October 2019
Issue 126

IPFCC Events
Save the Date: IPFCC's 9th International Conference on Patient- and Family-Centered Care
Our 9th International Conference on Patient- and Family-Centered Care: Partnerships for Quality, Safety, and Equity will be held in Nashville, TN (“Music City”) on August 18-20, 2020 and IPFCC is pleased to announce that Vanderbilt University Medical Center is serving as leadership sponsor of this inspirational and informative event. Beaumont Health is providing partnership support.
Share your organization’s innovative programs and submit an abstractSubmissions are due December 4th.
Resources for Patient and Family Faculty
logo-nysh  The NYSHealth Foundation has provided support to IPFCC for a 20-month project to develop, test, and disseminate education and implementation guidance resources for developing patient and family faculty programs within academic medical centers.

Special, Free, Webinars on Better Together Initiative
Better Together logoAs a final activity in Better Together: A Learning Community for NYS Hospitals, IPFCC is hosting two webinars highlighting the 5-year Better Together campaign. The first, on November 7th at 3:00 PM ET, will look at the experience of the Northwell Health system in revising its websites to reflect the importance of family presence and to provide helpful information for families. The second, on November 14th at 1:00 PM ET, will focus on the recently published new edition of Sick, Scared & Separated from Loved Ones. With funding from the NYSHealth Foundation, IPFCC collaborated with the New York Public Interest Research Group (NYPIRG) on this initiative.
Register for the Northwell Health webinar here
Register for the Sick, Scared, & Separated from Loved Ones webinar here

Vermont Oxford Network (VON)
VON has been a champion of family-centered newborn intensive care for two decades. Family partners are engaged at all levels of their improvement collaboratives. At its recent Annual Quality Congress held in Chicago, Marie Abraham, VP for Programming and Publications presented with Marybeth Fry, lead family faculty, and was inspired by the parents who presented at each plenary presentation.
Featured Recorded Webinars
Did you miss an IPFCC live webinar? We offer recordings of many of our recent webinars.
Learn more and view available webinar recordings
bioNatashaReedIntroducing New Staff Member
IPFCC welcomes Natasha Reed to its staff as the new Registration and Database Manager. She brings years of expertise in database and events administration from organizations in Florida and New York. Natasha will work remotely from Callicoon, NY.
Resources and Opportunities
A Broader View of Quality of Care
In the September 2019 issue of Trustee, Gary Yates, M.D., states, “Patients and families expect (and deserve) care that is safe, high-quality and patient-centered.” To achieve this, he urges health care leaders and board members to think broadly and track measures that meet the needs of the communities they serve.
Read the article

nejm catalystIntegrating the Patient Voice: Defining the Terms
An article titled, “Taxonomy of the Patient Voice,” in the September 17, 2019 issue of the NEJM Catalyst, tackles the growing body of terms now used in the field.
Read the article

New Patient Engagement in Quality Measurement Rubric Supports Patient Partnerships 
PQA Measurement Rubric

This guide designed to help meaningfully involve patients as partners across the quality measure lifecycle was developed by a national roundtable convened by the Pharmacy Quality Alliance in partnership with the National Health Council and the National Quality Forum. IPFCC participated in this effort. The rubric describes engagement in quality measurement across patient-centered principles and provides recommended activities to improve engagement.
Read the rubric

pfcc connect Upcoming November Informal Conversation
In September, PFCC.Connect hosted an informal conversation on Patients and Families in Training and Faculty Roles. PFCC.Connect members have access to recordings of this and previous conversations, along with all relevant resources. Become a member to access these, connect with others in the field, view/share other great resources, and receive an invitation for our next informal conversation, being held on November 21st at 12 PM ET. We will be discussing the topic of Strengthening Your Advisory Program.
Join PFCC.Connect Today!

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