Issue 139 | February 2021
IPFCC Events
Upcoming Free Webinars

A COVID Year in Review: What We’ve Learned About Partnerships Across the Continuum
Thursday, March 11th, noon ET

Join this free webinar to review the power of partnerships and how patient and family advisors have stayed connected to help promote safety, quality, and resiliency. Emerging best practices and new tools will be shared, including IPFCC’s resource, “Family Presence During A Pandemic: Guidance for Decision-Making.”
IPFCC at Work
Family Presence During a Pandemic: Guidance for Decision-Making

As we learn more about the COVID-19 pandemic, the serious harms of new restrictions for family presence in hospitals and other care settings are increasingly being recognized. To encourage organizations to “revisit” their policies, IPFCC has developed a free, online resource integrating the core concepts of PFCC and fundamental principles of bioethics into three tools to guide collaborative decision-making in achieving a better balance between benefits and harms – for patients, families, clinicians, and communities. Development of the resource was supported through funding from the New York State Health Foundation.
Resources and Opportunities
Partnerships with Patients and Families During COVID-19

This new IPFCC resource summarizes best practices in partnerships within key areas including telehealth, mental health, family presence, and health equity. Information for the resource was gathered during interviews and conversations in the past year with patient and family advisors and staff leaders in health care settings. Development of the resource was supported through funding from the Lucile Packard Foundation for Children’s Health and the New York State Health Foundation.
Community Partnership for Addressing Systematic Racism and Inequality

A new blog post from Community Catalyst and the Health Care Transformation Task Force discusses how efforts to partner with communities benefit health care organizations dealing with the current crisis by creating opportunities for patients, families, and the community to inform the development of new policies in response to COVID-19. IPFCC's Pam Dardess is a co-author.
OpenNotes Wants You to Be Ready!

OpenNotes, the international movement promoting and studying transparent communication in healthcare, is offering a series of free webinars and office hoursessions with topic experts. As of April 5, all U.S. healthcare systems will be required to share all visit notes with patients in electronic format. This is a great time for health system staff, advisors, and patients and family members to learn more about open notes and how they can be effective in improving care. Many past webinars (including sessions on pediatric notes, mental health notes, palliative care notes) are recorded and available to view on the webinar page of the OpenNotes website. If you want to stay up-to-date on upcoming webinars and registration, please sign up for the OpenNotes newsletter or periodically check the webinar page. For more information contact Deb Wachenheim at OpenNotes,  
Recordings from Past Webinars

The Evolution of Patient and Family Advisory Councils During the Time of COVID
Tuesday, February 9th, noon ET 

Other COVID specific webinar recordings are available here. If you missed previous webinars, you can access all the recordings here.
Special Thanks to Our PFCC.Connect Community Sponsor
If you missed previous Informal Conversations, we encourage you to listen to the recordings and access materials/slides at PFCC.Connect Library. Not a member? Join PFCC.Connect today!
Pinwheel Sponsors

Special thank you to our devoted Pinwheel Sponsors who have already renewed for 2021! With your renewal and support, IPFCC will continue our work in developing and sustaining meaningful partnerships with patients and families within hospitals, ambulatory programs, and other care settings. As a Pinwheel Sponsor, your organization gains national and international visibility of your commitment to patient- and family-centered care. To take advantage of the many benefits available to Pinwheel Sponsors, please renew or become a new Pinwheel Sponsor by completing our online application. If you have any questions, please contact Sherry Hajec at