Issue 141 | April 2021
IPFCC Events
Upcoming Free Informal Conversations

Reflecting on Inclusion, Diversity, Race, and Health Equity
May 11th, noon ET

IPFCC at Work
With grant support from the New York State Health Foundation, IPFCC has compiled a selected bibliography for the project, Supporting PFCC Practices and Strategies in the Time of COVID-19. These articles represent a cross-section of topics and issues showing the impact of the pandemic on patient- and family-centered practices and span the timeframe of July 2020 - April 2021. 

The Foundation is also supporting IPFCC in the development of a journal article about telehealth and essential partnerships with patients and families in the planning, implementation, and evaluation of telehealth.
IPFCC staff continue to work on addressing the impact of COVID-19. We are collaborating with Smart from the Start on a PCORI-funded engagement project to identify challenges to partnering with urban underserved populations in research in the time of COVID-19. The project involves family leaders, community organizations, and researchers. Tools and resources will be developed and shared later this year. Read more about the project here.
Resources and Opportunities
New Resource from Family Voices National

Family Voices National has created a Telemedicine Curriculum titled, Nuts and Bolts of Telemedicine: Essentials for a Family-Centered Experience. The curriculum includes four webinars and an accompanying set of PowerPoint slides and talking points that can be adapted to best suit your needs. All materials are available in both English and Spanish. Download the curriculum.
Vaccinated and Still Isolated: The Ethics of Overprotecting Nursing Home Residents

Written by the Long-Term Care Workgroup of the Empire State Bioethics Consortium, this article describes the challenges faced by nursing home residents and the impact of restrictions on their ability to be with family and friends on their quality of life.
NEJM Catalyst Event: Patients & Consumers in 2030

Sign up for Patients & Consumers in 2030, a free virtual event on June 10th hosted by NEJM Catalyst! In the second of a four-part virtual series, learn from an international panel of health care leaders and experts about how to center care delivery on patient engagement, equity, and empowerment.
The Beryl Institute: The Declaration for Human Experience

The Beryl Institute recently announced its newest initiative, the Declaration for Human Experience, a social movement committed to transforming the human experience in healthcare. IPFCC is pleased to join this movement. Support the movement today and sign here as an individual or on behalf of your organization! 
Recordings from IPFCC Past Webinars & Informal Conversations

"Where Do We Go From Here?"
April 6th, noon ET

Other COVID specific webinar recordings are available here. If you missed previous webinars, you can access all the recordings here.

If you missed previous Informal Conversations, we encourage you to listen to the recordings and access materials/slides at PFCC.Connect Library. Not a member? Join PFCC.Connect today!
Pinwheel Sponsors

A special thank you to our 2021 IPFCC Pinwheel Sponsors and their ongoing commitment to advancing patient- and family-centered care!
Akron Children’s Hospital

American Association of Colleges of Pharmacy

American College of Radiology

Ann & Robert H. Lurie Children’s Hospital of Chicago

Augusta University Health

Beaumont Health

Bronson Healthcare

Children's Mercy Kansas City

Children's Minnesota

Children’s Specialized Hospital

Hasbro Children’s Hospital/Rhode Island Hospital

IWK Health Centre

Joe DiMaggio Children’s Hospital

Luminis Health / Anne Arundel Medical Center
Massachusetts General Hospital

MHA Keystone Center

Moffitt Cancer Center

Nationwide Children’s Hospital

Penn State Health Milton S. Hershey Medical Center

Providence Health Care

Society to Improve Diagnosis in Medicine

Stanford Health Care

Thunder Bay Regional Health Sciences Centre

University of Iowa Stead Family Children’s Hospital

University of New Mexico Children’s Hospital

Vanderbilt University Medical Center
If you would like to learn more about IPFCC’s Pinwheel Sponsor Program or if you have any questions, please contact Sherry Hajec at
Looking for additional information on patient- and family-centered care?