January 2020
Issue 128

IPFCC Events
 Drumroll Please...Registration Is Open!
Save your spot at IPFCC’s 9th International Conference on Patient- and Family-Centered Care and start planning your visit to “Music City” (Nashville, TN) August 18-20, 2020.
Register Now

Stay “tuned” to future issues of Pinwheel Pages and to IPFCC’s website for up-to-date information about the Conference program and speakers.
nashville downtown


 IPFCC: Partnering with RMHC
January 2020_Bev in Kiev_IMG_3078 In December 2019, Bev Johnson, IPFCC’s President & CEO, attended Children’s Healthcare Canada’s annual meeting to speak with a team of leaders from Ronald McDonald House Charities (RMHC) Canada about international progress in advancing the practice of family-centered care. Later that month, Bev spoke in Kiev,Ukraine at the third country-wide conference on family-centered care sponsored by RMHC. Bev also conducted a site visit to a state hospital in Kiev where she visited several newborn intensive care units and a pediatric intensive care unit. For further information about RMHC's unique role globally in family-centered care, see its 2018 position paper.

January 2020_Cara and Justice_DSCN1743
Cara and her 
daughter, Justice
Cara Coleman Honored by Notre Dame
Cara Coleman, IPFCC’s Patient and Family Partnership Specialist, has been named the 2019 recipient of the Edward “Moose” Krause Distinguished Service Award, the highest honor given by Notre Dame Athletics Monogram Club, for her work in advocacy for families of children with disabilities.

Featured Recorded Webinars
Did you miss an IPFCC live webinar? We offer recordings of many of our past webinars.
Learn more and view available webinar recordings
PFCC in the Field
This section brings stories from the field right to your inbox. Some stories describe programs that have just begun; others describe more well-developed programs.

 Family Voices of Tennessee

logo-familyvoicestnCentral to the services offered by Family Voices of Tennessee (FVTN) is peer support. In 2018, over 1,000 parents were served through support groups, parent mentors, and follow up services. Because of the strong relationships FVTN has developed with clinicians, hospitals, and state agencies, outreach to families needing peer support can begin early.
Read more about the program
Review other resources about peer support

Resources and Opportunities
 New Website for TCPI
TCPi_logoThe Transforming Clinical Practices Initiative (TCPI) is pleased to announce the launch of the newly revised TCPI webpage now available on the Centers for Medicare & Medicaid Services (CMS) website. This webpage update includes tools and resources developed during the four years of TCPI, including a Compendium of Person & Family Engagement Tools and Resources.
Visit the TCPI page

Partnerships in Research to Address Preterm Birth
An article published on January 13th in BMC Pregnancy and Childbirth outlines a research study conducted by the UCSF California Preterm Birth Initiative. In the study, women of color with lived experience were engaged in focus groups to identify research priorities about preterm birth.
Read the article

pfcc connect Watch Previous Informal Conversations
If you missed the January 14th conversation, Celebrating Partnerships and Looking Toward the Future, or the earlier one on November 21, 2019 on Strengthening Advisory Programs, you can still access the recordings on the PFCC.Connect library. Become a member today to access those recordings, any mentioned resources, and recordings of all previous conversations!

Are there specific topics that you would like to discuss with the PFCC.Connect Learning Community? Send your ideas and suggestions for future hosted chats to Mary Minniti at mminniti@ipfcc.org.

Join PFCC.Connect Today!
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