November 2019
Issue 127

IPFCC Events
Don’t Miss Your Cue! Submit An Abstract Now!
IPFCC’s 9th International Conference on Patient- and Family-Centered Care: Partnerships for Quality, Safety and Equity will be held in Nashville, TN (“Music City”) August 18-20, 2020. Please share your innovative and effective work in PFCC and partnerships and submit an abstract for consideration. Submit your abstracts online.

Stay tuned to future issues of Pinwheel Pages and IPFCC’s website for additional information about the Conference.
Resources for Patient and Family Faculty
packardBuilding upon its earlier study of PFACs in New York State, IPFCC has been awarded an 18-month grant by the Lucile Packard Foundation to conduct a national survey to identify the prevalence of PFACs in U.S. children’s hospitals and the factors that contribute to their effectiveness. IPFCC will partner with the Children’s Hospital Association to conduct the study.

New Edition of Sick, Scared & Separated From Loved Ones
The New York Public Interest Research Group (NYPIRG) released the 4th edition of the report, Sick, Scared & Separated From Loved Ones, earlier this month. Based on a survey of visitation/family presence policies at 40 hospitals across NYS, the report found that improvements were made during the 2-year survey period but “there is still work to be done to empower patients, their families and loved ones.” IPFCC collaborated with NYPIRG on the project and provided coaching and other resources to some of the hospitals surveyed through its Better Together Learning Community.
Access a free webinar recording about the report
SSSLO 11.19
Featured Recorded Webinars
Did you miss an IPFCC live webinar? We offer recordings of many of our recent webinars.
Learn more and view available webinar recordings
PFCC in the Field
This section brings stories from the field, from this initiative and others, right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.

PATH/Family Voices of Connecticut (FVCT)


PATH/FVCT integrates all parent-to-parent resources across the State of Connecticut. At the heart of its services is its Listener/Support Program that annually connects 300-400 families with trained mentors. Because of its strong partnerships with health care providers, PATH/FVCT receives about 50% of its referrals through that source.
Read more about the program
Review other resources about peer support

Resources and Opportunities
Patient Engagement_Book CoverNew Book About Patient Engagement
IPFCC's Pam Dardess has co-authored a chapter in Patient Engagement: How Patient-provider Partnerships Transform Healthcare Organizations. The book–which includes patient partners as co-authors–explores major achievements in patient engagement and discusses how partnerships with patients can transform and improve health care.
Bird's Eye View_book cover

Bird’s Eye View: Stories of a Life Lived in Health Care
In the prologue of her book published this year, Canadian author Sue Robins says, “The way patients communicate about themselves is not thru data or research. It is through stories.” Bird’s Eye View recounts Robins’ own experiences in the health care system as a patient, family member, and health professional.

Creating a Caring Health Care System
An article titled, “Careful and Kind Care Requires Unhurried Conversations,” in the October 30, 2019 issue of the NEJM Catalyst, advocates for a shared decision making approach where clinician and patient co-create a plan of care that “makes intellectual, practical and emotional sense” to the patient. This approach requires “unhurried conversations” for patient and clinician to truly work together. 
Read the article
pfcc connect Watch Previous Informal Conversations
Our latest informal conversation was held on November 21st on the topic of Strengthening Your Advisory Program. Become a member of our free online learning community today to gain access to the recording of this and all previous conversations, receive invitations for future conversations, and connect with others around the world also working toward PFCC.
Join PFCC.Connect Today!

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