Issue 146 | September 2021
IPFCC Events
Upcoming Webinar
Partnering with Individuals with Lived Experience in Mood Disorders Research
October 19, 2021, 1pm ET

Join IPFCC and the Depression and Bipolar Support Alliance (DBSA) for “Partnering with Individuals with Lived Experience in Mood Disorders Research.” This free webinar will highlight results from IPFCC and DBSA’s recent PCORI-funded project to identify priority topics for mood disorders research, as defined by individuals with lived experience.

Presenters from IPFCC, DBSA, and PCORI will highlight opportunities for future mood disorders research and partnership. Individuals with lived experience will participate on a panel to share their perspectives. Register here.
Upcoming PFCC.Connect Informal Conversation

Exploring Online Engagement Learning
October 13, 2021, Noon ET
Save the date
New Study of Patient and Family Faculty
In 2020, IPFCC collaborated with Vizient to conduct a national survey to better understand the prevalence and functioning of patients and families as educators of health professionals, students, and trainees in hospitals and academic medical centers. This report shares results and highlights best practices and opportunities for improvement. The study is part of an IPFCC project, funded by the New York State Health Foundation, to explore the engagement of patient and family faculty in existing programs and develop resources to help organizations create or strengthen similar programs. The resources will be available in early 2022. Read the full report here.
Share Your 2020 or 2021 PFAC Annual Report with IPFCC
Annual reports for patient and family advisory programs are important for documenting the impact of patient and family advisors and councils and for promoting sustainability of an advisory program. IPFCC is updating the Best Practice section of our website, adding current annual reports to share with the field. If you are interested in listing your annual report, or if you are already listed but have an updated annual report, please send us your report at To see the full list of annual reports, visit
Resources and Opportunities
AHRQ Toolkit Now Available to Help Engage Patients and Family Members in the Diagnostic Process

AHRQ has released a new toolkit to help engage patients and family members in the diagnostic process. The Toolkit is for patients and clinicians regardless of practice setting and is composed of two evidence-based strategies that promote meaningful engagement and communication to improve diagnostic safety. A patient note sheet to help patients share their symptoms and several practice orientation and training tools to help clinicians foster deep listening and “presence” in the encounter are included. Download the toolkit here
Where Is My Medical Record?
A new resource developed for patients by OpenNotes and Ciitizen helps patients understand why their medical records are important—and how to get them. If you are having trouble finding or using your health records, this website offers some step-by-step tools to get them. Share with friends, family members, colleagues and visit to learn more.
Upcoming Conference for Families: An Invitation from the National Federation of Families

Registration is open for the National Federation of Families' Annual Conference taking place virtually November 4-6, 2021. A unique national conference dedicated to supporting families whose children experience mental health and or substance use challenges during their lifetime. For more information and to register, visit here.
Peers Speak Out: Priority Outcomes for Substance Use Treatment and Services
Community Catalyst, partnering with Faces & Voices of Recovery and the American Society of Addiction Medicine (ASAM) and guided by a National Peer Council of people with lived experience of substance use disorders, recently released a national report examining treatment and recovery service outcomes. The report includes research and findings, including recommended action steps for policymakers, service providers, and researchers. Read more here.
Recordings from IPFCC Past Webinars & Informal Conversations

Better Together: Recommitting to Family Presence
August 25, Noon ET
Other COVID-specific webinar recordings are available here. If you missed previous webinars, you can access all the recordings here.
PFCC.Connect Informal Conversation: Re-Energizing Partnerships Amid COVID’s Resurgence
September 15, 2021, Noon ET