June/July 2017
Issue 103 
Email IPFCC at institute@ipfcc.org   www.twitter.com/IPFCC   www.facebook.com/IPFCC   https://www.linkedin.com/company/institute-for-patient--and-family-centered-care
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The Abstract Submission Site is now open.
Submit your abstract before July 28th!
Small version of CFA cover
Download our Call for Abstracts Brochure for more information.
With leadership 
support from

Johns Hopkins Medicine logo
And program
support from

Partnerships in Research – New IPFCC Online Resource
IPFCC is proud to announce the launching of a Toolbox, “Creating Sustainable Partnerships with Patients and Families in Research.” It is designed to provide information, strategies, and resources for creating research partnerships among patient and family advisors, researchers, clinicians, and staff. The Toolbox was developed as part of a two-year project funded by the Patient-Centered Research Institute (PCORI) Engagement Award Initiative. IPFCC is grateful to PCORI, the contributors, and the seven teams that were part of this project:
  • Essentia Health
  • Hassenfeld Children’s Hospital at NYU Langone
  • Middlesex Hospital
  • Moffitt Cancer Center
  • Ohio State University Wexner Medical Center
  • Stanford Health Care
  • Vidant Health
Explore the toolbox here.
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Register for a FREE webinar about the Toolbox and how to use it. 

 Better Together Banner
Better Together Across New York State
With funding from the New York State Health Foundation (NYSHealth), IPFCC will again collaborate with the New York Public Interest Research Group (NYPIRG) and New Yorkers for Patient & Family Empowerment – this time to extend the Better Together campaign across New York State (NYS). Building on a prior project in New York City, the initiative will enhance care in NYS by supporting hospitals to shift from practices treating families as “visitors” to those welcoming and involving family caregivers as partners in care. Fifteen to twenty
hospitals from locations within NYS will participate in the new project.  

Partnerships in Safety – Partnership for Patients
The Partnership for Patients (PfP) initiative is a public-private partnership, funded by CMS, working to improve the quality, safety and affordability of health care for all Americans. PfP hopes to engage 100 percent of the nation's acute care medical centers in making hospital care safer, more reliable, and less costly. Improving care transitions and reducing hospital readmissions are key goals of the initiative.

On May 23, 2017, the Patient and Family Engagement and the Readmissions Affinity Groups of PfP held a joint webinar focused on using IPFCC's Better Together campaign as a strategy for reducing unnecessary hospital readmissions. IPFCC President and CEO, Bev Johnson, together with Pamela Bell, Director of Patient- and Family-Centered Care at Valley Hospital and Christine Maika, Improvement Lead, from the Canadian Foundation for Healthcare Improvement (CFHI), shared information about the Better Together campaign in both the U.S. and Canada.

Listen to the webinar recording.

 Family Presence – A Top Priority in Canada
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Canada’s health leaders were asked recently to identify the Canadian healthcare system’s most pressing current need. The annual exercise was conducted as part of the Great Canadian Healthcare Debate at the National Health Leadership Conference (NHLC) in Vancouver, British Columbia, June 12-13. In late 2016, more than 30 motions were submitted; ten were selected by the Policy Resolution Committee. Then, conference delegates, over 700 of the nation’s health leaders, selected three options, from a short-list of six, for consideration in the debate. On the second day of the Conference, presentations were made by the sponsors of the final three motions.

CFHI, logo, cfhi-fcass_ca-white
Selected as the second national priority was the adoption of family presence policies in hospitals across Canada, supporting patients to designate loved one(s) as members of the care team with around-the clock access.The motion introducing family presence was sponsored by the Canadian Foundation for Healthcare Improvement (CFHI), IPFCC’s Canadian partner for the Better Together campaign. Carol Fancott, CFHI’s Director of Patient Engagement, presented the motion at the conference. Read more about the Better Together campaign in Canada.

Primary Care Corner – Moffitt Medical Group
IPFCC is partnering with the Patient-Centered Primary Care Collaborative (PCPCC) as part of its Transforming Clinical Practice Initiative (TCPI) Support Alignment Network (SAN). This column provides highlights from the field. 
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With 22 outpatient clinics, the Moffitt Medical Group (MMG), based at the Moffitt Cancer Center, is Florida’s largest multidisciplinary medical group practice dedicated to cancer care. 

