Opportunities
AHA Quest for Quality Prize
The 2020 application process is now open for the Quest for Quality Prize. The Prize, with a top award of $75,000, is presented annually to recognize health care leadership and innovation in providing and improving quality and advancing health in communities. 2019 recipients will be honored at the AHA Leadership Summit in July 2019. The 2018 Prize winner was Northwell Health.

Language Matters!
In the upcoming June 2019 issue of Health Affairs, IPFCC’s Letter to the Editor affirms the importance of language in health care. To highlight the essential role of patients and families, IPFCC promotes using language of partnership vs. that of consumerism. 
Purchase the journal or individual articles

Compassion Benefits All
NPRLogo_RGBNPR’s 4/26/19 “Health Shots” blog shares research about compassion in health care, summarized in a new book, Compassionomics: The Revolutionary Scientific Evidence that Caring Makes a Difference. The results show that compassion not only improves patient outcomes but also benefits providers.

Family Involvement in Health Outcomes of Youth

An article in the April 12, 2019 issue of PLOS ONE shared results of a qualitative research study done in Toronto, ON, Canada. Interviews conducted with family members highlighted the importance of incorporating families as partners in the care of youth receiving mental health and/or addiction services and the impact on the family unit.
Read the article

pfcc connect Watch Previous Discussion Recordings
Over the past several months, IPFCC has hosted free informal conversations for PFCC.Connect members on a variety of topics related to improving health care. Thank you to everyone who has attended and shared their insights and experiences in these discussions! The recordings, along with any resources that go along with them, are posted in the PFCC All Members Library. We welcome you to become a member, if you have not already, to gain access to these recordings and resources and continue to discuss these topics with others.
Join PFCC.Connect Today!

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