Moffitt, 2017 May full council photo (2)
Because MMG provides cancer care to thousands of patients, dissatisfaction about access for new patients reflected in Press Ganey surveys was an important finding. The survey data was shared with the Patient and Family Advisory Council (PFAC) and phone and in-person interviews were conducted with both new and ongoing patients. From the interviews, they learned that patients wanted to talk to an actual person and be scheduled at the time of their first call. To ensure this message was being heard, the project was named, “Patients First.”

An improvement team, including an employee who is a cancer survivor, explored possible solutions. Moffitt then piloted a new approach in one clinic. Staff generated a list of questions to create an algorithm and members of the PFAC provided feedback; they also sought input from current patients about the wording of the questions. This process has been repeated in six MMG clinics to date.

There are already indications this work is making a difference to MMG patients:
  • Press Ganey scores for patient satisfaction showed a 1.5% increase.
  • 79% of patients calling for the first time had an appointment scheduled the same day (baseline was 21%).
  • Breast cancer appointments scheduled within 7 days of an initial call improved from 18% to 25%
Improving access to ambulatory care services also saves lives. Because of MMG’s new scheduling process, a scheduler emailed Dr. Timothy Kubal to seek guidance about a patient on the phone. Kubal reports, “We brought her in within two hours of her initial call and she was in the hospital and diagnosed within 7-8 hours. A couple more days of waiting and she would have died.”

Visit the PCPCC Support and Alignment Network website for information on upcoming events, as well as resources and other information to support patient- and family-centered care.

If you already partner with patients and families to improve primary or ambulatory care and want to share your successes or learn more, join the free online learning community for Primary and Ambulatory Care Partnerships on IPFCC's PFAC Network

In this Issue 
  • Call for Abstracts – 8th International Conference

  • Partnerships in Research – New Online Resource
  • Better Together Across New York State
  • Partnerships in Safety – Partnership for Patients
  • Family Presence – A Top Priority in Canada
  • Primary Care Corner – Moffitt Medical Group
  • Webinars
  • Announcing the IPFCC Partnership Award
  • PFA Video from MetroHealth System
  • Join IPFCC to Celebrate Its 25th Anniversary
Upcoming Webinars 

Creating Partnerships with Patients and Families in Research

Kelly Parent
Beaumont Health

Marie Abraham

Get more details and register.

Linking Patient- and Family-Centered Practice with High Reliability

Bev Johnson

Pamela Bell 
The Valley Health System

Get more details and register.
Space is Limited. 
Featured Webinar Recordings


Missed one of these IPFCC webinars?
Register to view the recording!

» Collaborating with Patients and Families in Quality Improvement

» Developing and Maintaining a Mentor Program

Contact IPFCC to register for a recording. 

IPFCC Webinars are a cost-effective educational resource. Cost is per line, so a group of any size can participate from the same location on one line. Learn more.

Announcing the IPFCC Partnership Award
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The IPFCC Partnership Award is a new program that recognizes innovative partnerships among patients, families and health care professionals. For 25 years, IPFCC has provided leadership to advance the practice of patient- and family-centered care and ensure that partnerships are at the heart of the health care system. The award recognizes teams of health care professionals and patients/families who, through their collaboration, truly are changing health care.

The award recipient team and two finalist teams will be honored at IPFCC’s Gala Dinner at the National Press Club in Washington, DC, November 3, 2017.

In late July, the Call for Nominations will be announced on IPFCC’s website.

PFA Video from MetroHealth System
Metro Health PFAP

This video highlights the accomplishments of PFAs at The MetroHealth System and is used as a recruitment tool for prospective PFA candidates. PFAs were very engaged in the development of the video and were excited to share their experiences. View the video.

Join IPFCC to Celebrate Its 25th Anniversary  
We are celebrating IPFCC’s 25 years of leading the field in patient- and family-centered care and our commitment to continue that work into the future.
25th anniversary Pinwheel
Join us for the Gala dinner: National Press Club in Washington, DC,
November 3, 2017.

IPFCC’s accomplishments under the leadership of Bev Johnson, Founder, President and CEO, will be recognized. More information will follow in the upcoming months about this special celebratory event. Please consider making a contribution to IPFCC to support and expand its work.  

Donate Today! 


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About Us
Founded in 1992 as a nonprofit organization, the Institute for Patient- and Family-Centered Care (IPFCC) works to advance the understanding and practice of patient- and family-centered care in all settings where individuals and families receive health care.

Institute for Patient- and Family-Centered Care
6917 Arlington Road, Suite 309 • Bethesda, MD 20814